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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Dear family pt 2.... Reply #100 - May 21^st, 2013 at 10:43am Humor and a good heart can speed your healing, my friend. And you have those attributes. We think of you often. It's a joy to hear from you. All our very best, George
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Dear family pt 2.... Reply #101 - May 21^st, 2013 at 3:12pm Hang in there, Sweetie...your attitude will carry you a long way. Sending prayers and love.
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Dear family pt 2.... Reply #102 - May 21^st, 2013 at 4:20pm Jon, that sounds like an awesome place! I bet you'll find others to connect with as well and cheer them up with your wonderful stories and way with words. Wish I was close by, I'd come and visit you. xo
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Dear family pt 2.... Reply #103 - May 22^nd, 2013 at 11:11pm Jon, Jon, Jon, " release my inner smart-ass"??? If you have an "Inner" one, what in the heck is IT like??? Hang in there, my friend. Praying for you! Jerry
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Clusterman59

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Pain free is AWESOME!!

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Re: Dear family pt 2....
Reply #104 - May 24^th, 2013 at 12:10pm

Jon...
Even though we don't know each other well I want you to know that my thoughts and prayers are with you on your difficult road. This is a wonderful family we have here and we have your back so keep talking and venting as we are ALL rooting you on and want to help as much as possible with support, caring and love for a family member...Take good care and keep fightin the good fight!!....

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Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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Re: Dear family pt 2....
Reply #105 - May 25^th, 2013 at 9:36pm

Jon,

Keep that stone with you. Remember,...the one I asked you to find? Hold it tight in your grasp during these times. The more you touch it, the more you run your thumb over it's surface, the more you attract all the positive energy flowing your way. Like static electricity, the more you rub a balloon the more energy it creates and attracts. Rub that stone Jon.....Rub that stone....LOVE you.

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"The goal of life living in agreement with Nature." ~Zeno

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jon019

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"Ya gotta believe!"

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Re: Dear family pt 2....
Reply #106 - Jun 6^th, 2013 at 11:36pm

Chapter 101 "Shhh...be vewy vewy quiet....I'm hunting wabbits!"

Been laying low...don't wanna jinx nothing, but.....

there's good news on "the condition": bear in mind only ONE infusion so far....

Several of the out of whack blood chems are now "normal" several others that aren't normal are "trending" normal.

Unbelievably...I can actually feel the near surface nodes shrinking...I kept myself from getting too excited...but nurse said its not unusual. The good is...it's so...the bad...it's so because those nodes were growing really fast...it's the slow growing ones we worry about...but still..."you CAN get excited!!"

Before...I was completely miserable along with being dishrag tired...now I am even MORE tired (sleeping 15 hrs/dy) but no longer miserable!!!!. She said....not unusual...before your body was working against you along with being sick....now it's working for you. You're gonna be tired...and maybe even worse...but that's GOOD energy devoted to the right places.

Am itchier than a calico cat in a box full of cooties...but they tell me that's normal too....skin cells grow fast and we're knockin 'em out just like the "C's"...

next infusion June 14/15...I have been warned...make no assumptions...don't get too high or too low..."things" could happen. They aren't being negative...just real.....me too Cool

Best

jonboy

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The LARGE print giveth....and the small print taketh away. Tom Waits

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Dear family pt 2.... Reply #107 - Jun 7^th, 2013 at 11:00am Keepin it real Jon.....and keep kickin its arse. We're all in your corner. Joe
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Dear family pt 2.... Reply #108 - Jun 7^th, 2013 at 11:37am Go meds, go meds, go meds!!! Yay Jon! I know you don't want to get your hopes up but I'll be excited for you anyway!
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Dear family pt 2.... Reply #109 - Jun 7^th, 2013 at 2:52pm Yes!! Sounds positive and I love it. Good thoughts and prayers always
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Dear family pt 2.... Reply #110 - Jun 7^th, 2013 at 5:02pm You go Jon!!!!!
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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Dear family pt 2.... Reply #111 - Jun 8^th, 2013 at 12:51pm Great news Jon!
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jon019

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Re: Dear family pt 2....
Reply #112 - Jul 5^th, 2013 at 9:38pm

..my brother...Pete...is a GOOD man...better than me in many ways (you all would like him...a lot!)...and the possessor (usually) of a much gentler wit than myself...

...but, occasionally...when my knothead tendacies and "quietude" prevail (sheesh, ask the Sis and nieces)...it pisses him off and he will say:...which we will call Chapter 103 ...."

"You're Fine...How Am I???"

Well...dang...I hope truly wonderful!...

bucket-head

Myself?...the journey is just so frigggin interesting. Side effects of chemo much less dramatic than envisioned...got all my hair (sheesh, didn't have any anyway)...no barfing..now THAT'S a blessing...skin shedding...but shoot...it grows back doncha know? A bleed here and there...but dang, I got quarts! Tired?...who cares...I'm retired..if reading the paper requires too much energy....there be... a... nap Wink

Next chemo next Friday/Sat..now THERE'S 10+ hours of true joy....bwaaaaa-hahahahaha....

No worries mi amigos...I'm gettin' along like a little doggie!

Love

jonboy

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The LARGE print giveth....and the small print taketh away. Tom Waits

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Dear family pt 2.... Reply #113 - Jul 6^th, 2013 at 2:38pm You're always in my thoughts, Jon, and I'm so happy to see you're still chugging along. THANK YOU for letting us all know how you're coming along! You are our brother and if you didn't tell us we'd have to hunt you down and hog tie you. xo mel
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Dear family pt 2.... Reply #114 - Jul 6^th, 2013 at 8:59pm It's always nice to hear from you and to hear how you're doing. Your positive energy will be such a big boost for you.
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Dear family pt 2.... Reply #115 - Jul 8^th, 2013 at 1:37am Make sure you spread your amazing positive attitude to everyone else as it'll do wonders.
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jon019

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"Ya gotta believe!"

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Re: Dear family pt 2....
Reply #116 - Aug 6^th, 2013 at 11:12pm

Chapter 107:

"So...There Ya Go...and then...There Ya Are!...and if you weren't there?...You'd Be... Somewheres Else!"
...doncha know?

Me?...I'm looking for that somewheres else. Last chemo kicked my ass...a little surprising...cuz the first two were "easy...sorta"...so got complacent...tho they told me "don't make assumptions cowboy!"... plus one of my meds is twistin' my colon, so to speak.

Doc appts all this week....next chemo round this fri/sat...I'm a little worried...and... "it takes a worried man to sing a worried song...(so I'm hopin) I'm worried now, but I won't be worried long!"

Isn't there some cosmic deal where ya get sick, get yer ass kicked, climb out of the hole, and move on???
I got my boots on....I'm ready!!!

Thinkin I need a joke or two...can ya all hep a fella out?
Jerry and Brian one up on ya....... Cool

Best

jb

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« Last Edit: Aug 6^th, 2013 at 11:21pm by jon019 »

The LARGE print giveth....and the small print taketh away. Tom Waits

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Dear family pt 2.... Reply #117 - Aug 7^th, 2013 at 1:08am Gotta wonder about them doctors, Jon. One of my legs isn't so good just now and he reckons it's because I'm getting older. I said, "Oi, my other leg is the same age and it's fine."
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Dear family pt 2.... Reply #118 - Aug 7^th, 2013 at 7:38am Didja hear the one about the cannibal who passed his brother in law in the jungle??? Hang in there Jon, wish I could shoulder some of the load for ya. Joe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Dear family pt 2.... Reply #119 - Aug 7^th, 2013 at 8:13am Two cannibals were eating a clown. One says to the other, "Does this taste funny to you?"
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Melissa

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Don't give up!

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Re: Dear family pt 2....
Reply #120 - Aug 7^th, 2013 at 8:29am

What did one hat say to the other? I'll stay here, you go on a head!

How much does a pirate pay for corn? A buccaneer!

What did the psychiatrist say when a man wearing nothing but saran wrap walked into his office? I can clearly see you're nuts!

What happened when the butcher backed into his meat grinder? He got a little behind in his work.

A magician was driving down the road..then he turned into a drive way.

xoxo

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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Peppermint

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Work it out baby!

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Re: Dear family pt 2....
Reply #121 - Aug 7^th, 2013 at 10:44am

Hey Jon..
Even though I rarely post here anymore, I have been following. You have the amazing optimist spirit that would put Buddha to shame!

Here's an oldie but a goodie..

A guy was seated next to a 10-year-old girl on an airplane. Being bored, he turned to the girl and said, "Let's talk. I've heard that flights go quicker if you strike up a conversation with your fellow passenger."

The girl, who was reading a book, closed it slowly and said to the guy, "What would you like to talk about?"

Oh, I don't know," said the guy. "How about nuclear power?"

"OK," she said. "That could be an interesting topic. But let me ask you a question first. A horse, a cow and a deer all eat the same stuff... grass. Yet a deer excretes little pellets, while a cow turns out a flat patty, and a horse produces clumps of dried grass. Why do you suppose that is?"

The guy thought about it and said, "Hmmm, I have no idea."

To which the girl replied, "Do you really feel qualified to discuss nuclear power when you don't know shit?"

Cheesy

Wishing you the best!

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jon019

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Re: Dear family pt 2....
Reply #122 - Aug 7^th, 2013 at 11:47pm

OHHHH...you people are just PRICELESS!!!!...I have tears running down my cheeks...and they be good ones! THANK YOU>>>>>>>>>>>>>

Spent all day today in the ER...oncologist made me go..didna wanna...but didna wanna piss her off...shit...it's like being married....................

1 hr of tests.....9 hrs of finger in nose and thumb in..... "SHHHHH...AAAAAA...VING CREAM...feel nice and clean" just...fricken...waiting..... (that be a Dr Demento reference, in case ya wonder Wink

)

...the ONLY entertainment being the show across the hallway...a tiny, ancient, Russian lady..with indistinguishable injuries...who carried on an hours long conversation (with herself, mind you...and I REGRET that I couldn't follow...probably better than tv)...and responded to any attempts to help with...OI>>>OI>>>OI>>>OI...or DA, DA, DA!!!, or....NYET, NYET, NYET!!!....talk about priceless. The looks on the nurses faces as they left...I needed a camera! DANG Grin

.

...wanted to go over...cup her cherub Babushka cheeks in my hands and say.."STF up and let them help you!" Unfortunately, I sometimes lack the bravery required of conviction follow through...but I'm workin' on it....chemo this friday/sat...tis' the limit of my courage these days

Best

a tired.......j

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The LARGE print giveth....and the small print taketh away. Tom Waits

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Callico

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Re: Dear family pt 2....
Reply #123 - Aug 8^th, 2013 at 2:39pm

Jon, my friend,

I haven't been on here in a while, and missed your update. Sorry! I normally check this page looking to see if you've posted, but have been busy and neglected you. My Jr Hi and Sr Hi Sunday School class has been praying for you. I've told them about your attitude and your ability to laugh at life and its foibles. They have taken a real interest.

If you will PM me your addy I'll mail you a couple of books I've enjoyed. First book that actually made me laugh out loud in several points. My wife was in the other room, and she asks, "Are you on that Clusterhead page again?" It's that funny. If you don't want to send your addy, send my someone else's that will pass it on. Wink

I'll work on some jokes for you. Don't have any at the ready. Embarrassed

All the best,
Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Callico

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Re: Dear family pt 2....
Reply #124 - Aug 8^th, 2013 at 2:46pm

Jon,

One weak story just came to mind:

An African tribal king was a great admirer of the English Monarchy. He had been given a picture of one of the old English kings sitting on a throne wearing an Ermine robe and wanted the same for himself. He saved for a number of years and finally was able to buy a throne for himself.

The tribal witch-doctor was a mortal enemy of the king, and was jealous of his throne, so one night he sneaked into the throne room and stole the throne!

The next morning the king was furious and demanded a hut by hut search of the village to look for the missing throne. It was not found anywhere. Furious, the king went to the witch doctor's hut and demanded to know what the witch doctor had done with it. The witch doctor denied any knowledge of the throne, upon which the throne fell from the rafters onto his head and killed him.

The moral of the story is this: Those who live in grass houses should not stow thrones!

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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