Thanks for the link Hoppy,

But I was only able to glean a small bit of info as the audio wasn't working.

Could it be that the top of the spine could be transferring some compression on the hypothalmus in an injury such as mine??

   Richard

36 years ago on a rainy Fall night at age 11, I suffered a severe closed head injury causing concussion. Within weeks I began my first cycle of CH's, that became "normal" to suffer every other year, on odd numbered years, in the Fall, Left side.

Brain specialists, neurosurgeons, neurologists, headache specialists all concluded the concussion created the onset of my CH's. Back then they prescribed Sansert, a med now banned in the USA.

Every other year in the Fall on odd numbered years most of my life, I would turn into the Incredible Hulk or Jekyll and Hyde or Werewolf transition or whatever Hell you refer CH's. It was clockwork, hence the hypothalamus gland. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Some very sophisticated tests revealed a Dopamine imbalance. More info on CH's & Dopamine here - Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or and Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

In 1999 I found this website and began my obsession to learn of my haunting disease to the point I was able to comfortably educate neurologists.

If it wasn't for this website, I would have commit suicide. Not even a 2nd thought about it. But instead, I found a wonderful support group who became "family" and they helped educate me, so that I could further educate the ignorant doctors, who then could better help me during my cycles.

Unfortunately many of those "family members" here in Clusterville do not frequent this site anymore. Ever since OUCH went away, and Clusterbusters became very popular, this site has lost its strength. But make no mistake, if you are new to this site, there is more here to learn than any other resource worldwide, and there is always somebody sincere that is willing to help.

In 2006, I had another severe closed head injury. This time I went into a coma. My cycles have been far and few between since. Instead of every other year on odd years, I have skipped two cycles. The past 10 years i've only had 2 cycles, normally 5. Perhaps there is correlation between head trauma and CH's, perhaps it is coincidence and I am part of the "aging theory."

My conclusion is that head trauma likely brought on my CH's and head trauma likely reduced the frequency of my cycles.

Well, there's my brief story, hope it provided a bit of insight.

-Gregg in Las Vegas