There is nothing inherent in Cluser that I'm aware of which would explain the reaction.

I'm guessing that you are around 50. If so (or older), it's not uncommon to start experiencing changes in our body that comes with middle-age. Recovery of energy is often an earlyl sign, along with a decreasing tolerance for extended periods of activities which tap our energy reserves.

It's not uncommon to hear this kind of report from people who have recoved from a difficult medical problem and find it usefull to ease the pace of life until your body has a chance to fully recover. And don't estimate the energy drain which is associated with emotionally demanding conditions.

Hey Robert,

I'm 58 next month.

I feel exhausted all the time since I turned chronic about 2.5 years ago. But the tiredness has increased over the life of my Clusters (14 years).

In the early days I would get an episode and as soon as it was gone I was fine. Gradually, over the years, my ability to recover got less and less and I put it down to age and a build up of weariness just fighting the beast for so long.

Here's a suggestion, which I find helps get the energy and appetite back to some level of normality.

Fosfor Tonic  200ml
Phosphorylcolamine 5% W/V

Phosphorylcolamine is an amino acid complex occurring naturally in many body tissues. It is required in the body as a substrate in the synthesis of phosphorus and nitrogen to the body as essential  dietary supplements.
Fosfor contains phosphorylcolamine, provides a supplementary source of this amino acid complex in order for the body to naturally replenish its phosphorus and nitrogen levels.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

This is the brand available in Ireland. If it's not available where you are you could take the description above to your Pharmacist to see if they have something under another brand name.

My wife used it following extensive surgery over the last 2 years and swears by it too.

If you do try it, I'd be very grateful to hear your feedback.

Best of luck.

Peter.

Totally agree with Colin's comments.

I've had similar experiences with preventives, verapamil for CH and propanolol for migraine. It is amazing the difference once you've been off them for a while.

There is also the impact of the stress of a CH. Whilst we can handle each one, there must be an accumulative effect from multiple ones, especially when you are chronic.

I'd also agree that getting a doctor to check things up is also worthwhile. We can't and shouldn't assume that everything is down to our CH.