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Posted by Rachel ( on March 07, 2000 at 09:26:49:

Thank God I found this group, I really thought I was alone here. Only last year I finally got a definate diagnosis of CH even though I have been getting them on and off for almost 6 years.When they strike I cannot function and I have 3 babies to take care of. My husband is so helpful when he is home during an attack but I know it is hard on him to. I've been doing pretty well up until recently so I made an appointment for today. I want to be referred to the Neurologist, I see no reason why I have to keep seeing the GP who does nothing for me..I get so upset thinking, if you had just one of these things you would see that I am not nuts and it is very real!! I often think when I am having the cluster that this is the one that's going to kill me and when it leaves I am drained but it is heavenly to be out of that pain. Sorry for the long post, I am just so glad you are here.

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