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Second worst pain imaginable? (Read 15129 times)
Kimmie
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Re: Second worst pain imaginable?
Reply #50 - Aug 14th, 2008 at 3:22pm
 
I think Potter's got this one on pain. I think he would know pain quite well, and he even says CH are the worst.
Thank you with all of my heart Potter for defending our country!
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Re: Second worst pain imaginable?
Reply #51 - Aug 14th, 2008 at 5:07pm
 
I fractured my arm in 5 places that was nothing id take that over CH anyday

Emotional pain and physical pain are 2 diffrant things and IMO can not be bunched togeather

However i would take my CH over loosing a loved one every time, i would consider loosing a aunt uncle or cousin to stop the CH though to be honest
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PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!.
 
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Re: Second worst pain imaginable?
Reply #52 - Aug 14th, 2008 at 5:45pm
 
I watched a documentary on Discovery channel about poisonous snakes and I forget the variety that was worst, but they said it was the most painful pain there was?

They say the venom contains a powerful neurotoxin capable of killing you in 15 min.

I would still vote for the red hot fork in the eye as #1 because the pain is so unbearable when you need your brain to help you deal with the pain, the brain goes on vacation and leaves you little to help you cope with the train wreck happening behind your eye.

At least with the snake bite you’ll have an end in sight soon! Grin
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Re: Second worst pain imaginable?
Reply #53 - Aug 14th, 2008 at 6:03pm
 
My Uncle Morty and Aunt Gladys have been trying to get rid of each other for the last 40 years!
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Pixie-elf
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Re: Second worst pain imaginable?
Reply #54 - Aug 15th, 2008 at 9:34am
 
I'm going with if Potter says it's the worst, I believe him. Thank you so much for your sacrifice...

In my personal experience... I've had a lot of pain, bone pain from juvenille osteoporosis, from the compression fractures, from them jamming needles into nerve roots during lumbar punctures (it happens more often than you would think.) and even the 36 hours after my appendix ruptured and stayed in me... None of it compared to the cluster headaches. I screamed a little with some of those, but not like this. None of it made me willing to do anything to make the pain stop.

Edited to add: I think I just remembered the most painful thing next to cluster headaches I remember... waking up after flatlining! My whole body ached.
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« Last Edit: Aug 18th, 2008 at 4:07am by Pixie-elf »  

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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Re: Second worst pain imaginable?
Reply #55 - Aug 18th, 2008 at 4:56am
 
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Has a transcript of an interview with Dr Peter Goadsby a CH specialist that said "Cluster headache is probably the worst pain that humans experience".

That said you can only compare to what you have had. Personally for me the only other noteworthy cases of physical pain are:

2nd degree burns up my side/chest when I caught on fire.
3rd degree burns on my thumb (Had CH at the time, was cooking carelessly)
3 shattered molars to various causes (but I really should eat/drink less sugar :p)
Dislocated shoulder (fell down stairs)
My right nipple burned off by cleaning chemicals (funny but true Tongue)

Anyway for me none of the above even rates in the same league as a 9/10 CH for intensity of pain.

Bad teeth can cause you a sleepless night, but really its a severe ache compared to an icepick through the eye and drill through the temple...

The burns, I was lucky to have the medical supplies handy to have both treated quickly which helped avoid scarring. Alcohol was enough to take my mind off the pain on the chest. And while I thought to myself "this is going to hurt" as I watched the skin on my thumb shrivel and shrink compared to the two months of CH id been going through at the time it didnt even make me flinch. For me part of the burns not being as bad is there seems to be a limit to the intensity. Yes it really really really burns, and it keeps up for days really, but medication/treatment seems much more effective at easing the pain compared to a CH.

As for the shoulder I just put it back in myself to the horror of my friends/family and again didnt find it so bad. Having talked afterwards to a doctor he said putting it back in quickly probably prevented the swelling which causes the pain usually involved so I guess I cant comment properly.

And for the nipple well. It hurt a LOT less than you would think. Id rate it EXTREME discomfort rather than actual pain Shocked
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Balanchine
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Re: Second worst pain imaginable?
Reply #56 - Aug 18th, 2008 at 10:20am
 
Yikes, Spot.... that's quite a litany!

And your predicament reminds me: What do you call 500 Indian women without nipples? (start cringing now, here it comes) The Indiannipless 500.
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Ungweliante
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Re: Second worst pain imaginable?
Reply #57 - Aug 18th, 2008 at 7:14pm
 
I think this is a very interesting threat, more so because I get to compare it to my own condition.

Today I had to make a trip to the ER. I managed to trip and fall on the floor so that the nail from my left big toe ripped off. I'd say that the pain I experienced then was pretty intensive and around the same that the worst of my attacks have been. Except that it lasted at least an hour before it started to settle down a bit.

But does this mean that I don't have CH then? Or is pain so subjective? Don't I get the very high-KIP hits then, even if it is CH? Normal CH meds are not seemingly affecting me anyways, is that a clue to me not having CH?

I don't know, but I do know that I get intense hour-long headaches 2-3 times per day, with the normal symptoms of CH - droopy eye, runny nose, etc. They often make me unable to do anything else. I've also understood that the high-KIP level hits are rare. Whatever or however it might be, I think that pain all in all is something I'd rather be without. I also think any kind of "my pain is worst" -competition is childish - there are many types of intense pain and people feel pain at different levels. What can be a screamer for someone is just gritting teeth to someone else.

Altogether I wish that we all and people in general would have a little less pain. The world could really use it.

- Best regards,
Rosa
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Pixie-elf
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Re: Second worst pain imaginable?
Reply #58 - Aug 18th, 2008 at 10:39pm
 
Pain to a certain extent is subjective, as what your tolerance is changes how you percieve it. Just because you've never had higher than a 3, I don't think that means you don't have it. You've just been lucky enough not to experience one higher than that.

I didn't think this was any kind of a competition, just that everyone was comparing their worst pain to their CH pain.
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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Ungweliante
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Re: Second worst pain imaginable?
Reply #59 - Aug 19th, 2008 at 6:30am
 
Apparently my toe has a joint fracture. No wonder it hurt so much.

Anyways, I'm not sure if you were speaking personally or just generally, but I've certainly had worse hits than KIP 3. Or at least in my opinion. A lot of people seem to be reading the KIP scale differently...I've heard opinions that a very bad migraine is just KIP 4 or so. Yet, according to the KIP scale, you can still go to sleep at KIP 6. I'm usually able to get sleep through a moderate migraine, but not an extremely bad one. With CHs, I have had hits where I have been able to lie in bed, but also hits which have made me somewhat unable to sense my surroundings from the pain.

I think something what should be thought about is the quality or type of the pain we experience. Pain can be sharp, cutting, dull, throbbing, piercing, boring and so on. I think it can be sometimes difficult to compare two different types of pain accurately.

- Best regards and PFDAN to everyone,
Rosa
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Pixie-elf
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Re: Second worst pain imaginable?
Reply #60 - Aug 19th, 2008 at 8:20am
 
Ack, actually I misread part of what you typed, I thought you said if you only had ones that on the kip scale were 3's. (Gooo sleep deprivation! -_-; )

OW on the joint fracture. I hope it feels better soon. I know when I had my first compression fracture, it left me on the floor screaming bloody murder and incapacitated for a good while from the pain.
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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gregory s
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Re: Second worst pain imaginable?
Reply #61 - Aug 20th, 2008 at 2:46pm
 
All I know, is that it IS the worst pain I go through. I rarely get sick, per se, the only real problem I have is these headaches that come on once in a while, it is the only thing that can bring me to tears begging for relief. Even a toothache didn't hurt as much.
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Re: Second worst pain imaginable?
Reply #62 - Aug 20th, 2008 at 4:25pm
 
[quote author=566D6474666F6A626D7766030 link=1217164808/50#57 date=1219101258]  I also think any kind of "my pain is worst" -competition is childish - [/quote

Rosa, I never intended it to be.
I am just really curious.

Pascal.
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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.
 
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Ungweliante
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Re: Second worst pain imaginable?
Reply #63 - Aug 21st, 2008 at 6:36am
 
Pixie-elf, np Smiley

Pascal, ok then. To recapitulate, my answer would be that a lot of pain is subjective. It's difficult to say if CH is the worst, the second worst or even the 10th worst pain that is there. In my opinion, it depends on the person experiencing the pain and also the level of the CH-attack. My CH, although very painful, isn't the worst pain I've experienced.

I also wanted to emphasise the point that all pain is uncomfortable. Whether it's a very bad migraine, a compound fracture, or continous rheumatism, it's something that can make the person suffering it very unhappy. The tolerance to physical pain is one thing, but yet another thing is the invidual tolerance to the psychological effects caused by that pain. Various things can make people feel or remember the pain as more difficult or easier to handle. All this makes it very difficult to say what or which pain is ultimately worse than some other, although of course there are some clear cases here.

- PFDAN to everyone,
Rosa
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worst pain ever
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Re: Second worst pain imaginable?
Reply #64 - Aug 21st, 2008 at 6:54am
 
maalstroom wrote on Jul 27th, 2008 at 9:20am:
I read somewhere that CH is supposed to be the second worst pain known to men. Unfortunately I can't find it back, and also don't remember if it was an anecdotal thing, or an objective, scientifically argumented research.

Does anyone know any link where to find it?
And what pain is even worse?

Thanx in advance.
To quote the venerable bill cosby childbirth is the worst pain when he tried to comfort his wife and ask her what it was like to be in labor she replied"Take your bottom lip and stretch it over your head until it touches the back of your neck" I dont really know if this is the worst pain ever but I thought I would share and maybe make someone smile.
Thanks
PF days to everyone


Pascal.

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Re: Second worst pain imaginable?
Reply #65 - Aug 21st, 2008 at 2:06pm
 
worst pain ever wrote on Aug 21st, 2008 at 6:54am:
maalstroom wrote on Jul 27th, 2008 at 9:20am:
I read somewhere that CH is supposed to be the second worst pain known to men. Unfortunately I can't find it back, and also don't remember if it was an anecdotal thing, or an objective, scientifically argumented research.

Does anyone know any link where to find it?
And what pain is even worse?

Thanx in advance.
To quote the venerable bill cosby childbirth is the worst pain when he tried to comfort his wife and ask her what it was like to be in labor she replied"Take your bottom lip and stretch it over your head until it touches the back of your neck" I dont really know if this is the worst pain ever but I thought I would share and maybe make someone smile.
Thanks
PF days to everyone


Pascal.


"And my point in quoting Pascal without commenting myself was ______________."
(you fill in the blank)
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Re: Second worst pain imaginable?
Reply #66 - Aug 22nd, 2008 at 8:51pm
 
Ungweliante,

I think your statement is key "and also the level of the CH-attack". I rarely say this, as I don't want to contribute to anyone potentially getting worse - but in my case (and others) cluster attack pain increases over time. I was chronic as a teenager with one attack daily at 9am like clock work. It was exactly 45 minutes long. Almost easier being on a schedule and able to prepare to some extent. I didn't take much in the way of meds at the time as I was getting away from all drugs including pain meds, and hadn't been properly diagnosed yet. These once daily attacks were "mild" in comparison to what came later. I still had the tearing eye and burning temple/back of eyeball type of attack, but it was around KIP 7 or so. I later experienced KIP10++ which lasted much longer on each hit and multiple times daily, and multiple times at night as well. Also encompassing jaw, face, back of head, and neck - What a nightmare. The good news in my case is that I went to episodic after seeing a specialist. Bad news worse hits for 6-8 weeks, but long periods of remission which seem to get longer between each cycle (more good news). Everyone should keep in mind that some early on in their cluster experience may not get KIP 10's, this does not mean they don't have clusters and that they don't suffer. I think this causes a lot of cluster sufferers to get chased away from here, where they do (or will) need to get help and support. My 2 cents. Blessings, Rich
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« Last Edit: Aug 22nd, 2008 at 8:54pm by StressFree »  
 
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Pixie-elf
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Re: Second worst pain imaginable?
Reply #67 - Aug 23rd, 2008 at 1:58am
 
StressFree wrote on Aug 22nd, 2008 at 8:51pm:
Ungweliante,

I think your statement is key "and also the level of the CH-attack". I rarely say this, as I don't want to contribute to anyone potentially getting worse - but in my case (and others) cluster attack pain increases over time. I was chronic as a teenager with one attack daily at 9am like clock work. It was exactly 45 minutes long. Almost easier being on a schedule and able to prepare to some extent. I didn't take much in the way of meds at the time as I was getting away from all drugs including pain meds, and hadn't been properly diagnosed yet. These once daily attacks were "mild" in comparison to what came later. I still had the tearing eye and burning temple/back of eyeball type of attack, but it was around KIP 7 or so. I later experienced KIP10++ which lasted much longer on each hit and multiple times daily, and multiple times at night as well. Also encompassing jaw, face, back of head, and neck - What a nightmare. The good news in my case is that I went to episodic after seeing a specialist. Bad news worse hits for 6-8 weeks, but long periods of remission which seem to get longer between each cycle (more good news). Everyone should keep in mind that some early on in their cluster experience may not get KIP 10's, this does not mean they don't have clusters and that they don't suffer. I think this causes a lot of cluster sufferers to get chased away from here, where they do (or will) need to get help and support. My 2 cents. Blessings, Rich


I can agree with this.

On my own personal pain scale, what I at first thought was a 9, one week, suddenly became a 6 in 2 weeks, because the pain got worse. Make sense? ^^;
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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maalstroom
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Re: Second worst pain imaginable?
Reply #68 - Aug 23rd, 2008 at 5:27am
 
Makes perfectly sense, Pixie.
Last cycle I had Kip10's, which I had not have as worse since the 90's. Difference though was, that I use to get these suicidal thoughts, ya know: don't wanna live with this kinda pain.
But nowadays when I get the 10's, I try to hold on to the thought that this hit WILL end.
What I hate is, the worst the painlevel is, the longer the hits are. Even more evil is, that those 10's do not always respond to the injectable, and ya have to ride it out.

Painfree days to all.

P.S. Worst Pain Ever misquoted me, as I never said anything about Bill Cosby.
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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.
 
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Pixie-elf
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Re: Second worst pain imaginable?
Reply #69 - Aug 23rd, 2008 at 7:37am
 
maalstroom wrote on Aug 23rd, 2008 at 5:27am:
Makes perfectly sense, Pixie.
Last cycle I had Kip10's, which I had not have as worse since the 90's. Difference though was, that I use to get these suicidal thoughts, ya know: don't wanna live with this kinda pain.
But nowadays when I get the 10's, I try to hold on to the thought that this hit WILL end.
What I hate is, the worst the painlevel is, the longer the hits are. Even more evil is, that those 10's do not always respond to the injectable, and ya have to ride it out.

Painfree days to all.

P.S. Worst Pain Ever misquoted me, as I never said anything about Bill Cosby.


The suicidal ones for me are "Anything to make this pain stop." I've advised my family to keep any sharp objects or anything I could hurt myself with away from me. (I'm more afraid I might jab myself in the eye with something...)  It's not that I want to die, it's that I want the pain to end.

You could try what I do, when you get those thoughts (you'd need to set it up beforehand) maybe make a little book or wall-hanging with pictures of the things you have to live for, and look at that. Even though hanging on to "it WILL" end is good, it never hurts to have backups. Smiley
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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