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   Author  Topic: no longer chronic  (Read 21264 times)
1MajorPain
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Re: no longer chronic
« Reply #100 on: Oct 7th, 2004, 1:35pm »
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Now it's starting to sound like your bragging Mia....lol.
You know I'm kidding, I couldn't be any happier for the both of you......keep the good news coming!
 
Major
also still PF!
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E-Double
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Re: no longer chronic
« Reply #101 on: Oct 7th, 2004, 9:17pm »
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Enjoy!
Fantastic to hear about your adventures in Pain Free Land. It's a great place to be and I'll visit again.
 
Keep posting the awesome news Smiley Smiley Smiley
 
E.
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I can't believe that I have to bang my
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But the blows they have just a little more
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Gonna take a breath and try again.
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Re: no longer chronic
« Reply #102 on: Oct 7th, 2004, 9:35pm »
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WOOOOOOHOOOOOOO!!!!!!!!!

 
Wow, this thread is at 5 pages. Let’s hope it continues on and on.
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holistic_love
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Re: no longer chronic
« Reply #103 on: Oct 7th, 2004, 9:57pm »
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if you want to stopsuffering from cluster headaches go to this website erinelster.com she will cure you
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thomas
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Re: no longer chronic
« Reply #104 on: Oct 7th, 2004, 11:35pm »
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on Oct 7th, 2004, 9:57pm, holistic_love wrote:
if you want to stopsuffering from cluster headaches go to this website erinelster.com she will cure you

No body cracking my neck is gonna fix what's wrong with my brain.  Now, if you have one (a brain) you will cease and desist.
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vig
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Re: no longer chronic
« Reply #105 on: Oct 7th, 2004, 11:45pm »
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she loves Jermy...
 
ilovejermy@hotmail.com
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thomas
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Re: no longer chronic
« Reply #106 on: Oct 7th, 2004, 11:49pm »
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on Oct 7th, 2004, 11:45pm, vig wrote:
she loves Jermy...
 
ilovejermy@hotmail.com

Yeah, he's probably "metero"   Wink  I think she goes for the door-mat, puppy-eyed, pushover types.
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Ueli
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Re: no longer chronic
« Reply #107 on: Oct 8th, 2004, 12:09am »
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This thread is about the success story of Miapet and D.
How successful their treatment is for others too, you can read in another thread on this page.
We all here know the people and their cluster headache stories, and so we can believe their testimonial.
 
On the other hand you tell us nothing about yourself, not even if you're male or female. Instead you plug an extremely dubious quack procedure, that has to show up one little case of a "cure" for CH. BTW, are you "Jeremy" from the elster web site, the one who consulted over 50 neurologist in 13 year (that is one every three month)?  
 
 
Here's a challenge for you:
Modern Medicine can show for the past 100 years many really great advances in health care, from eradication some diseases like pox and polio to advances in surgery, today surgery on the open heart has a better success rate than appendectomy a hundred years ago.
 
Can you tell us about similar success stories by  holistic "medicine", something bringing consistently improvement, not just some rare chance result? If not, STFU (shut the fuck up) and stop messing up our message boards with your shameless quack plugs.
 

 
PS, from Merriam-Webster:
The holistic medicine attempts to treat both the mind and the body.
Get ready to run as fast as you can before you tell a clusterhead that "it's all in your mind".
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miapet
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Re: no longer chronic
« Reply #108 on: Oct 9th, 2004, 9:49am »
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Thank you everyone, for your continued support *smiles*
 
John, we will gladly share our 'poster boy' status with any and all CH sufferers *smiles* Thanks to all of you, for sharing your knowledge, we are able to post about our p/f lives.  
Flounder .. . .when you have a minute . . .maybe we can talk? hehe, and YES, we hope this thread just continues to grow and grow and grow *g*
Major . . we are sooooooooooooo glad you are still p/f . . .and hope it lasts forever, for all of us . . .
Ueli, thanks for defending our thread, and pointing out Flash's thread to the 'quacker' *g*
We cherish our buster family *smiles*
We wish all busters great success in their treatments, and wish to share our status with all  . . .
All CH sufferers, we encourage you to give this method a try . . . it worked for us *G* . . .and it's long-term side-effect is p/f status *g*
*positive light and energy*
miapet
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tex_leger
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Re: no longer chronic
« Reply #109 on: Oct 12th, 2004, 3:21pm »
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Where was all this info 20 years ago. I knew there had to be something out there, all I had to do was talk to the right person. For me the magic bullet is prednisone but I worry about long term use. I am getting less time between courses. I'm 62 and will try anything. I'm leaving New Brunswick Canada for my winter trip to Arizona and will try to find people that have some knowledge about mushrooms. I haven't a clue what to look for but as soon as I find out you can bet I'll try them. All this info is great and thanks to all of you, I'll beat this yet.
Tex Wink Wink Wink
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Margi
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Re: no longer chronic
« Reply #110 on: Oct 12th, 2004, 3:27pm »
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Tex, if you're on pred, you definitely shouldn't try the shrooms.  It's better to be completely med-free if at all possible before you dose.
 
You're on "long-term" prednisone?  Or do you mean that you do a short course of pred with each cluster cycle.  There are other preventative meds out there - pred can be pretty brutal on the system.
 
Don't forget to check us out over at the Canadian cluster site, as well:  http://www.clusterheadaches.ca.  I think you've got some clusterhead neighbours there in the Maritimes. Wink
 
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tex_leger
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Re: no longer chronic
« Reply #111 on: Oct 12th, 2004, 3:36pm »
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Margi I'll check out the site. At first I would go months without headaches then it went to weeks now it's down to days. I would only try after I finished the pred. Thanks for the info
Tex Wink Wink Wink
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miapet
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Re: no longer chronic
« Reply #112 on: Oct 12th, 2004, 7:23pm »
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Tex,  we totally understand the 20 year remark!!  As Margi said, you need to be med free.  5 days minimum is the standard . . .D was med free even longer than that.  o2 as an abortive was a life saver.  
If you're going to try to 'look' (and I'm guessing pick), you need to know what you're looking for . . and better yet, someone who knows so they can verify that's what you found!  
Again, Margi provided you with great info, and the clusterbuster site will answer tons of your questions.
We wish you well.
*positive light and energy*
miapet
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tex_leger
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Re: no longer chronic
« Reply #113 on: Oct 13th, 2004, 10:37am »
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thanks miapet, as I said I'll be heading south this winter  
and won't be able to try this till I get back to canada. But I should be able to get a lot of info while I'm south. When I try this I'll want to be on familiar ground. This is great news for all lets hope this gets out to all sufferers.
again thanks to all.
Tex Wink Wink Wink
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miapet
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Re: no longer chronic
« Reply #114 on: Oct 13th, 2004, 9:35pm »
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Jeff . . .thank you for such a great post!!  We love that you're having such success too!!!  AND, you're so right to thank all the busters . . .Flash, P Shark Mark, P Floyd, and all the rest are responsible for giving us our life back . . .if any buster needs anything, hell or high water, we'll do our best to make sure they get it . . .
I'm quite tenacious . . so this thread will continue!
BTW . . this makes 22 weeks
!!  In a couple of weeks, we'll be doing our maintenance dose . . .I'll keep you all posted.
*positive light and energy*
miapet
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LeeS
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Re: no longer chronic
« Reply #115 on: Oct 14th, 2004, 7:17am »
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*YAY* Jeff, mia and D!
 
All the best with the maintenance dose.
 
-Lee
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Giovanni
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Re: no longer chronic
« Reply #116 on: Oct 14th, 2004, 10:18am »
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Each week my wife asks, "how's *D*"?  My answer is always the same............he's doing great.  It always puts a smile on both of our faces when I say this to her.
 
Incidently, I'm on the way to recovery after two doses to break this cycle that I'm in now.  Down to a few minor shadows. I feel like a human again.
 
John
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Re: no longer chronic
« Reply #117 on: Oct 14th, 2004, 12:40pm »
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you guys rule!!!
 
Glad to hear you all have such great success. Let it continue.
 
Eric
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Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
miapet
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Re: no longer chronic
« Reply #118 on: Oct 16th, 2004, 6:24pm »
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Thanks!  and *YAY* for Lee and Giovanni too!!!!!  We're so glad for both of you!!!
 
We did a big ole test last night . . .D hasn't drank in 20 years . . . and last night, we had a beer together!!! (This was a first!!!)  *happy dances* life just keeps bringing us 'firsts' *g*
*positive light and energy*
miapet
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Flounder
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Re: no longer chronic
« Reply #119 on: Oct 16th, 2004, 11:37pm »
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I don't remember authorizing any alcohol consumption in D's treatment plan Wink  beer
 
That's great that you guys could share a brew.
I'm still planning on coming out with my soon to be famous Clusterbusters Shroom Ale. I know I'll make a fortune if I can just get it past the TABC approval.
I'll be taking orders soon. Grin
 
Warning, Clusterbusters Shroom Ale may cause and abort a Cluster Headache at the same time. This could be very confusing to a clusterhead. The manufacturer recomends that this product should be taken with a grain of salt
« Last Edit: Oct 16th, 2004, 11:55pm by Flounder » IP Logged
miapet
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Re: no longer chronic
« Reply #120 on: Oct 21st, 2004, 12:15am »
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hahahahhhahahaha Flounder!!  Can we put our order in now? hehehe . . whole new concept for maintenance dosing *L*
 
We are happy to announce week 23 of being p/f!!  
 
Wishing you all (busters and non-busters) a good nights rest . . .and an eternity of p/f days and nights.
 
(*YAY* to all our buster brothers and sisters who are enjoying more and more p/f time!!!)
 
*positive light and energy*
miapet
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LeeS
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Re: no longer chronic
« Reply #121 on: Oct 21st, 2004, 4:05am »
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Quote:
my soon to be famous Clusterbusters Shroom Ale
I hope it tastes better than Pinky's tea Grin
 
Congratualtions D & mia Smiley
 
-Lee
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miapet
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Re: no longer chronic
« Reply #122 on: Oct 23rd, 2004, 11:44am »
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hehe, *whispers*  taste-shmaste . . .tea time is almost here . .don't let D hear you say it tastes bad *L*
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #123 on: Oct 23rd, 2004, 4:01pm »
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Just wanted to say WOW! 5 pages going on 6.
 
This is Cool.......keep it going.
 
 Grin
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Re: no longer chronic
« Reply #124 on: Oct 26th, 2004, 11:32pm »
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I am very proud of you !  
 
D
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