Posted by Jayne (18.104.22.168) on June 21, 2000 at 23:44:50:
In Reply to: My turn to be moody maybe..... posted by Karen on June 21, 2000 at 20:18:18:
I don't quite know what to say, but feel I must say something to you.
It must be so hard for you to go through this.
It is hard enough for me to help myself go through this, but for you to watch your child go through this.It is beyond understanding to me. I get so upset thinking about it.
You as his mother are also suffering the "trauma" of clusterheadaches. You might not be getting hit with the physical pain, but you sure are suffering the emotional pain. You must also take care of yourself and have "your" support. You need to be able to scream at someone and vent "why in the F*&% is this happening to my child. At least give him his child hood god damit"
As Tom said here one day that he wept for steven.
The docs need to do more for your boy and keep his pain away.
Is he on verapamil?
I feel for you both.
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