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   Author  Topic: no longer chronic  (Read 21244 times)
miapet
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Re: no longer chronic
« Reply #125 on: Oct 27th, 2004, 5:48pm »
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Today makes 24 weeks . .. 6 months . . .(if you figure months to be 4 weeks) . . . OMFG . . . what a ride this has been .....holding on and riding this horse as long as it will hold us . . .
 
*positive light and energy*
D & miapet
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Re: no longer chronic
« Reply #126 on: Oct 28th, 2004, 3:06am »
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Would like to know your exact method of consuption. I have been chronic for 8 years and have just stumbled upon a friend. Wanna do it right!!
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chris
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Re: no longer chronic
« Reply #127 on: Oct 28th, 2004, 11:36pm »
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Chris,  
There have been good results in numerous ways such as:  tea, plain, or dry mixed into somthing like chocolate.  We used the dry/mixed method.
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Re: no longer chronic
« Reply #128 on: Nov 3rd, 2004, 11:46pm »
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WOOHOO!!!!!!!!!!!!!!!  We made it to 25 weeks!!!
 
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #129 on: Nov 14th, 2004, 3:03pm »
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that's great news! but please don't be devasted if it returns. my first bout was ten years (91-01). they dissappeared sept. 2001. was so happy! thought they were gone forever. this past aug. i can remember saying theeeiiirrr baaaaaccckkkk. i only hope they don't last ten years again. good luck!
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Re: no longer chronic
« Reply #130 on: Nov 14th, 2004, 5:10pm »
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GO  D   !!!!!!!!!!
 
Always great to hear!!!
 
 
Keep going!
 
 
E.
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Re: no longer chronic
« Reply #131 on: Nov 20th, 2004, 9:42am »
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miapet is currently offline wrapping up some work on a class.  I am updating this thread for her.
 
I have passed the 26 and 27 week mark being pain free.
 
Survivor, sorry your ch returned.  My first bout lasted 20 years.  Schrooms work.
 
Peace and Positive Energy
D
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Re: no longer chronic
« Reply #132 on: Nov 23rd, 2004, 5:30pm »
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hi,
I'm following your succes and happy for you.
also planning visit to Amsterdam, hopfully i can finf srooms (or somthing else..) as well.
I'm CH chronic for over 6 years, last year is hell, despite the daily 240 verapamil, and 200-400 valproate,
also capergot,  and cicles of prednisone.
 nothing helps.
O2 (sometimes)and imitrex inj can stop pain.
Question: why not to try the "chemical" at a low dose from "official shop", and bother with srooms?
 
Thanks
 :D
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Re: no longer chronic
« Reply #133 on: Nov 30th, 2004, 4:35pm »
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CONGRATULATIONS!!!!!!  and my God continue to bless you!!!!!!!!!!!!!1 Grin Grin Grin Grin Grin Grin laugh
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miapet
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Re: no longer chronic
« Reply #134 on: Dec 9th, 2004, 9:21am »
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I'm baccccccccckkkkkkkkkk hehe
 
Thank you, D, for updating the thread while I was 'away' *g*
 
D has passed the 28th and 29th weeks of being pain free!!!!!
 
We did his maint. dose on 12/4.  Everything went well, the tightness in his neck, and the 'popping' sounds are gone . . . .and he's still loving life *smiles* . . .  
 
This was our first Thanksgiving, and will be our first Christmas together w/out CH . . . I'm more thankful than I ever knew I could be!!!
 
Amos, I'm not sure what 'chemical' you mean, but I have a couple of guesses *g* . . .the deal is, we aren't in Amsterdam, so we can't go to an official 'shop' and try anything.
 
dantheman, thank you *smiles*
 
I'll try to keep up with this thread, we have a puter issue at home (I got it in my head that we didn't need the internet *L* go figure????, so now we have to decide what we're going to do *L*), but I'll be working on keeping things going *smiles*
 
Wishing everyone a p/f holiday season.
 
*positive light and energy*
D & miapet
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Re: no longer chronic
« Reply #135 on: Dec 16th, 2004, 11:10am »
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30 weeks pain free!  
This will be the first Christmas in 30 years where D can actively participate!!
*positive light and energy*
D & miapet
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Re: no longer chronic
« Reply #136 on: Dec 16th, 2004, 11:25am »
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Huh..so is this cluster headache a psychological problem and not a physical problem in the brain ?
 
i'm not trying to be sarcastic just trying to understand a loved ones problem
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Re: no longer chronic
« Reply #137 on: Dec 16th, 2004, 11:58am »
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No, it's NOT a psychological problem.  It's a brain CHemistry, neurotransmitter problem.  Psilocybin/Psilocin acts with certain receptors and stops the pain.  
It's NOT a psychological problem, thank you.
But it does cause some eventually!
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Re: no longer chronic
« Reply #138 on: Dec 16th, 2004, 12:16pm »
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on Dec 16th, 2004, 11:25am, exhausted wrote:
Huh..so is this cluster headache a psychological problem and not a physical problem in the brain ?
 
i'm not trying to be sarcastic just trying to understand a loved ones problem

It's extremely unlikely that the effect of hallucinogens on CH has anything to with its psychological effects since a dose that is unperceivable psychologically is often effective for the headaches.  Like Vig said, it is much more likely a serotonin effect.  These hallucinogens are serotonin agonists (they act like serotonin).  Cluster headaches are known to be linked to serotonin.  
 
Jesse
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Re: no longer chronic
« Reply #139 on: Dec 16th, 2004, 12:42pm »
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The brain of the CH sufferer is physically different to the brain of a regular person.  The CH brain has changes to it's hypothalamus.  This is very much a physiological condition.  It's just me that's the psycho.
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Re: no longer chronic
« Reply #140 on: Dec 16th, 2004, 12:54pm »
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so then do the antidepressents that act on the brain chemicals have any effect on treating?
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Re: no longer chronic
« Reply #141 on: Dec 16th, 2004, 1:09pm »
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Yes, some do.
I took Amitryptaline (Elavil) and it stopped an episode after a few weeks, but the side effects were too much.
 
I haven't tried others.
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Re: no longer chronic
« Reply #142 on: Dec 16th, 2004, 7:12pm »
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on Dec 16th, 2004, 12:54pm, exhausted wrote:
so then do the antidepressents that act on the brain chemicals have any effect on treating?

 
In my personal experience... no way.  No effect at all.  I've tried lots of anti-depressants and some of them gave me huge problems.
 
--- Steve
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miapet
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Re: no longer chronic
« Reply #143 on: Jan 2nd, 2005, 10:12pm »
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We're back!  D has made it past the 32 week mark of being pain free!! *happy dance*  
This time off has been so strange . . . no computers, no h/as, and no scripts . . .  
Wishing everyone a p/f new year.
*positive light and energy*
miapet
exhausted, please feel free to email, I messaged you back.
*pl&e*
mia
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Re: no longer chronic
« Reply #144 on: Jan 3rd, 2005, 4:48am »
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Welcome back mia and *YAY*
 
Keep going D.
 
-Lee
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Re: no longer chronic
« Reply #145 on: Jan 3rd, 2005, 1:24pm »
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sayyes
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
miapet
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Re: no longer chronic
« Reply #146 on: Jan 4th, 2005, 12:47pm »
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Thanks Lee!  and thanks for the *YAY* *G*  Glad you're doing well!
 
Thanks e-double . . .how are you doing?
 
*positive light and energy*
 
D & miapet
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Re: no longer chronic
« Reply #147 on: Jan 5th, 2005, 1:33pm »
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We just hit 33 weeks p/f!!!!
 
*positive light and energy*
miapet
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Re: no longer chronic
« Reply #148 on: Jan 5th, 2005, 1:48pm »
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Fantastic to hear!!
 
I'm still having a party in my head...eek.
 
Life goes on and the inspiration from you guys is appreciated!
 
E.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
miapet
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Re: no longer chronic
« Reply #149 on: Jan 12th, 2005, 2:14pm »
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34 weeks p/f!!!!!!!!!!!!!!!!!!!!
 
*positive light and energy*
miapet
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