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geosailor

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How I killed my CH cycle
Aug 21^st, 2008 at 1:43am

I took 25 mg/day of Topomax for 14 days & my CH cycle seems to be gone. This was the first time I've used it.

Side Effects: minor bleeding in diarreha but this could have been caused by a couple Frova pills I took during the first few days of the 14 days.

Please add your successes & side effects to this thread so we can have a handy compilation of what works.

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Jeff_M CH.com Newbie Offline I Love CH.com! Posts: 20	Re: How I killed my CH cycle Reply #1 - Aug 21^st, 2008 at 7:08am Im just wondering as I often do,when someone states they're pain free after taking any type of med is...How long were you in your cycle BEFORE you started the meds?
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Guiseppi

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Re: How I killed my CH cycle
Reply #2 - Aug 21^st, 2008 at 10:17am

Topomax is a popular preventative med for CH, also referred to as "dopeymax" due to some experiencing the "dopeys" as one of its side effects. Wink

Hadn't seen it used to abort a cycle before. I'm guessing you may have been near the end of a cycle, the topomax did it's job of holding them off until your cycle ended.

Either way, you're pain free and that's always cause for celebrating. May your remission last an entire lifetime!

Guiseppi

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George

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Re: How I killed my CH cycle
Reply #3 - Aug 21^st, 2008 at 11:03am

Nearly all the conventional medications I've seen discussed here at CH.com seem to be more-or-less effective at suppressing symptoms until an episodic cycle goes away. As far as I'm aware, none of them will actually shorten or end the cycle itself. The claim is made that some unconventional treatments will do this, however.

I'm happy to hear that your treatment regimen has been successful. There is no better news around here.

Best wishes,

George

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"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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thebbz

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Re: How I killed my CH cycle
Reply #4 - Aug 21^st, 2008 at 11:15am

Good news. Glad it worked. Be careful, what works now may not work next time. Keep the CH tool box handy.

Quote:

Please add your successes & side effects to this thread so we can have a handy compilation of what works.

RC seeds rock. Shrooms Rock. Kills the demon in his tracks. The whole episode.......side effects include: pain free time, saving money from not buying pharmacuticals.
all the best
thebb

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-johnny-

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Re: How I killed my CH cycle
Reply #5 - Aug 21^st, 2008 at 9:51pm

Quote:

Good news. Glad it worked. Be careful, what works now may not work next time. Keep the CH tool box handy.

Quote:

Please add your successes & side effects to this thread so we can have a handy compilation of what works.

RC seeds rock. Shrooms Rock. Kills the demon in his tracks. The whole episode.......side effects include: pain free time, saving money from not buying pharmacuticals.
all the best
thebb

never tried the rc seeds but everything else bb mentioned worked for me too. can't say that it stopped ch dead in it's tracks but it did phase out rather quickly. Smiley

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geosailor

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Re: How I killed my CH cycle
Reply #6 - Aug 21^st, 2008 at 11:15pm

Tx all for the support.
In answer to a few of the questions/comments above:
a)I was about 6 weeks into my cycle when I started taking Topomax

b)my doctor(who is also a CH'r) prescribed Topomax as a preventative & Frova to treat specific attacks. I had 2 mild attacks when I first started taking Topomax then a few days of shadows which was followed by pain free days.

c)I'm surprised that the low dosage (25 mg/day) of Topomax worked when I read that others take over 400mg/day. Maybe its due to the fact that this was my first usage of the drug and my body wasn't yet immuned to it.

Here's to wishing you all success in ending your CH cycle!

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hurts_so_good CH.com Junior Offline Hate headaches, love Linux Posts: 41 Lurgan, UK Gender:	Re: How I killed my CH cycle Reply #7 - Aug 22^nd, 2008 at 6:17pm geosailor wrote on Aug 21^st, 2008 at 11:15pm: b)my doctor(who is also a CH'r) It must be great to have a doctor who has CH. Would he or she mind if we all dropped by some day?
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Jonny Ex Member	Re: How I killed my CH cycle Reply #8 - Aug 22^nd, 2008 at 11:05pm Some folks have been IN CYCLE for more than 30 years, what say you to them?
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Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: How I killed my CH cycle Reply #9 - Aug 23^rd, 2008 at 3:40pm [/quote] never tried the rc seeds but everything else bb mentioned worked for me too. can't say that it stopped ch dead in it's tracks but it did phase out rather quickly. [/quote] rc seeds - dead in it's tracks. Sandy
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mezza

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Re: How I killed my CH cycle
Reply #10 - Aug 24^th, 2008 at 6:36am

geosailor wrote on Aug 21^st, 2008 at 11:15pm:

a CH'r) Frova to treat specific attacks.

I have used Frova too. I can't use it to treat 'attacks' because Frova usually takes 2 hours or so to kick in. I've used it to prevent attacks along with my verapamil dosage. I would take the Frova about mid morning and it would keep an hit at bay til the next morning.

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Kimmie CH.com Veteran Offline OW!! Posts: 187 US Gender:	Re: How I killed my CH cycle Reply #11 - Aug 25^th, 2008 at 11:09am Where can you get RC seeds in the US???
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angela.lambert CH.com Veteran Offline Support Alaska Commercial Fisherman Posts: 182 petersburg,alaska Gender:	Re: How I killed my CH cycle Reply #12 - Aug 25^th, 2008 at 8:28pm me too, me too...is it the clusterbuster website i've heard about? angela
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mezza CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 415 north carolina Gender:	Re: How I killed my CH cycle Reply #13 - Aug 25^th, 2008 at 9:20pm The clusterbuster website has links where you can buy RC seeds in the US.
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lennycohen

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Re: How I killed my CH cycle
Reply #14 - Aug 27^th, 2008 at 6:02am

I killed mine off with IV depakote - in cycle for 3 months, on 1500 mgs/day oral, and 500mgs IV once a week for 4 weeks - timing of IV is 2 HA's within 36 hours, get another IV, mine worked out to about 1 per week. After 4 IV's, pain free. A fter 1 month pain free tapered off all meds (was combining depakote with lithium as well). Off all meds for 4 months, but I seem to feel like I'm going to start an episode soon - shadows, a HA woke me up last night, so I'm going to hit the depakote early, see if I can stave it off.

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thebbz Ex Member	Re: How I killed my CH cycle Reply #15 - Aug 27^th, 2008 at 10:43am Seeds at:ethnobotanicals.com Iamshaman.com clusterbusters.com all the best thebb
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Ernie Moss aka Wishbone CH.com Junior Offline Posts: 93 Birmingham, AL Gender:	Re: How I killed my CH cycle Reply #16 - Aug 27^th, 2008 at 11:14am Also seeds at ethnogarden.com They actually have a special going on right now buy 1 get 2 free. 5g $35 but you would get 15g for $35. These are seeds for planting of course, not injesting.
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thebbz Ex Member	Re: How I killed my CH cycle Reply #17 - Aug 27^th, 2008 at 11:24am Nobody eats those seeds Ernie. Flowers are too pretty. all the best thebb
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geosailor

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Re: How I killed my CH cycle
Reply #18 - Aug 27^th, 2008 at 8:03pm

Those considering RC seeds should note the following from Wikipedia:

"The seeds of many species of morning glory contain ergot alkaloids such as the hallucinogenic ergonovine and ergine (LSA). Seeds of I. tricolor and I. corymbosa (syn. R. corymbosa) are used as hallucinogens. The seeds can produce similar effect to LSD when taken in the hundreds. Though the chemical LSA is illegal to possess in pure form, the seeds are found in many gardening stores, however, the seeds from gardening stores may be coated in some form of mild poison in order to prevent ingestion or methylmercury to retard spoilage.[3] They should not be taken by people with a history of liver disorders or hepatitis. They should not be taken by pregnant women as they can cause uterine contraction which can lead to miscarriage. Individuals with a history of cardiovascular disease (Heart attack, blood clot, and stroke) or a family history of such problems, and the elderly should avoid consuming these seeds due to their vasoconstrictive effects.["

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