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   Author  Topic: no longer chronic  (Read 21250 times)
LeeS
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Re: no longer chronic
« Reply #150 on: Jan 13th, 2005, 12:59pm »
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*YAY* (add in an all singing and dancing smilie thing here).
 
Tell D that I'm trying my best to catch him up Kim Wink
 
-Lee
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Renee
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May we all find some pf time! Is it summer yet?

   
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Re: no longer chronic
« Reply #151 on: Jan 14th, 2005, 8:02am »
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Yeehaw!!!!
 
34 weeks!  That is awesome.
 
CONGRATULATIONS D & KIM
 
 Grin
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!

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Re: no longer chronic
« Reply #152 on: Jan 14th, 2005, 11:36am »
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Lee . . .we're wanting YOU to catch up with D!!!!  We both smile and cheer everytime you add more p/f time!!!
 
Renee, thank you so much!  We're pulling for you too!!
 
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #153 on: Jan 15th, 2005, 9:16am »
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Can anyone explain in 'plain English' what cure was???
 
I am a CCH from England who is having real trouble getting any medication to help.  I have suffered chronically for over a year now, previously epsodic.
 
Please explain? Cool
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karma
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Re: no longer chronic
« Reply #154 on: Jan 15th, 2005, 9:30am »
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Not a cure but relief. www.clusterbusters.com
and read the discussions here about shrooms
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miapet
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Re: no longer chronic
« Reply #155 on: Jan 15th, 2005, 9:17pm »
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Frankie, after you check out www.clusterbusters.com if you're interested in the treatment, you can go purchase mushrooms (legally) in the UK at some of the little shops *g* lucky to be in the UK!
As Karma said, currently, it's not a cure .. .but it's closest to a cure that many CHers have found.  Just read and ask questions, people will answer them *smiles*
*positive light and energy*
miapet
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LeeS
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Re: no longer chronic
« Reply #156 on: Jan 16th, 2005, 4:54am »
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Hi Frankie - fire away with any questions you may still have, I can sometimes speak 'plain English' Wink
 
*YAY* for 35 weeks (sorry, bit early).
 
-Lee
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Re: no longer chronic
« Reply #157 on: Jan 19th, 2005, 12:23pm »
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Thanks Lee! hehe . . .yes, we made it 35 weeks, and still counting!!!  Come on Lee, we'll celebrate your p/f time with ours!
*positive light and energy*
miapet
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LeeS
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Re: no longer chronic
« Reply #158 on: Jan 20th, 2005, 11:12am »
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So glad you posted Mia Cool  Thought I may have let the jinx monster out Tongue
 
Well done D Smiley
 
-Lee
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miapet
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Re: no longer chronic
« Reply #159 on: Jan 20th, 2005, 1:19pm »
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Lee, oh nooooooooooooo no jinx monsters here, i used to believe in them, but not anymore *G*  
i fully expect to continue posting here for a very lonnnnnnnnnnngggggggggggggggggg time!
*positive light and energy*
mia
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Re: no longer chronic
« Reply #160 on: Jan 26th, 2005, 3:56pm »
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36 WEEKS PAIN FREE

and we're loving every minute of it . ..  
We have really gotten to know each other over the past 36 weeks.  Before this time, we had only known each other with the ever present beast .. . .gosh, we're still alive and still together hehe go figure?  
Wishing everyone p/f days and nights . .. no matter what your method of attack on the beast is .. .
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #161 on: Feb 2nd, 2005, 3:17pm »
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i feel like the energizer bunny . . . .we just keep going & going & . . . .37 weeks p/f!
 
*positive light and energy*
miapet
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E-Double
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Re: no longer chronic
« Reply #162 on: Feb 2nd, 2005, 4:45pm »
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on Feb 2nd, 2005, 3:17pm, miapet wrote:
i feel like the energizer bunny . . . .we just keep going & going & . . . .37 weeks p/f!
 
*positive light and energy*
miapet

 
Good for you.....keep going and going!!!! Smiley
Enjoy!
« Last Edit: Feb 2nd, 2005, 4:48pm by E-Double » IP Logged

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But the blows they have just a little more
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Gonna take a breath and try again.
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Re: no longer chronic
« Reply #163 on: Feb 3rd, 2005, 1:33am »
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AWESOME!!!!!!!
 
My favorite thread continues.  
 
Congrats you guys!
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LeeS
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Re: no longer chronic
« Reply #164 on: Feb 3rd, 2005, 4:43am »
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Don't think I'll ever get sick of this thread *YAY* D!
 
Is that bunny a new sex toy? Lips Sealed  Go careful with that skullcap Wink Grin
 
-Lee
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Re: no longer chronic
« Reply #165 on: Feb 3rd, 2005, 5:54am »
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Hi Mia,
 
Sorry for coming in so late on the thread. Congratulations to both you and "D" on your success!!!
 
So glad for both of you.
 
Bob
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miapet
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Re: no longer chronic
« Reply #166 on: Feb 4th, 2005, 4:33pm »
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hehe, Thanks Eric . . .we're going to try to keep going forever!
Flounder, we wouldn't be here if it hadn't been for you and Giovanni . .. *hugs*
Lee . .. hehe, uhhhhhhhhhhh , how'd ya know?? Bob . . .all support is happily accepted, beit the first response or the 1 millionth response *smiles* thank you!
Wishing everyone a p/f eternity . ..  
*positive light and energy*
mia
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Re: no longer chronic
« Reply #167 on: Feb 4th, 2005, 7:21pm »
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Yea for D and Miapet Grin  I hope your success inspires others to at least try this therapy.  They have nothing to lose except these damned headaches.
 
 Tongue
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ccbiggsoo7
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Re: no longer chronic
« Reply #168 on: Feb 4th, 2005, 10:32pm »
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miapet, is there any follow up on dosing or just those 2 times. I just tried it last week and have went 7 days without any meds. I have never made it past 2 before. Might have something here. Chris
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chris
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Re: no longer chronic
« Reply #169 on: Feb 5th, 2005, 11:24pm »
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adowedshay odaytay, osay Iway osedday onighttay.  eelingfay  
ettypray uckingfay appyhay ightray aboutway ownay.
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Re: no longer chronic
« Reply #170 on: Feb 7th, 2005, 12:26am »
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eryvay oolkay ockray
 Grin
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Re: no longer chronic
« Reply #171 on: Feb 7th, 2005, 1:30am »
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on Feb 4th, 2005, 10:32pm, ccbiggsoo7 wrote:
miapet, is there any follow up on dosing or just those 2 times. I just tried it last week and have went 7 days without any meds. I have never made it past 2 before. Might have something here. Chris

 
Hey Chris,
Glad to hear you're getting some success. People usually use maintenance doses. If they were chronic, they take a dose again after a month or two and then try to spread out the doses a little longer each time to keep them away. If they are episodic, they'll take a maintenance dose just before their usual cycles are scheduled to return. If they feel any activity brewing in the background, they tale a maintenence dose.  
Some people have now progressed to once or twice a year. Others a little more often.
Even three or four doses (or 10 for that matter) a year sounds a lot better than a few hundred Imitrex shots per year, along with months of scripts needed to keep the 02 tank total under 100. JMHO.
 
Bobw
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Re: no longer chronic
« Reply #172 on: Feb 7th, 2005, 2:08pm »
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John, Thanks!  We totally agree .. what's there to lose by trying . .. maybe a big freaking pain? hehe
 
Chris,  
Congratulations on your 7 p/f days!! *YAY* and *happy dance*  
Sorry for the time lapse!  D has dosed every 2 to 3 months as preventative measures.  As PinkFloyd explained, it depends on if you're chronic or episodic.  Some people have longer windows between doses than others .. .
 
hehe Rock . . how are you now?
 
PF, thanks for watching our thread and taking care of people *smiles*  You (like flounder and giovanni) are truly an angel!
 
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #173 on: Feb 8th, 2005, 9:10am »
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Tried the shrooms 10 days ago for the first time and have been PF since.  Prior to that, non-stop cycle for 6 months, with at least 2 hits a day.  
 
Can I get excited now?  Grin
 
Langa
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Re: no longer chronic
« Reply #174 on: Feb 8th, 2005, 9:30am »
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Anyone know long term affects with doing shrooms? If any for us chronics, thinking of going that route soon here maybe?
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