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Topic: no longer chronic (Read 23675 times) |
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Giovanni
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Re: no longer chronic
« Reply #75 on: Sep 2nd, 2004, 5:45am » |
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Miapet and D,
You guys have been an inspiration and hope to many people.
May your success continue forever!
John
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miapet
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what doesn't kill me makes me stronger
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Re: no longer chronic
« Reply #76 on: Sep 2nd, 2004, 8:53pm » |
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Thanks Eric. We hope you are getting some relief.
Thanks Lee! We are following your success too!! May our counts continue forever!!
Giovanni, you, Flounder, and the other Busters have made our success possible, we can never thank you all enough! Our posting D's results on this public forum was with the wish that it would help someone else make this decision . . . and to try the one thing we truly believe works.
We have passed the 16 week mark!!!! *HAPPY DANCE* Joining the Clusterbusters in the quest for helping all clusterheadache sufferers has been the best decision we have ever made!!!
Wishing everyone p/f days and nights.
*positive light and energy*
miapet
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E-Double
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Re: no longer chronic
« Reply #77 on: Sep 2nd, 2004, 9:10pm » |
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That's incredible!!!
D got out and I went in.
question....
Are there episodics who do this treatment??
Or has it just been chronics who have gone through it all and finally have decided to do this method?
Just curious. VERY curious at this point.
Continued support
Regards,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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alleyoop
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Re: no longer chronic
« Reply #78 on: Sep 2nd, 2004, 9:12pm » |
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D, Mia, I think you guys already know what an inspiration you have been for me! Thank you so much for posting your story here. There's no telling how many people you have reached!
....................................alley
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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tommyD
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Re: no longer chronic
« Reply #79 on: Sep 2nd, 2004, 9:57pm » |
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Quote: Are there episodics who do this treatment??
Or has it just been chronics who have gone through it all and finally have decided to do this method? |
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Pleany of episodics use it; it works better for episodics. A tally of anecdotal reports shows shooms are effective for about two thirds of chronics and 80 to 90 percent of episodics.
If you're in cycle, it may take a little stronger and and a few more doses than if you use it before a cycle starts.
And some have had good luck with very small doses, so small no tripping is involved. I had a cycle coming on this spring and knocked it out by taking a very small dose (equivalent to less than one eighth of a gram) every day for a week, skipping a week, then doing another week of daily doses. Got no buzz at all...and no attacks since March.
Some folks have had good luck using small doses as an abortive. A small piece under the tongue or a sip of tea held in the mouth at the first sign of an attack can knock it out in 5 to 15 minutes. No tripping needed...
...not that there's anything WRONG with that...
-tommyD
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| « Last Edit: Sep 2nd, 2004, 9:58pm by tommyD » |
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E-Double
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Re: no longer chronic
« Reply #80 on: Sep 2nd, 2004, 10:14pm » |
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thanks Tommy
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Flash
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on Sep 2nd, 2004, 9:57pm, tommyD wrote:
And some have had good luck with very small doses, so small no tripping is involved. I had a cycle coming on this spring and knocked it out by taking a very small dose (equivalent to less than one eighth of a gram) every day for a week, skipping a week, then doing another week of daily doses. Got no buzz at all...and no attacks since March.
-tommyD |
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That's very interesting because this is more or less the approach that I now advocate. Here my daily template to be used at the onset of an episode or during a chronic cycle:
0 hour Wake up
Drink 1/2 - 1 pint water #1
dose with 1/4 gram dried (approx 4 gs fresh) #1
take 20-45mins light exercise such as a brisk walk to kick start the metabolism
+1 hours eat small meal #1
+4 hours eat small meal #2 and drink 0.5 pint water #2
+7 hours eat small meal #3 and drink 0.5pint water #3
+9 hours dose with 1/4g dried #2
+10 hours eat small meal #4 and drink 0.5pint water #4
+13 hours eat small meal #5 and drink 0.5 pint water #5
+15 hours dose with 1/4g dried #3
+16 hours eat small meal #6 and bed (no water obviously)
Follow the above regime for 1-2 weeks then taper it off. Do not attempt for more than 2 weeks as we have no idea of any long term issues. The doses are however very very small.
Please note that a small meal can be a piece of toast, or a banana, or even a pot of yoghurt. The idea is to spread your normal food intake across 5 evenly spaced meals.
Reduce salt intake to only what naturally occurs in the food. In other words avoid foods with added salt, and do not add any salt to the food.
This method also eliminates the spectre of trippy effects.
The 3 small doses each day ensure that there is psilocybin available for uptake at all times. Note that a typical trip lasts ~4-6 hours from absolute baseline to absolute baseline. This many doses is potentially ovekill, but it's better to over do it and scale it down, than to come up short. In the grand scheme of pharmacology we are talking an incredibly small quantity of psilo measured at a fraction of the mass of verapamill or imitrex. I see no obvious danger in employing this regime for a couple of weeks.
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miapet
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Re: no longer chronic
« Reply #82 on: Sep 4th, 2004, 9:49am » |
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Eric . . .you heard the news from 2 great sources! Yes, episodics have success with this treatment!
Alley, we're glad that we could inspire you . . and hope that it does inspire lots more people . . . we truly believe this is the answer, and why not give it a try? Clusterheads give so many 'traditional' medications long efforts with little or no success . . .we have a hard time understanding the hold out to try this one. Yes, we know there are other things that may cause a little more anxiety with this treatment, but people can work through that anxiety (D did), and have great odds of seeing it work.
Due to this treatment we are now making future plans, something we couldn't do before. We bought a motorcycle and go riding now . . .we plan trips in advance . . .we arrange things in advance and don't worry that the beast will prevent them from happening . . .it really has been a life changing event.
As always, we wish everyone p/f days and nights, no matter what your method of battle is . . .and encourage people to try this treatment.
*positive light and energy*
D & miapet
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alleyoop
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Re: no longer chronic
« Reply #83 on: Sep 4th, 2004, 10:28am » |
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Fantastic Post Mia!!!
....................alley 
ps
I'm sure your new "British Babe" will add newfound pleasure and freedom to your and D's lives!
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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miapet
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Re: no longer chronic
« Reply #84 on: Sep 5th, 2004, 12:11pm » |
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Alley, thanks . . .we are soooooooooooo in your corner. We want to share our p/f status with you!!! And watch you count your p/f days, see them turn into weeks, and then months, years, and on and on an on *smiles*
Yep, our 'British Babe' is soooooooooo fun! I'm sun-burnt from all the riding yesterday *g* D is going out again today . . .I'm taking the family to The Gator Festival *g* ...I'm letting him slide on this one, so he can enjoy our new toy . . . we'll get him at dinner *L* Maybe we should bring him some 'gator on a stick' back *L*
Sending you LOTS of our energy! Stay strong, you can do this!
*positive light and energy*
crispy-miapet
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Clusterbusters Rock
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miapet
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Re: no longer chronic
« Reply #85 on: Sep 10th, 2004, 11:09pm » |
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I'm happy to say, Wednesday, D made it 17 weeks P/F!!
We couldn't be more pleased with this treatment and the results we are enjoying!
Wishing everyone p/f days and nights.
*positive light and energy*
miapet
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Clusterbusters Rock
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E-Double
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Re: no longer chronic
« Reply #86 on: Sep 10th, 2004, 11:13pm » |
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on and on!!!
beyond words!
E.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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lionsound
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breathe
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Re: no longer chronic
« Reply #87 on: Sep 11th, 2004, 10:23am » |
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wow.
incredible!
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Flounder
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Re: no longer chronic
« Reply #88 on: Sep 12th, 2004, 12:49am » |
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on Sep 11th, 2004, 10:23am, lionsound wrote:
Yeah, I think so!
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| « Last Edit: Sep 12th, 2004, 12:51am by Flounder » |
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Giovanni
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Re: no longer chronic
« Reply #89 on: Sep 12th, 2004, 9:16am » |
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Way to go "D" and Miapet. May the weeks continue to be months and then years.
Yipeeeeee 
John
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alleyoop
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Re: no longer chronic
« Reply #90 on: Sep 12th, 2004, 9:46am » |
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Ya gotta love it!
This is what it's all about!
.................................alley
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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miapet
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Re: no longer chronic
« Reply #91 on: Sep 15th, 2004, 11:45pm » |
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it really is INCREDIBLE!!!! we just hit the 18 week mark!!!!!!
Flounder and Giovanni, we wouldn't be here without you, and the other busters . . .we thank all of you!!
Alley, we are following you too . . . and we believe *smiles*
eric and lionsound ... thank you *smiles*
*positive light and energy*
miapet
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Clusterbusters Rock
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E-Double
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Re: no longer chronic
« Reply #92 on: Sep 15th, 2004, 11:47pm » |
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keep going!
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sophie
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Re: no longer chronic
« Reply #93 on: Sep 21st, 2004, 12:50am » |
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I am new to this, but your good news is wonderful for you and gives me hope. I'm 60 yr. old and on my 3rd week of topamax and hate it. When I read your post it made me feel so good for you guys. It's suppose to rainhere tomarrow---thinking about a walk---not yet--will get better educated and detox. Let me repeat---very happy for you.
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WHERE ARE WE GOING?
AND WHY AM I IN THIS HANDBASKET?
Cluster Buster
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miapet
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Re: no longer chronic
« Reply #94 on: Sep 24th, 2004, 6:08pm » |
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detox and take that walk!! use o2 as an abortive!!
we just passed the 19 week mark .. . .what a life .. . months of p/f time has felt like years .. .and like we are new people .. .
wishing you all p/f days and nights . . .
miapet
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FZfan
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Re: no longer chronic
« Reply #95 on: Sep 27th, 2004, 7:45am » |
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on Sep 24th, 2004, 6:08pm, miapet wrote:| we just passed the 19 week mark .. . . |
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And the streak continues. I never get tired of hearing about it. May the PFDAN continue.
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E-Double
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Re: no longer chronic
« Reply #96 on: Sep 27th, 2004, 10:14am » |
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on Sep 24th, 2004, 6:08pm, miapet wrote:we just passed the 19 week mark .. . .what a life .. . months of p/f time has felt like years .. .and like we are new people .. .
miapet |
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Continued Happiness
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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LeeS
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Re: no longer chronic
« Reply #97 on: Sep 27th, 2004, 11:14am » |
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Quote:| and like we are new people .. . |
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Would like to second that 
-Lee
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miapet
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Re: no longer chronic
« Reply #98 on: Oct 6th, 2004, 10:10pm » |
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Oh my gosh . . .the time has flown! Last week, I missed posting the 20th week of success, and now we're at the
Our lives are moving faster and faster . . .we travel . . .we moved (*yay* no more stairs!!!).. .and we just do STUFF.
We wish you all an eternity of p/f days and nights . . .
*CLUSTERBUSTERS ROCK*
*positive light and energy*
miapet
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Clusterbusters Rock
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Giovanni
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Re: no longer chronic
« Reply #99 on: Oct 7th, 2004, 9:09am » |
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*D* is certainly the poster boy for this treatment. I'm so very happy for the both of you. Enjoy that motorcycle!
John
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