Since I have found this website and all the great info you all have provided, I have been taking notes and presenting to my husbands nuero.  Well this is obviously making him angry.  We have Kaiser insurance and can email to Johnny's doc.  Well the other day he responded to me in a snooty sort of way about the emailing of medical student questions should stop and we should make an office visit to discuss my concerns.  So I tried only to find there was nothing available until after the first of Aug.  We went to the members services office to lodge our complaint and were told to go right to the nuero's office.  When we arrived we waited almost an hour and then he never spoke to us directly, we had to middleman with an RN to get our answers, nothing was really resolved with Johnny's treatment, as our nuero is unwilling to hear some of the things I have found here.  His statement was there is much info on the web that is unsubstantiated, and he is doing what he thinks will work for Johnny. The main treatment I was questioning was the pred taper.  He never prescibed a taper for Johnny.  Only a 5 day supply of pred and an immediate stop.  While Johnny was on the pred his headaches went into remission, although he was goofy as all hell ;  as soon as he stopped the pred, the beast came back.  Any suggestions as to how I can convince the nuero a pred taper is what he should have ordered.

Brew wrote on Jul 15^th, 2012 at 12:42pm:


Amen, I fired my GP when he did not have time to research Frova for me after I told him about the medicine.

johnnysrock wrote on Jul 15^th, 2012 at 10:40am:






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I'd believe they are very evident.  The main concern is he is back to square one after five days, most likely would be and now you need answers from him.


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For five days?  Now what?


Right here is your concern and all you should need to say for this doc to have an immediate appointment.

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Clusters can come back heartily after pred. 

Find out if he has an answer          or change.