Posted by MaryD (64.167.76.57) on August 22, 2001 at 03:24:33:
I know most of you who were blessed enough to come to this years Atlanta Convention heard the name of Dr. Kudrow. For those of you who didn't get a chance to go, he is a Headache Specialist here in California. I was fortunate enough to have him exam me for my headaches this pass Monday. The good news is that I do not have Clusters, but a form of clusters call CPH or Chronic Paroxysmal hemicrania. The characteristics are the same with the exception of having more attacks per day but with shorter duration. The pain level with CPH is never to the point of incapacitating me. With clusters, Dr. Kudrows believe only if you suffer headaches severe enough to the point of disabling you and not allowing you to work would he then consider you to have Cluster headaches. I chatted with him about OUCH and Clusterheadache.com and got a negative response. I hope each one of you read this. If we want to have a future for OUCH, we must clean up or act here on the board. Many doctors come here and see the bickering and fighting and get the impression were not real. Please for the future of Clusterheadache.com and especially OUCH lets try to focus on supporting one another. That what this MB was made for. If you have to bicker or fight Please e-mail each other or go the chat room. Please lets allow what DJ intented for the web site. A place for support and information. Look at what BobP has begin with the OUCH Foundation. We need to reach the right people, and we can only do that if we hold each other up instead of tearing each other down.