Posted by nancyc (205.188.193.154) on March 25, 2001 at 14:33:59:
the first time you went to the Doctor's for your clusters? Can you remember the feelings you had, not just the physical pain, but the emotional pain? What did you want to really tell your Dr? What should you have told him? How much did your Dr. know about clusters? What should he have known? I am asking this because I am working on the Liason committee getting a packet together for Doctors to help them understand us. I felt that we not only needed to arm them with medical facts but how we, as clusterheads, really feel. Please give me some feedback...Either post or email me. I really want to help make this project a success for all of us and the newcomers. I need your input. Thanks, nancyc