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Still still gone (Read 891 times)
stillgone
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Still still gone
Jul 24th, 2014 at 3:55pm
 
My Name is Michael, I was around 22 years of age when I started getting Migraine Headaches; it was later diagnosed as a Cluster Headache. My story is based on my experience as I remember it. My first headache woke me up out of a deep sleep, I woke up with immense pain over my left eye.  I went to an ENT, Ear, Nose and Throat Doctor. He stated I have a condition known as Cluster Headaches. He told me there was no cure at this time and that I could lessen the attacks by staying away from certain triggers like smoking, caffeine, chocolate and sunlight. So I thought to myself, who does this guy think he is? No cure, he canít place that type of burden on me. I sought alternative healing methods such as Chiropractors, Acupuncture and even a guy who put some kind of ointment on my head and burnt me with a hot iron. If youíve suffered these types of headaches you learn something about yourself, well at least I did, displaced pain was a relief. Seriously, I started burning my head with a hot iron and towel so it wouldn't fry my skin; this is not a recommendation, but for me, it gave me temporary relief. I snorted Cayenne Pepper, once again not a recommendation. The headaches only came back stronger. I  became a self involved sufferer, you realize that no one understands the pain youíre in. I really thought the rest of my life was only going to be about pain. I suffered in pain for almost ten years, not only physical, but I suspect some emotional as well. If youíre a sufferer, you know what I mean. I tried everything else. I decided to try meditation; thinking of my hand, then my fingers. I did this everyday for weeks, maybe months. I found by concentrating on my hand I could feel the blood flow into my hand, I later found out its called bio feedback. I remember thinking, this is cool, after a while I could concentrate on all my figures, and then one at a time. So I could control my blood circulation, and then I realized by controlling my breathing and concentrating on my hand I could quicken the flow of my blood. Wow, I really felt like I was accomplishing something. I focused on my pain and pushed and pulled through it. The next day I was on my way to work and felt a sensation of blood flowing down the side of my nose under my left eye, almost like a popping sensation. The pain/beast was gone. Iím not a doctor and this is not a recommendation and if youíre litigious, this is for entertainment purposes only. This is my personal story, my name is Michael, and itís been a bit over 20+ yearís pain free.
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BarbaraD
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Re: Still still gone
Reply #1 - Jul 25th, 2014 at 8:28am
 
Still,

Charlie had something like this that worked for some (it's in the archives somewhere). Glad it worked for you.

And I can only laugh at your post and some of the "remedies" you tried. I'm not laughing AT you but with you. Most of us can relate to them. There's a great story about the cayeene pepper on here (back around 1999) by Drummer... And hundreds of other remedies we've tried.

But to date the only things that have really helped a large % of us is O2 on a high voltage and D3 and some (well really a lot) at Clusterbusters.

I'm on the D3 regime and have been pain free since Oct 21st (first time since I went Chronic in 1997), so I'm doing a happy dance right now..

But maybe someone will read your post and it will work for them also.. Again, glad you found something for the pain..  Kiss
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What don't kill ya, Makes ya stronger!
 
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shortstraw
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Re: Still still gone
Reply #2 - Jul 25th, 2014 at 1:04pm
 
I actually did try this technique early in my journey prior to diagnosis and meds. My wife had read about it somewhere (probably here) and as times were desperate, I wasn't discounting anything.
As a cluster sored passed kip 5 and up, for me the technique was useless as the pain was all consuming and any cognitive thought near impossible.
But on the ramp up to that point, being able to sit and focus on something, it kept me calm and helped me prepare for the upcoming onslaught. I was actually able to sit still and concentrate on the details of what was happening (useful for the diary)
It also helped to keep the panic in check as I felt the familiar onset twinges.
To be fair I didn't do it for long as the meds did their job and I went out of cycle.
So for me, it didn't kill any pain but it helped me mentally deal with the pain (up to a point!)
As much as I hate to say it, the meds were a lot more efficient and reliable (for now) but I do applaud your commitment and success.
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stillgone
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Re: Still still gone
Reply #3 - Jul 25th, 2014 at 4:12pm
 
I believe I may have over simplified my remedy, it took time, day and night, focusing, focusing on my hand/fingers and breathing.   I know when I was tangling with the beast at its worst I couldn't concentrate on my fingers, I did have tears pouring down my face without outwardly crying.  I also know my cure / dormant pain wont help some or all for all I know.  All I know is it helped me and if I can help one person, then it was more then worth posting here.  I did post sometime back.
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stillgone
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Re: Still still gone
Reply #4 - Aug 2nd, 2014 at 1:44pm
 
Lastly, once I felt I could control the flow of my blood circulation to my hand and fingers, which did not happen overnight  I then placed my hand palm out over my pain above my eye on my forehead and while controlling my breathing pushed and pulled through the pain.  I understand that all of this may sound quite a little bit off to most of you. Once again I'm just sharing what worked for me. I hope/wish all a pain free future.
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BarbaraD
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Re: Still still gone
Reply #5 - Aug 5th, 2014 at 7:53am
 
Honey, whatever works is good.. Here's hoping it keeps up..  Kiss
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stillgone
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Re: Still still gone
Reply #6 - Sep 1st, 2018 at 8:04am
 
Still pain free,  thank you GOD, I see this community continues to grow.  I'm hoping my story helps everyone or someone.  I beat the beast, and still feel I haven't done enough to help those that still suffer like I did.
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