Questions. Hope it's not too many.

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Posted by Aaron ( on February 11, 2001 at 08:46:30:

Sorry to introduce myself a few days ago and then not be back. It seems I'm either in pain lately, or trying to catch up on all the things I've had to put on hold. This morning the plan was to sleep in....didn't happen. I got lucky though and killed the beast with O2. Anyway, now I'm up. So here are some questions.

I have suffered from CH for nine years. Though, the entire time I have never had more than 2 clusters a day, and that is fairly rare. However, my clusters always last atleast 1 hour, many times 2 hours or longer. Is that normal?

I'm seeing my neuro Dr. on friday. Over the phone he asked me a bunch of questions and says he's concerned that I might be developing some sort of migraines to accompany my CH. Ever heard of this?????

What's the smallest container you can get O2 in? I'd like to keep some with me always, but it's not practicle to lug this damn nursing home tank around. I know....CH isn't practicle.


I always get mine at the same time everyday. Almost to the minute. It's a different time every cycle, but it stays the same within the cycle. Also, this time I seem to almost always feel good on Sat. and every Sun. I almost die. Heard of this before??

Thanks in advance!!!!!!


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