Still PF, day and night, since Monday when I started taking the herbal supplement mixture described in this thread.  I can't recommend this more highly for others to try.   As best as I can tell, there's not much to lose.

hayduke wrote on Sep 11^th, 2008 at 9:18pm:


You know--this is getting quite interesting...  Three episodics reporting thusfar that this particular combination appears to have stopped an episodic cycle in its tracks.

I'll continue to watch this, with interest.

May I suggest that one--or all three of you--start a thread on the meds board specifically devoted to this topic?  Others could add their experiences to the thread as well if they choose to attempt using this combination.

Best,

George

Hey, hey, hey! Don't be embarrassed by the title of my post. You quite possibly saved Lorne's life and my entire family's sanity. I don't know what it's like in other households with a clusterhead but ours was filled with fear, anxiety, depression, and tears during a cycle. And I'm not just referring to the actual clusterhead! We would have had many weeks left of this living hell if it weren't for you. And there is always a fear in the back of our minds that Lorne could harm himself if left unattended. If I could afford to put up a billboard on the freeway featuring you, I would do it. We now refer to your recipe, regimen, cocktail........as THE KILOWATT3.

Cyndi

Cyndi Leier wrote on Sep 14^th, 2008 at 1:13am:


Hi Cyndi,

Just kidding!  I'll get over it!

I'm sure glad that Lorne had such success!  I'm assuming that he's remaining PF the last week or so (?)  Over on the "Kilowatt3!" board, it looks like another fellow is off to a good start.  TJ posted that he was starting last night, and this morning he reported his first PF night's sleep in weeks.  He couldn't find the skullcap locally, though, so had to order it, but he should have it tomorrow.  I'm sure hoping for another success story.

Anyway, thanks for the feedback, and please stay in touch!

Regards,
Jim

P.S. In your family pic, which of the three girls is you?

Cyndi Leier wrote on Sep 14^th, 2008 at 1:47pm:


Hi Cyndi,

Well, I have to admit, that's not actually my car.  I have one just like it (1952 Jaguar Mark VII), but mine hasn't been restored yet, so I have a LOT of work ahead of me!  The pic is a reminder of what CAN be, not what IS! 

Josh reports on the other board that he is still PF, and is planning to stop the regimen after tomorrow night.  Let's cross our fingers & pray that he's in the clear!  I'm sure glad that your success with Lorne has helped get a couple more people interested.  Wonder if you've heard any more from any of the people who had PM'd you about the ingredients?

Stay in touch, and all the best to the family,
Jim

George wrote on Sep 16^th, 2008 at 3:40am:


Hi George,

Thanks for posting.  A couple of thoughts:

I understand your wanting to see if the mix can knock out a cycle at its peak, but hang on a sec...  What's actually more valuable to you; something that will wipe out the second half of a cycle, or prevent the cycle altogether?

Fair trial?  Doesn't seem very fair to you to have to have half a cycle that you don't need to!  

Consider, too, how much emphasis everyone puts on jumping on their abortives quickly - We all know that the effectiveness of O2 or Red Bull is highly dependent upon getting on it fast.  Might not the same hold true for this preventative mix?  Lorne, Josh, and I have all had good success starting on the stuff mid-cycle, but why not give ourselves every advantage we might have?

As an aside, my theory of why the mix works would suggest that the sooner you get on it the better, too.  I've promised to post the theory when I get a chance, and I will - just haven't gotten to it yet.

Anyway, thanks for posting, and whatever you decide, good luck with it, and please let us know how it goes.  My suggestion is that you just DON'T HAVE another cycle, then you won't have to worry about it!  

Regards,
Jim

Cyndi Leier wrote on Sep 16^th, 2008 at 10:14am:


...Well, "full believer" or not, I betcha Lorne would've started back on the stuff once his next cycle started cranking up!  

I really do have a concern, though, based on a sort of "what if" scenario:  What if the mix really should be taken as early as possible, and there's a high probability that it won't work if you wait until too long into a cycle?  Maybe Lorne and I were just really lucky that it worked, even though we really started it way too late?  If that were the case, then if George waits until his cycle is at its peak, it might not work.  George might just blow it off, believing that the regimen is worthless to him, when in reality it could've stopped his cycle cold if he'd just started dosing at the first sign of a cycle!  I'd sure hate to see that happen!

Another observation on my part - The very first time I tried the regimen, I was in mid-cycle, and it took just shy of a week to knock it out.  As you said, Lorne was at peak cycle when he first tried it, and I think you said it took 8 or 9 days (?) to completely break the cycle.  The second time I used the mix was last spring when I started back into cycle, and I started on it the very first time I had a genuine HA (not just a shadow).  That was my first and last HA for the spring!  Granted, this is a very limited set of data, but it sure supports my belief that we oughtta start ASAP once we know a cycle is cranking up!

YMMV, but at least the mix is doing some good for a few folks!

Regards, & stay in touch!
Jim

P.S.  Any word from anyone else, e.g. the folks who had PM'd you about the ingredients?

Certainly, on a personal level it would be valuable to me to have a cycle killed before it really got started--but in the interest of others here who might wish to try this regimen, I'm willing to hold off starting the thing until I'm in high cycle, in order to see whether it can kill the thing when it's full-blown.    

Granted--whatever happens will be only a single individual's experience and anecdotal, but it may be worthwhile.

Actually, I'm very curious to see whether this combination might change the pattern of one of my cycles, and end it abruptly.  My cycles have been remarkably consistent throughout the years, and have never gone away until they've followed the whole miserable 6-8 week pattern.  

Clearly, this regimen has not extended a cycle for anyone who's tried it thusfar, nor has it increased the number of hits within a cycle.  Those are my biggest concerns, and the reason I don't use some of the pharmaceuticals that are prescribed for CH.  I don't want to make them worse.  

As far as waiting until I hit high cycle to start--well--I've gone through many, many cycles with nothing at all, so I know I can do it.  Nothing I haven't done before.  

So--no worries.  There's no downside.  If it doesn't kill a full-blown high cycle, then no big deal, because nothing else has ever done that either.  If I start the regimen, however, and a week later the cycle is dead, then--based on past experiences--I'll be able to assert that (at least to me) there is convincing evidence  that the regimen had something to do with that, especially since I take no other medications for CH, and have not done so for a long time.

Seem reasonable?  'Bout time I stepped up as a guinea pig for an experimental treatment around here anyway.  

Again, it probably won't happen until May, so don't expect results one way or the other for a while...

Best,

George  

George wrote on Sep 19^th, 2008 at 2:01am:


OK George, but I still have one question:  If, in fact (and granted, it's a big 'if') the regimen can completely prevent a cycle, then why would you care if it can 'kill the thing when it's full blown'?  Just don't ever let the !%$ thing get full-blown!    You avoid a lot of pain that way!

Sure, knocking down a cycle at its peak might be a more dramatic demonstration, but is it really the preferred treatment???  I guess the one advantage is that it'll make a believer out of someone pretty fast! 

Anyway, glad you're planning to give it a try.  Bet you just can't wait for your next cycle so you can try it!

Regards, & stay in touch,
Jim

I wonder when I'll ever be able to not be on the mixture?  

-josh [/quote]

I think Lorne was on it for 2 weeks. 1 week without the proper kudzu dose (we had to mail order for the kudzu root) and then another week with the correct dose. We are not in agreement about the # of days for the regimen. However, he should know I'm right because I'm the one who set out his pills twice a day. I wish we kept an exact record.

Cyndi Leier wrote on Sep 20^th, 2008 at 12:18am:


Hi Cyndi,

From our correspondance, it looks like Lorne started the mix on August 2, and immediately had a PF night's sleep.  On August 6, you reported that he was down to a single K1-2 per day.

On the 18th, you said he'd been PF for a few days and had tried stopping the regimen, but that he got hit again, so was starting it back up.  On the 26th, you wrote that he was off of everything and still PF.  I think you mentioned he'd been PF for about 5 days.

So, about 3 weeks start to finish.  Not bad!

Hoping a lot of others find relief with this real soon.  I haven't heard anything back from Josh or TJ in a couple of days.

Stay in touch!
Regards,
Jim

So sorry not to have posted for a few days!  I've been completely PF since going back on the herbal supplement mix.    That's the great news.

My only "issue" is that no matter when I take the melatonin/skullcap hit at night (I've done it as early as 9pm), I have trouble waking up the next morning.  I have to help get my 1st grader off to school in the morning by 8am and she's taking to calling me droopy because I can barely keep my eyes open.  My situation now is SO MUCH BETTER than having headaches, but I'm wondering if I should consider an adjustment to the melatonin or something else.   Any ideas?

Once again, I am so thrilled to be PF and will continue on the regimen through next Monday, given some of the problems I had experienced with trying to stop too early.   I'll be on an airplane traveling for business next week, and to think I can do that without the pain is so amazing!

-josh