Just starting out here, so bear with me.  I'm 48, female, from outside of Gonzales, Texas and work in Austin and have family history with CH.
My dad was diagnosed with CH at about 18 and I grew up with watching him living in hell with the pain.  Dad went from one specialist neurologist to the next - even research in Houston at Baylor med school with Dr. John Myer.
Later on, I learned my younger brother was diagnosed with CH.  I had heard that men get CH and women get migraines. Boy, was that wrong.  In 2005, I experienced my first CH and ironically was at my parents house for the weekend. Dad realized what it was right off the bat and it took a little while to sink in. Dad told me to seek Dr. Myer - if he was still alive and I did.  Verapamil 2x day and Maxalt at onset.  Seemed to help and cycles shortened. Two years ago, had the worst cycle ever and it took 4 months to see new neurologist.  Bad mistake on my part agreeing to a new med and didn't go back. 
Brother still has his cycles and was given O2.  He shared that with me and boy, it made a huge difference - until last night.
CH started about 3:30-4 pm and stopped til about 6, then kicked off again.  O2 helped, but they kept coming back.  The last time, used O2, felt tingling / numbing in face, arms and kept on going. This was different. My husband got me to ER.  By now, I felt like I was posturing, but ER doc said hyperventilating because of the O2 and not enough CO2.  Fluids and 3 point cocktail of meds and finally got released.  Going back to MD tomorrow and start all over again.

Welcome Red

I am also new to this site and I will tell you that it will also help you. Read and learn as much as you can from the others that have such great advice. You will learn that you are not alone and we understand exactly what you're going through.

I'm sure you will get a lot of ideas from the wise ones here. Take their advice and don't be afraid to ask questions.

Sincerely

Ilndguy

Consider locating a younge headache specialist, avoiding neurologists.
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LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; On-line screen to find a physician.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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WHY A HEADACHE SPECIALIST IS RECOMMENDED


Headache. 2012 Jan;52(1):99-113.
Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.
Rozen TD, Fishman RS.

THERE REMAINS A SIGNIFICANT DIAGNOSTIC DELAY FOR CLUSTER HEADACHE PATIENTS ON AVERAGE 5+ YEARS WITH ONLY 21% RECEIVING A CORRECT DIAGNOSIS AT TIME OF INITIAL PRESENTATION.

Thank you for the additional information.  I read a lot last night after finding the site.  I really appreciate the support and all the information shared.  It helps to find out others understand what you're going through and all the frustrations that go with it.  I'm definitely gonna look into the regimen in the link you sent, Peter.

Red