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Topic: Suicide and CH/Migraine Patients (Read 3161 times) |
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Jonny
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Re: Suicide and CH/Migraine Patients
« Reply #75 on: Aug 25th, 2005, 8:04pm » |
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on Aug 25th, 2005, 8:00pm, nani wrote:
Hellooo...
Go read the original kudzu thread. The reason we know it's a CH is because you can "see" it happening on your face. I don't know about you, but, I do not normally have a swollen, droopy, teary eye and a runny, snotty nose when I'm not having a CH. |
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Allergies....aint CH!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #76 on: Aug 25th, 2005, 8:05pm » |
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on Aug 25th, 2005, 7:50pm, Jonny wrote:OK, Im going to say it and I want everyone to fucking read it!!!
IF THERES NO PAIN, ITS NOT A FUCKING CLUSTERHEADACHE!
You have a fucking Meegraine Damn it!!!! |
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Sorry dude........You're wrong.
I'll find the link! .....nevermind Bob already posted it.
Anyway................these suck!
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I can't believe that I have to bang my
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But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Kevin_M
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Re: Suicide and CH/Migraine Patients
« Reply #77 on: Aug 25th, 2005, 8:06pm » |
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I'm unable to think or comprehend at all. I have no idea what this guy is talking about.
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Jonny
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Re: Suicide and CH/Migraine Patients
« Reply #78 on: Aug 25th, 2005, 8:11pm » |
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on Aug 25th, 2005, 8:05pm, E-Double wrote:| Anyway................these suck! |
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What sucks bro?
CH without pain?
Is there such a thing as CH sucking without pain?
You tell me!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #79 on: Aug 25th, 2005, 8:21pm » |
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If you get phantom anal penetration would that be considered a pain in the ass or just anal penetration without penetration of the anis???? Just curious.
NO pain no cluster headache  Painless clusterheads nap when getting hit 
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| « Last Edit: Aug 25th, 2005, 8:26pm by Sean_C » |
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #80 on: Aug 25th, 2005, 8:25pm » |
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on Aug 25th, 2005, 8:11pm, Jonny wrote:
What sucks bro?
CH without pain?
Is there such a thing as CH sucking without pain?
You tell me!!
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CH in general my man!!!
In you 30 yrs dealing Have ya ever gotten the eye twitch, feel it closing, stuffy nose feeling ( sounds like a nyquel commercial  ) and think your gonna get whacked but nothing happens? The dread, the angst building because ya know that regardless of dealing with it everyday you know that it just bites and each time is like brand new........but then nothing!
That is completely different then what I think the fella was saying about a K10....That's crap. I understand having pain build and then it completely abort from an adrenyline rush, but not the "suicide call" of a 10.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Lizzie2
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Re: Suicide and CH/Migraine Patients
« Reply #81 on: Aug 25th, 2005, 8:25pm » |
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For one, this is the reference you're all sort of looking for....
Quote:1: Cephalalgia. 2004 Nov;24(11):1005-6. Related Articles, Links
Periodic autonomic dysfunction without pain in a patient with cluster headache.
Ashkenazi A, Silberstein SD.
Publication Types:
Case Reports
Letter
PMID: 15482367 [PubMed - indexed for MEDLINE]
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That being posted, my shadows have some funky presentations, but the biggest key for me is that they are not more painful than my chronic daily headache that never goes away. So - other than a watery eye, stuffy nose, waking up at odd hours of the night, but no actual severe cluster pain, I don't mind the shadows.... I'd boot the chronic daily headache to hell and back before I really took great notice of the shadows -but that's just my special circumstance...!
To each his own, though!
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broomhilda
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Re: Suicide and CH/Migraine Patients
« Reply #82 on: Aug 25th, 2005, 8:28pm » |
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So are we calling shadows phantoms now? You say potato, I say poetatoe
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Suck it up Princess...
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Jonny
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Re: Suicide and CH/Migraine Patients
« Reply #83 on: Aug 25th, 2005, 8:31pm » |
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on Aug 25th, 2005, 8:25pm, E-Double wrote:
CH in general my man!!!
In you 30 yrs dealing Have ya ever gotten the eye twitch, feel it closing, stuffy nose feeling ( sounds like a nyquel commercial ) and think your gonna get whacked but nothing happens? The dread, the angst building because ya know that regardless of dealing with it everyday you know that it just bites and each time is like brand new........but then nothing!
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Sure.....Its called "A shadow"
Duh, Dude
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Redd
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Re: Suicide and CH/Migraine Patients
« Reply #84 on: Aug 25th, 2005, 8:44pm » |
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And here this family goes bickering again...things are back to normal....
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #85 on: Aug 25th, 2005, 8:50pm » |
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on Aug 25th, 2005, 8:31pm, Jonny wrote:
Sure.....Its called "A shadow"
Duh, Dude
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I don't think I'm conveying it properly then.
I guess since I came here and started reading, learning going by the "Kip scale" I always associated shadows, even mild with pressure building. Some level of discomfort then as they (shadows) build, so does the pressure, going from discomfort to pain.
For example, today I got WHACKED 4X's. In between I had persistent shadows, pressure and discomfort. I was fully functional yet there was pressure. I always called a shadow a low level CH. I also had one instance where there was no pressure, no pain, but my eye was closing and I was stuffy. It was an annoyance but it did not have any pressure nor pain. That is in my mind different then a shadow. Could be wrong, yet even with the attempt of operationalizing our pain through the kip scale which we may agree on, there has to be discrepency amongst just because we are all individuals.
Isn't it possible that for one perosn who in general has a high tolerance for pain will have a K6 which to another would be considered a K10???
Food for thought.
I know we are in agreement that these suck.
and BTW Who's High pitch?
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #86 on: Aug 25th, 2005, 8:58pm » |
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There all shadows Eric, its just a lower level CH at best. Phantom clusters is a word that shouldn't be utilized in my opinion. They don't excist.
Sean.....................
And yes I feel your pain
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #87 on: Aug 25th, 2005, 9:00pm » |
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no one answered the question........
Who's High Pitch?
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #88 on: Aug 25th, 2005, 9:04pm » |
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on Aug 25th, 2005, 9:00pm, E-Double wrote:no one answered the question........
Who's High Pitch? |
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Where did you see this High Pitch?
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #89 on: Aug 25th, 2005, 9:07pm » |
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on Aug 25th, 2005, 9:04pm, Sean_C wrote:
Where did you see this High Pitch? |
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You better ask Jonny then
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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nani
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Re: Suicide and CH/Migraine Patients
« Reply #90 on: Aug 25th, 2005, 9:10pm » |
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on Aug 25th, 2005, 8:58pm, Sean_C wrote:There all shadows Eric, its just a lower level CH at best. Phantom clusters is a word that shouldn't be utilized in my opinion. They don't excist.
Sean.....................
And yes I feel your pain |
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No, they're not ALL shadows.
Yes, we should (and have been) using the term phantom clusters.
Yes, they do exist. Just because you don't have them, does not mean they don't exist. You don't have ovaries, but I assure you, they exist.
Oh, and when I have allergies, they usually strike BOTH eyes and BOTH nostrils.
edited for spelling. 
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| « Last Edit: Aug 25th, 2005, 11:10pm by nani » |
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #91 on: Aug 25th, 2005, 9:20pm » |
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on Aug 25th, 2005, 9:10pm, nani wrote:
No, they're not ALL shadows.
Yes, we should (and have been) using the term phantom clusters.
Yes, they do exsist. Just because you don't have them, does not mean they don't exsist. You don't have ovaries, but I assure you, they exsist.
Oh, and when I have allergies, they usually strike BOTH eyes and BOTH nostrils.
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Nan they don't excist. I do get them they are shadows, its also possible that your pain tolerance is way above normal and you didn't feel pain, but it is a cluster headache. Its not a phantom cluster headache.
http://www.answers.com/topic/phantom
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #92 on: Aug 25th, 2005, 9:29pm » |
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on Aug 25th, 2005, 9:20pm, Sean_C wrote:
Nan they don't excist. I do get them they are shadows, its also possible that your pain tolerance is way above normal and you didn't feel pain, but it is a cluster headache. Its not a phantom cluster headache.
http://www.answers.com/topic/phantom
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I'm with ya brother but in this case your link contradicts.....Maybe it's used as an adjective
Resembling, characteristic of, or being a phantom; illusive.
So what the researchers suggest is that you have all the autonomic features of but without pain.
Not everyone gets autonomic features with every attack, nor with every shadow.
But they show through petscan that the same hypothalmic activity that occurs during cluster does occur with the "phantom"It just does not have the pain.
Regardless, who's High Pitch?
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #93 on: Aug 25th, 2005, 9:45pm » |
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I'm a non phantom believer what can I tell ya. You'll never convince me otherwise either I have shadows LMMFAO. You guys have that invisible pain I don't LOL
Sean..................................
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E-Double
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Re: Suicide and CH/Migraine Patients
« Reply #94 on: Aug 25th, 2005, 9:47pm » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sean_C
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Re: Suicide and CH/Migraine Patients
« Reply #95 on: Aug 25th, 2005, 9:51pm » |
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Night guys Beds calling me
See ya tomorrow
Sean........................
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kcopelin
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Re: Suicide and CH/Migraine Patients
« Reply #96 on: Aug 25th, 2005, 10:14pm » |
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what's a troll?????
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BobG
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Re: Suicide and CH/Migraine Patients
« Reply #97 on: Aug 26th, 2005, 5:53am » |
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on Aug 25th, 2005, 9:45pm, Sean_C wrote:I'm a non phantom believer what can I tell ya. You'll never convince me otherwise either I have shadows LMMFAO. You guys have that invisible pain I don't LOL
Sean.................................. |
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You just don't get it do you?
What you are saying is that because you have never experienced a phantom cluster headache then they do not exist, right?
Even though the others here have told of their experience of having the symptoms but no pain and even though it have been documented scientifically there is no such thing as a phantom cluster headache because you have never had one.
Then you bring out your dictionary that gives a definition of the word phantom that has absolutely nothing to do with headaches as proof there are no phantom cluster headaches.
And please stop the crap about phantom being another word for shadows. 2 entirely different things. Shadows are low level attacks with minor pain. Phantoms have the symptoms but no pain.
1. Cluster attacks with symptoms and pain and measurable on the Kip scale.
2. Shadows are low level attacks with symptoms and pain and measurable on the Kip scale.
3. Phantoms are attacks with the symptoms but no pain.
Do you get it now?
Maybe you should go to a cancer victims board and tell the sufferers there that cancer does not exist because you have never had it.
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seasonalboomer
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Re: Suicide and CH/Migraine Patients
« Reply #98 on: Aug 26th, 2005, 7:29am » |
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I miss all the good arguments by leaving at 5 everyday...
I just think calling them "phantom cluster headaches" is a bit dramatic.
How about:
ROACH (Reminds me of a Cluster Headache)
SWitCH's (Symptoms Without Cluster Headache)
DELN's (Droopy Eye Leading Nowhere)
ADFTD's (All Dressed Up For the Dance)
SUFTD's (Stood up for the Dance)
I just think Cluster Headaches don't need much more dramatization than they already get (and rightfully). If we start calling these things "phantoms", then we may as well really layout a flourish and call them "rotton fucking reminders of the swine-beast fucker that inhabits my hypothalamus". Let's really dress it up.
By the way, I've had'em. But I don't want to give them the respect of a cluster headache.
Scott
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BobG
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Re: Suicide and CH/Migraine Patients
« Reply #99 on: Aug 26th, 2005, 8:00am » |
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on Aug 26th, 2005, 7:29am, seasonalboomer wrote:
I just think calling them "phantom cluster headaches" is a bit dramatic.
Scott
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You're right Scott. And calling cluster attacks headaches is very under-dramatic. It should have a better or stronger descriptive name.
BTW, we did not start calling it phantom. That name came from the scientific/medical community.
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