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lisa1973

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Well I have been officially diagnosed!
Jul 16^th, 2008 at 4:18pm

Hi gang

Saw the neuro yesterday morning told him my history and symptoms and without battering an eyelid he say you have cluster headaches.

He said that by having O2 at home and the Imigran I was already on the right track, not to use Imigran too much because that can cause rebound headaches but he does understand that sometimes there is a need!

He wants to restart me on Verapamil, he also mentioned Lithium?, Lidnocaine for my nose?, 02 (I have already) and Imigran Injections (Have these too).

He has discharged me back to the GP.

So not good news in one respect but great news that I now have it officially diagnosed!

Lisa
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Well I have been officially diagnosed! Reply #1 - Jul 16^th, 2008 at 4:38pm Welcome to the club! Jeannie
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Well I have been officially diagnosed! Reply #2 - Jul 16^th, 2008 at 5:43pm Make contact for a good group and local support: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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FramCire

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Re: Well I have been officially diagnosed!
Reply #3 - Jul 16^th, 2008 at 6:42pm

Thats strange that he sent you back to GP. My headache specialist will be mine until he retires or moves on, since I have a Ch diagnosis.

Anyway, putting a name to the demon is actually a nice thing, finding support and the right cocktail to tame the beast (as best you can) is next. Educate your friends and family, always stay prepared with your meds, and may you have pain free days, weeks , months, and years ahead.

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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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Guiseppi

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Re: Well I have been officially diagnosed!
Reply #4 - Jul 17^th, 2008 at 1:25am

Wow, sounds like he was pretty well educated about CH! You gotta tip your hat to a doc with that much info for you, you really lucked out. Let the OUCH UK board know about that neuro, he'd be a valuable resource for the rest of the sufferers on your side of the world. Oh, and officially welcome to the club! Wink

Guiseppi

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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lisa1973

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Re: Well I have been officially diagnosed!
Reply #5 - Jul 17^th, 2008 at 4:14am

Thanks guys!

I must say it was a really nice change not to have to fight or argue about CH with the medical profession.

I had such a battle with the GP to get O2 etc so was expecting to have to do the same with the Neuro. He was quite nice as Neuros go my last one was awful!

One interesting thing he said to do with CH is that people with Pineal Cysts usually have CH. I got diagnosed with a Pineal Cyst last year, mine was 19 x 13 x 11 and as yet hasn't grown in size. Due another MRI scan in August to check it again. He said its one of those things where you could scan 100 people with CH and only find 80% with a cyst and scan 100 people with a cyst and 80% would have CH. Doesn't make a blind bit of difference but interesting all the same.

Joined OUCH UK a couple of months ago, been a lifesaver to me! Would definately recommend joining to anyone else who lives in the UK!

Lisa
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: Well I have been officially diagnosed! Reply #6 - Jul 17^th, 2008 at 4:32am Welcome, Lisa! Wishing you lots of PF days, Sanna
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thebbz Ex Member	Re: Well I have been officially diagnosed! Reply #7 - Jul 17^th, 2008 at 11:56am Official headbanger! Sounds like your on the right track. Good luck thebb
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Well I have been officially diagnosed! Reply #8 - Jul 17^th, 2008 at 12:12pm Welcome home Lisa. Another sister to add to my growing virtual family Sorry about the dx though. Great people with lousy hypothingamagigies -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

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maalstroom

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Re: Well I have been officially diagnosed!
Reply #9 - Jul 17^th, 2008 at 3:57pm

To be a clusterhead is a honorary title (is this good English, pls correct me if not), it means you are among the strongest, bravest and toughest people in the world haha. We are the true warriors, modern day Vikings (a wink to Scandinavian friends).

Always good to hear about an educated neurologist - I too have been blessed with one in the nineties, and my current one.

Greetings and painfree days ahead.

Pascal.

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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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lisa1973 CH.com Alumnus Offline I Love CH.com! Posts: 16 Portsmouth, UK Gender:	Re: Well I have been officially diagnosed! Reply #10 - Jul 18^th, 2008 at 5:21am Thanks for the welcome guys! Thank you for officially accepting me into your club! lol Lisa x
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fiveofclubs CH.com Newbie Offline I Love CH.com! Posts: 10	Re: Well I have been officially diagnosed! Reply #11 - Jul 18^th, 2008 at 12:24pm congrats Lisa, I starting my doctor dance now to get the O2. I hope you stay PF
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