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Topic: three days now... (Read 1280 times) |
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carriefu
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three days now...
« on: Jan 25th, 2006, 5:29pm » |
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this cycle from hell is ongong....first its horrible than it lets up just enough to make me afraid its still there....than it hits again...
makes me wonder when the fog will lift and ill feel human again
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clarence
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Re: three days now...
« Reply #1 on: Jan 25th, 2006, 5:31pm » |
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Hang in there...
Casey
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NY Yankees Suck!!!
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zwibbs/Scott
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Re: three days now...
« Reply #2 on: Jan 25th, 2006, 5:44pm » |
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Stay Strong--You have alot of people here to rely on.
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There's always light at the end of the Tunnel.
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zwibbs/Scott
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Re: three days now...
« Reply #3 on: Jan 25th, 2006, 5:45pm » |
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NY Yankees Suck!!!
translucentbeauty ------------------------------------------------------------------------ -----------------------------------------------------VERY GOOD CLARENCE !!!! -LET'S GO METS !!!!!!!!!!!!!!
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carriefu
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Re: three days now...
« Reply #4 on: Jan 25th, 2006, 6:12pm » |
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lol!!!!i love the yankees!!!
even damon now that hes on !!!
so much to do ..and no energy
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Guiseppi
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Re: three days now...
« Reply #5 on: Jan 25th, 2006, 6:39pm » |
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Hug and a prayer....even if you are a Yankee fan. As a padre fan I haven't gotten over the sting of the four game sweep, and that was 11 years ago!
Guiseppi
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carriefu
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Re: three days now...
« Reply #6 on: Jan 25th, 2006, 6:44pm » |
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thanks gui....your ok for a padre fan...why the padres??lol...
im in a huge funk and cant wait to get out of this..
the worse part is knowing that i havent quite peaked at worst part yet
im so mad that this came on....so early this year, and right at the worst time
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Guiseppi
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Re: three days now...
« Reply #7 on: Jan 25th, 2006, 7:02pm » |
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I'm a padres fan cuz I'm one of those disgusting, well tanned, warm, San Diego natives!!! Hang in there, they do end, sometimes it seems like it takes forever but they do end.
Guiseppi
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carriefu
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Re: three days now...
« Reply #8 on: Jan 25th, 2006, 7:58pm » |
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i know they end.....but i feel like lashing out at everyone i know...
my poor husband everytime he asks how im feeling i give him hell...afterall if hed look at my left eye hed know
its amazing to me that with all of our knowledge as humans we still have to suffer like this
i wonder if neuros and drs really know how bad this is
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zwibbs/Scott
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Re: three days now...
« Reply #9 on: Jan 26th, 2006, 1:08am » |
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i wonder if neuros and drs really know how bad this is
IP L
Believe me they do---The thing about it is they have to deal with so many problems that " Cluster" is just another thing on the list....My Neuro feels that CH can be attacked with medication....I waited so many years to actually go to a Neurologist that I now kick myself because I would just ride the pain for the two--to--three month period of the cycle.
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carriefu
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Re: three days now...
« Reply #10 on: Jan 26th, 2006, 12:04pm » |
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im trying to ride it out as we speak, ive just had so many bad dr experiences
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zwibbs/Scott
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Re: three days now...
« Reply #11 on: Jan 26th, 2006, 4:57pm » |
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Maybe perhaps if you rooted for the Mets..............Only kidding---I wish nothing but Pain-Free nights and days for you !!!!!!!!!!!!!!!!!!
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carriefu
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Re: three days now...
« Reply #12 on: Jan 26th, 2006, 4:59pm » |
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SHALL WE COMPARE "RINGS"...how mant do the mets have again???lol...pf days to you
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zwibbs/Scott
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Re: three days now...
« Reply #13 on: Jan 26th, 2006, 5:15pm » |
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Oh there we go----Thr Ring Thing------maybe it is because the Yankees have been in existence for 500 years !!!!!!!!!!!!!!!---I think you'll be pain free tonight !!!!!!!!
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carriefu
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Re: three days now...
« Reply #14 on: Jan 26th, 2006, 5:18pm » |
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we yankee fans love it when fans of other teams start saying thins about rings....they always have an excuse...lmao...pf days ahead before opening day!!! 
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zwibbs/Scott
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Re: three days now...
« Reply #15 on: Jan 26th, 2006, 5:28pm » |
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...pf days ahead before opening day!!!
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------------------------------------------------------------------------ ------------------------------------------------------------------------ -------NO---PAIN FREE BEFORE PITCHERS AND CATCHERS REPORT TO SPRING TRAINING!!!
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carriefu
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Re: three days now...
« Reply #16 on: Jan 26th, 2006, 5:33pm » |
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hell ya!!!pf days before spring season...lol!!!!!
my boys are in little league..praying these end before
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Mikey
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Re: three days now...
« Reply #17 on: Jan 28th, 2006, 2:30pm » |
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I think all of us have had the BAD DR. thing, that's for sure, but if you find the right Dr. you will see that he does understand, and will do almost anything you ask in order to help you, because the fact of the matter is, is that most of the Docs just plain don't know what to do, and hope that you can help them help you. Hang in there Carrie, I'm chonic, and i have to tell my Doc what to do for me, and he does it!!! I'm so lucky to have such a Doc!! I also have several Docs that help me with this, UNC-Chaple Hill headache center With Dr. Alan J Finkle is a very good Doctor there, after all he is the Nuerology dept head, and Headache center head. I also have a local Nuerologist that Dr. Finkle says is one of the best. Then there's my PCP Doc that follows what they say, and does anything I want done at anytime. If you live anywhere close to the Medical traingle park area here in the Great Medical State of NC, then i would try my best to get in with one of the Nueros there, even if it's once a year, it may be worth it to you! It has been for me. If I'm not mistaken, I had told Chuck about it too, and he got in (It can be very hard to get in to see them, so you really need a Doc to almost beg for you) so he might be able to tell you of his expierience there as well.
I hope that your cycle ends very soon Carrie!!! Nobody needs to suffer the way that we do, that's for sure!!
Mikey......
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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sandie99
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Re: three days now...
« Reply #18 on: Jan 28th, 2006, 2:34pm » |
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Carrie
I wish you stregth to deal with the beast this time. I hope that the cycle is short and that you'll be PF very soon.
Best wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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zwibbs/Scott
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Re: three days now...
« Reply #19 on: Jan 30th, 2006, 4:22pm » |
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hEY CARRIEFU--ARE YOU DOING ANY BETTER? I HOPE THAT YOU ARE-----BY THE WAY ARE YOU COPYING SHAQ-FU ?!?!?!?!?!
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carriefu
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Re: three days now...
« Reply #20 on: Feb 3rd, 2006, 10:32pm » |
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im still in the middle of this stupid head crap, wasnt on for a couple days, did the er twice and the new neuro..hopefully im in the middle of it,who knows??the middle always gets me down...but, it could be worse..
as long as im p/f for the SEASON it will be good...(cant wait to sport the new DAMON shirt....
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FramCire
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Re: three days now...
« Reply #21 on: Feb 3rd, 2006, 10:38pm » |
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Despite my hatred of all things Yankee (except people), I'll say a few prayers for you. Not just for wearing a Damon jersey but for your cycle. I have been in cycle since before Thanksgiving and thanks to 9 mg of Melatonin and 480 mg of Verapomil, I feel human again and I am only experiencing shadows and low kips.
I hit rock bottom a few weeks ago and honestly felt suicidal. If I didn't have kids and an awesome wife (plus this place), I don't know what I would have done. I think we all can relate and here's to PF months/years VERY SOON for you.
Eric (Red Sox fan)
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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carriefu
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Re: three days now...
« Reply #22 on: Feb 3rd, 2006, 10:42pm » |
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thank you eric...g-d bless you and those poor sox...how many rings do they have again???bless their hearts!!!im working toward h/a free...and im lucky for the support of my best friend (my husband) and all of our kids...
p.s......damon has always been a cutie, but this new jersey,with the haircut, oh my!!!
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zwibbs/Scott
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Re: three days now...
« Reply #23 on: Feb 5th, 2006, 3:27am » |
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I wouldn't go to any Yankee Games because it just might start the cycle up again---GOD FORBID !!!! Believe it or not.....My very first Cluster Headache happened at Yankee Stadium during a 4:00 P.M. game, and it scared the hell out of me, as I didn't know what in the world was going on !!! 28 years later---I now know.
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burnt-toast
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Re: three days now...
« Reply #24 on: Feb 5th, 2006, 8:12am » |
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Being familiar with Hell - find something, anything to keep your spirits up and feet moving. Never stop fighting back because even Hell runs out of fuel every now and then.
The fight sometimes is the only thing the keeps us feeling human.
Best Wishes
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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