How nice to read a report of success, including having a sharp doc!
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orofac pain. 2011 fall;25(4):291-7.
topical review: cluster headache and sleep-related breathing disorders.
bender sd.
abstract
this article reviews the existing literature of the common anatomic and physiologic aspects of cluster headache and sleep-related breathing disorders to point out evidence suggesting potential therapies beneficial for both maladies. a search of pubmed, as well as relevant textbooks, was conducted using the terms cluster, headache, sleep, apnea, pain, and chronobiology to find any previously published work that may connect the two disorders. relevant references in the literature were also investigated. as a group, cluster headache patients tend to have a higher incidence of sleep-related breathing disorders as compared to the noncluster headache population.

WHILE COMMONALITIES IN ANATOMY AND PHYSIOLOGY EXIST, ROBUST EVIDENCE LINKING THE TWO DISORDERS IS CURRENTLY LACKING. MANY PEOPLE ARE UNAWARE THAT THEY SUFFER WITH A SLEEP-RELATED BREATHING DISORDER. THE HIGH INCIDENCE OF THESE TWO DISORDERS OCCURRING TOGETHER SHOULD PROMPT THE CLINICIAN WHO TREATS CLUSTER HEADACHE PATIENTS TO BE ACUTELY AWARE THAT A YET UNDIAGNOSED SLEEP DISORDER MAY ALSO BE PRESENT.
pmid:22247924[pubmed]
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Cephalalgia. 2012 Apr;32(6):481-91.
Cluster headache and sleep, is there a connection? A review.
Barloese M, Jennum P, Knudsen S, Jensen R.
SourceDanish Headache Center, Denmark.

Abstract
PURPOSE OF REVIEW: Sleep and the chronobiological disease cluster headache are believed to be interconnected. Despite efforts, the precise nature of the relationship remains obscured. A better understanding of this relation may lead to more effective therapeutic regimes for patients suffering from this debilitating disease. This review aims to evaluate the existing literature on the subject of cluster headache and sleep. LATEST

FINDINGS: Several previous studies describe an association between episodic cluster headache and distinct macrostructural sleep phases. This association was not confirmed in a recent study of seven episodic cluster headache patients, but it was suggested that further studies into the correlation between cluster headache attacks and the microstructure of sleep are relevant. The connection between cluster headache and the hypocretins is currently under investigation.

SUMMARY: There is evidence in favour of an association between episodic cluster headache and REM sleep whereas no such relation to chronic cluster headache has been reported. Particular features in the microstructure of sleep and arousal mechanisms could play a role in the pathogenesis of cluster headache. Reports indicate that cluster headache and obstructive sleep apnoea are associated. Single cases show improvement upon treatment of sleep apnoea, but the causal relationship remains in question.

PMID:22407656[PubMed]

Bob:

What the heck is a "hypocretin"?  Calls to mind an image of a little devil-like figure running around the brain stabbing his scepter into the Trigeminal nerve every night...

Hi Traveller, Im pretty confident there is a direct link to sleep and Ch. there's a good video clip batch put up about a neurologist that treated sleep apnea and head ache disorders. In the video clip she expalains how she has been using the vit D regime ( same as batch has been ) quite independently. she said she is now removing people that were dependant on the c pap machines. She explained that we need to get into a certain state of sleep, where then the neuropathic pathways  naturally repair the bodies ailments. failure to get to this r.e.m state of sleep means that this does not occur and the body starts to go hay wire.
A big trigger for me, is if I miss sleep ! I have to be very careful on this other wise, bang, an onset of a cluster attack shows itself. The timing of cluster attacks seems to indicate that our natural body clock plays a significant part, hence how some sufferers use melatonin as a preventative.
Im a terrible sleeper, very bad snorer, I haven't been tested, but found a mouth guard that wil effectively eliminate my nightly snoring, which helps me big time get a good nights sleep.
I recon there's a strong link between the two....
I'm not saying that sleep disorders are the cause of Cluster headaches at all, but for me, as strong a trigger as alcohol is, unsettled sleep is just as bad.
I used to take the boat out for an evening fish, sometimes I'd decide to stay out all night, getting home for just enough time to wash the boat down, fillet the fish, shower and off to work !  I cant do that anymore, whether I'm in cycle or not, even if I managed to get 2-3 hours sleep on the boat thru the night, by 2-3 that afternoon, I'd either get a massive shadow or a CH hit, and it wouldn't settle until I caught up on sleep..
just my thoughts
colin

Final Report.  Two weeks ago we completed the removal of the Topamax and I am still HA free, using CPAP alone.  I know they are still "in there" as I have some occasional nasal discomfort and tearing during the day, but since starting on CPAP therapy I have been totally headache free for over ten weeks now.  Worth noting that for the 5 years I have had CH my hits have been almost exclusively (99%) nighttime hits, so perhaps the linkage b/w CH and Sleep Apnea was much stronger in my case than in most.  In any event, for me this has been a miracle remedy.

AussieBrian wrote on Aug 24^th, 2015 at 4:52am:



I don't care who ya are....that there is funny!

Thanks for lightening my day Brian......

Thanks Chappy.  I am still pain-free at night with the CPAP but I am not out of cycle, in fact, I went chronic a few years ago.  My attacks were almost exclusively night time (probably 99%) and the CPAP seems to be effective for those.  I still have symptoms during the day (nasal irritation, some modest left side pain from time to time), and I have to be quite careful about sleeping on my right side for most of the night.  Just last week I switched to my left side too early in the night and got a good reminder, even with the CPAP.  For now the CPAP seems to have them under control at night, even though I am clearly not in remission.   Its been over 3 months now, still hoping for the best.  Good luck, I hope you find something that works for you.