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Topic: Suicide and CH/Migraine Patients (Read 3162 times) |
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LeLimey
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Re: Suicide and CH/Migraine Patients
« Reply #25 on: Aug 22nd, 2005, 6:04am » |
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on Aug 22nd, 2005, 5:36am, Chillrmn1 wrote:| Gotta agree with Nani...........A Kip 10 over powers all my "Mind Over Pain" thing. |
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Ditto.
Before CH I thought I knew how to handle pain. I really was quite sure I had a handle on how to cope with pain.. quite laughable now really because I cannot concentrate CH away. A Kip 10 that you can't feel beggars belief..
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AussieBrian
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Re: Suicide and CH/Migraine Patients
« Reply #26 on: Aug 22nd, 2005, 7:14am » |
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It's also relevant that it always affects us all differently.
If this bloke has his own little remedy that allows him to forget it, even for a moment, then I'm not sceptical.
I'm outright bloody jealous!!
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CHTom
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Re: Suicide and CH/Migraine Patients
« Reply #27 on: Aug 22nd, 2005, 7:30am » |
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I wish that I could control when this happens, but I can't-every once in awhile I get lucky, but it does't last for long, Brian, so nothing to be jealous about. Maybe I should try Dr. Ali Baba's (or whatever his name is) bent ruler around my head, attached to a car battery-I'll bet that would really distract me from my CH pain! PFDANs to all whenever and however you can get them! 
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Sandy_C
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Re: Suicide and CH/Migraine Patients
« Reply #28 on: Aug 22nd, 2005, 7:38am » |
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on Aug 22nd, 2005, 6:04am, LeLimey wrote:
Ditto.
Before CH I thought I knew how to handle pain. I really was quite sure I had a handle on how to cope with pain.. quite laughable now really because I cannot concentrate CH away. A Kip 10 that you can't feel beggars belief.. |
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I have always been able to handle and work through any pain I've ever had, and I've had many surgeries, where I have refused pain killers other than the stupid Tylenol they give you in the hospital, two natural childbirths, and a bunch of other garbage over my life. I thought I had a very, very high pain threshhold. Right!!! Until CH.
I honestly thought about suicide once, but I couldn't find the bullets for my husband's gun. And I was searching while screaming and head banging. But then, it passed and I realized I would never, ever contemplate that again. But not to feel the pain? If true, that would an incredible miracle.
Sandy
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Lizzie2
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Re: Suicide and CH/Migraine Patients
« Reply #29 on: Aug 22nd, 2005, 8:00am » |
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Eh...considered suicide - lots of times - but never from CH alone. I always remind myself that we never know what tomorrow holds - tomorrow could be great and it could suck, but the fact is - things are ALWAYS changing - nothing stays the same for long.
Sure, the CH is a huge daily battle, but what if tomorrow it's not...or there is 1 fewer hit, for example. I'll take that - focusing on the positives that I have in my life instead of the negatives about what I don't have.
So here are two quotes I keep in mind - A LOT!
"Keep breathing. The sun will rise tomorrow, and you never know what the tide may bring."~Castaway
"In the depth of winter, I finally found that within me there lived and invincible summer."~Albert Camus
Keep on keepin on - and never be afraid to ask for help if you need it! Asking for help is about 3/4 of the battle. 
Carrie
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pubgirl
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Re: Suicide and CH/Migraine Patients
« Reply #30 on: Aug 22nd, 2005, 8:05am » |
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Not feel it?
I don't get it at all.
When in Kip 10, I AM the pain, nothing else exists, no time, no feelings beyond the pain, nothing.
The only simile I have is that in childbirth I retreated into a silent black world where the only thingI knew was the pain, and my only focus was me and the baby surviving it, and KIp 10 Ch pain is worse.
W the B
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Lizzie2
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Re: Suicide and CH/Migraine Patients
« Reply #31 on: Aug 22nd, 2005, 8:08am » |
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on Aug 22nd, 2005, 8:05am, pubgirl wrote:The only simile I have is that in childbirth I retreated into a silent black world where the only thingI knew was the pain, and my only focus was me and the baby surviving it, and KIp 10 Ch pain is worse.
W the B
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Especially cuz a baby doesn't pop out of your eyeball at the end of a K10! 
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BobG
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Re: Suicide and CH/Migraine Patients
« Reply #32 on: Aug 22nd, 2005, 8:32am » |
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on Aug 22nd, 2005, 8:08am, Lizzie2 wrote:
Especially cuz a baby doesn't pop out of your eyeball at the end of a K10! three or four times a day. |
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Lizzie2
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Re: Suicide and CH/Migraine Patients
« Reply #33 on: Aug 22nd, 2005, 11:34am » |
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LOL yup Bob - that too.
However, logistically...all pain aside...if someone was giving birth 3-4 times a day, they'd probably be dead by time number 2 or 3 at the latest!
Hard to get through just 1 as it is!
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Jeepgun
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Re: Suicide and CH/Migraine Patients
« Reply #34 on: Aug 22nd, 2005, 12:25pm » |
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Sorry.... At a true Kip-10, the only things that exist in Frank's little universe is the pain, and the command to myself to BREATHE. "Inhale.... (good) Exhale..... (good) Inhale..." and so forth. A Kip-10 reduces me to the level of a wild animal trying to gnaw its own leg off to escape the trap because he sees a man coming with the gun.
(and sometimes, I pray for the gun)
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Jasmyn
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Re: Suicide and CH/Migraine Patients
« Reply #35 on: Aug 22nd, 2005, 1:15pm » |
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Ditto Frank!
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kimmeesue
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Re: Suicide and CH/Migraine Patients
« Reply #36 on: Aug 22nd, 2005, 2:44pm » |
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As one who experiences Kip 10's to the tune of three a week I can't fathom how anyone could be distracted enough to not feel the pain. But I guarantee if you could bottle it you would change the world as we know it.
As for suicide...never occurred to me. Murder yes, suicide, no.
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Cooked Brain
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Re: Suicide and CH/Migraine Patients
« Reply #37 on: Aug 22nd, 2005, 3:46pm » |
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on Aug 21st, 2005, 3:01am, CHTom wrote:| I don't usually feel my CH pain, even if it is at a kip 10 |
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catherinelane
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Re: Suicide and CH/Migraine Patients
« Reply #38 on: Aug 22nd, 2005, 4:30pm » |
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would probably walk to the nearest cliff and throw myself off if it wasnt for my family so i think yes there are persons who commit suicide through ch
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #39 on: Aug 22nd, 2005, 8:57pm » |
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Tom have you tried indomethacin? Be honest.
Sean................................
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AussieBrian
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Re: Suicide and CH/Migraine Patients
« Reply #40 on: Aug 22nd, 2005, 9:17pm » |
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As it happens, I'm aware of a case though the information is second hand. A lady policeman found me wandering the streets naked with a full-blown kip10 and brought me home.
She was actually aware of CH as her father had it until he could take no more. I felt sorrier for her than I felt for myself.
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Salvelinus
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Re: Suicide and CH/Migraine Patients
« Reply #41 on: Aug 22nd, 2005, 9:41pm » |
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You're a lucky man, Brian. And, yes, how unfortunate for her. I'd bet helping you also helped her.
Namaste,
--Scott
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| « Last Edit: Aug 22nd, 2005, 9:43pm by Salvelinus » |
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Namaste,
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brainfreeze
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Re: Suicide and CH/Migraine Patients
« Reply #42 on: Aug 23rd, 2005, 4:53pm » |
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Imagine for one moment, a person afflicted with these that got no support, had no family, no medical relief, was chronic, kip 10's, 7-8 times a day for months and months, then for two years (raging) from the get-go. He committed suicide.
I only know of one and hope we never encounter another. 
Statistics are just numbers. It just takes knowing one person.
PF to everyone.... rest or rock easy....
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Kiwiinoz58
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Re: Suicide and CH/Migraine Patients
« Reply #43 on: Aug 23rd, 2005, 5:43pm » |
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A small snippet of information. Indomethacin ONLY works for Paroxysmal Hemicrania headaches, which is the prime way of diagnosing the difference between the 2 types if it is in doubt. A lot of the symptoms are the same.
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Lizzie2
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Re: Suicide and CH/Migraine Patients
« Reply #44 on: Aug 23rd, 2005, 6:22pm » |
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Also works for Hemicrania Continua, Idiopathic Stabbing Headaches (Ice Pick Headaches) and a few other types....
Catch is that not everyone with these headache types is going to respond to the indomethacin either.
It's a bit of a game.....but a useful drug to try early on, if nothing else!
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #45 on: Aug 23rd, 2005, 6:27pm » |
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on Aug 23rd, 2005, 5:43pm, Kiwiinoz58 wrote:| A small snippet of information. Indomethacin ONLY works for Paroxysmal Hemicrania headaches, which is the prime way of diagnosing the difference between the 2 types if it is in doubt. A lot of the symptoms are the same. |
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Partially correct.....
Indomethacin works for:
*Paroxysmal Hemicrania
*Idiopathic Stabbing Headache aka icepick (I have these too)
*Chronic Daily Bilateral Headache
*Hemicrania continua
*Hypnic Headache
*Thunderclap
*Primary cough HA
Just not clusters
Check here:
http://216.25.100.131/ihscommon/guidelines/pdfs/full_form_watermarked.pd f
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Salvelinus
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Re: Suicide and CH/Migraine Patients
« Reply #46 on: Aug 23rd, 2005, 8:01pm » |
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You rock, E. Thanks for the link. I'll add it to my reading list.
BTW, why do you and Kiwiinoz say Indocin doesn't work for clusters? I didn't read the link thoroughly yet, but I did read through the diagnostic criteria for clusters and a few more. I didn't see anything referring to clusters not responding to Indocin. I did see that parox. hemicrainia responds well (it says absolutely) to it, but nothing about response to the med ruling out CH.
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Namaste,
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"When no one else knows how I feel,
You run to me, with outstretched hands,
and you hold me in your arms.
Again."
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #47 on: Aug 23rd, 2005, 8:31pm » |
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on Aug 23rd, 2005, 5:43pm, Kiwiinoz58 wrote:| A small snippet of information. Indomethacin ONLY works for Paroxysmal Hemicrania headaches, which is the prime way of diagnosing the difference between the 2 types if it is in doubt. A lot of the symptoms are the same. |
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Alot of people go misdiagnosed by MANY proffesionals in the medical field. Its not uncommon for a patient to believe he has something for years, if a proffesional he trust tells him so. For someone to tell me that they cannot feel cluster pain at a kip 10, tells me something other than clusterheadaches is happening because painless clusterheadaches do not excist. If they did we wouldn't be here. Its something Tom should look into and consider trying if he talks to his doc.
Sean.................................................
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BarbaraD
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Re: Suicide and CH/Migraine Patients
« Reply #49 on: Aug 24th, 2005, 5:21am » |
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on Aug 20th, 2005, 3:26am, BobG wrote:I have been reading this message board for years and I have never heard of anyone offing themselve because of clusterheadaches.
But, I'm sure if may have crossed a few minds. |
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In our little town, I've known TWO people who did because of Clusters. One a teenager and the other a 51 year old doctor. The teen because everyone thought she was just putting on or crazy -- the doc because he just couldn't take the pain any more (he was chronic).
I think over the years we've had a couple from this board. I know we've had a few come really close.
We've had some threads on suicide.
Hugs BD
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