looking for someone to chat with for support of living with a loved one that has chronic cluster headaches

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Posted by rosemary warner ( on September 20, 1999 at 20:55:12:

To anyone out there,
I am looking for a web site to talk to other people who live with someone they love and have to go through our side of the story of cluster headaches. Sometimes the the physical, but mostly the Dr. Jekel Mr. Hyde personality is extremely hard after the first two months. I have lived with my boyfriend for 4 years now and the only part that seemed to get a little easier is not to panic or cry (which by the way I don't let him see me). Each year it is almost the same, 2-3 months no clusters ( I have my old loving kind,dave back) than 3-4 months of watching him go from small infrequent clusters to full blown agony 7-8 a day with little strength left to fight them (now its like fighting with the devil). He is on imitrex now. He is 46 yrs. old and has had these for 13 years now.

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