Hey Ken,

Thank you for the feedback and analysis of your response to the anti-inflammatory regimen.  I'll jump to the point and wager you will not experience a CH cycle next year if you stay on this regimen.  I intend to stay on it for the rest of my life.  My wife also takes it and she doesn't have CH.

At less than 20 cents a day, >80% efficacy and no adverse side effects, it's good for the eyes, brain, bones, heart, lungs...  you can't say that for any of the other CH preventatives...

If you read through my reply to Lawrence, you'll see that it can take a couple weeks and sometimes a little longer build the serum concentration of 25(OH)D3, the vitamin D3 metabolite, up to a therapeutic level.

Hope this helps.

Take care,

V/R, Batch

Hey Stella,

Thanks for the post.  I share your aversion to food stuffs coming from China...  I did a good bit of research on the source of Omega 3 Fish Oil ingredients.  It turns out that most of the processed fish oil sold here in the US for use in the molecular distillation processing that yields Omega 3 Fish Oil comes from sardines, herring, and anchovies caught off the coast of Chile...

Nature Made is up front on it's assay for heavy metals listing it on the label and as a US firm...  I have no problem with their Omega 3 Fish Oil.  I take it daily...   

From my earlier posts on this page, you'll see that it can take some CH'ers a week or two and for others, as much as a month or two before the beneficial effects of this anti-inflammatory regimen start to manifest.   

It's still a theory at this point and like many of you, I'm still learning about this regimen, but until we get some before and after blood tests, it appears that CH'ers, who have very low 25(OH)D levels, tend to take longer to experience the benefits of this regimen at a dose of 10,000 I.U. vitamin D3/day. 

As 25(OH)D, the metabolite of vitamin D3 is fat soluble and is stored in the fatty layer under the skin, it appears the fat absorbs much of the initial dosing of the serum concentration of 25(OH)D and it doesn't build up to a therapeutic level in the serum to affect CH patterns until the fatty layer is nearly saturated.

Dr. Lewis points out in his paper  "Vitamin D Deficiency: more on diagnosis and management" that I've posted several times in this thread "...For a patient with an initial blood level of 50 nmol/L, a daily dose of 10,000 I.U./day would be required to raise their 25[OH]D level to about 150 nmol/L (i.e. the middle of the optimal range) over 3 months."

A few CH'ers who have discussed this regimen with their physician and had their 25(OH)D levels tested, reported they've been prescribed 20,000 I.U. vitamin D3/day to speed up the process of elevating their serum 25(OH)D.

Once you've been on this regimen for a month or so, the half life of 25(OH)D is roughly three weeks.  What that means is after a month, if you skip/miss a dose, it's no biggie...

Hope this helps and hang in there.  This is a very healthy regimen with more health benefits that just controlling your CH.

Take care and please keep us posted.

V/R, Batch

Hey Jennifer,

Thank you for the update.  It's a wonderful feeling isn't it.

The important thing now is stay on this regimen.  It's not a cure.  That said, I think you'll find this regimen has other healthy benefits after a few more weeks that will convince you to stay on it. 

My wife started taking it when she saw what it was doing for me weeks after it stopped my CH.  She feels better, sleeps better, and has more energy.  She bounces around the house and yard like a kid again. 

When you look at all the other potential health benefits from taking this regimen, it's a no-brainer...  We're on it for life.

Take care,

V/R, Batch

Hey Karen,

Please believe me, I know what you're going through.  I went through a similar scenario July - September of last year with airline travel to Zurich, Hamburg, Reno, Seattle and Ketchikan, Alaska. You have the advantage of already starting the anti-inflammatory regimen so have a leg up on what I was going through.  I got nailed on nearly every flight...

What I'd suggest at this point is hang in there and don't let CH change your plans...  You'll get through this one way or another.  The first thing I'd do is have my blood tested for 25(OH)D levels.  This will let you know where you stand with respect to how much longer it's going to take for the anti-inflammatory regimen's vitamin D3 to achieve a therapeutic level of 25(OH)D.

The second thing I'd do is start on an anti-inflammatory and alkaline forming diet.  The following links will point you in the right directions.

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I'd also avoid food stuffs containing gluten and peanuts until you get your CH totally under control.  While you may not be having a noticeable allergic reaction to these food types with clear or apparent symptoms, it's still possible you're having a reaction and although low, it's high enough to affect the frequency and severity of your CH.

Finally, I've found that ordering oxygen cylinders to have them available at travel destinations is easy and comforting.  Between LifeGas - OxyTravel™ and Apria I've had oxygen cylinders waiting for me at all my travel destinations across Europe, Alaska and here in the lower 48.  The important thing and a MUST... is to have a copy of your Rx for oxygen therapy and that it states it is for your CH, so you can fax or scan to pdf and email to the provider. 

I also ask for the aluminum M60 or aluminum M-size cylinders.  At 23 lbs, the aluminum M60 is light enough to carry from room to room and they hold 1700 liters of oxygen so are good for 8 to 9 aborts. The aluminum M weighs in at 41 lbs so is still luggable, but with a capacity of 3450 liters, it's good for up to 20 aborts...

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Taking my oxygen regulator and mask through TSA security is usually event free.  I tell the TSA attendant at the security check point there's an oxygen regulator in my carry-on bag as I push it towards the the X-Ray machine. They may want to look at it so I keep the regulator and mask in ziploc bags on top if they want to open the carry-on bag.

That leaves the actual flights with the inevitable CH that hit.  Expect them to occur and plan accordingly.  You've got the fast acting oral triptans, I carried a nasal spray applicator for each leg of air travel. I also alerted the flight attendants while boarding that I'm a cluster headache sufferer and will need a couple glasses of ice and an ice bag when one hits.

I've also found that hyperventilating with air at forced vital capacity tidal volumes can help.  It won't stop the CH, but it can help hold the pain in check and keep it from becoming a head-banger.

With luck, your CH will start responding to the anti-inflammatory regimen making most of the actual travel preparations a secondary safety net.

Take care and please keep us posted,

V/R, Batch