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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	cant sleep ?? Sep 15^th, 2008 at 2:12pm Hi all anyone else experianced this, since my cycle ended i cant sleep im awake till 3 or 4 am then im up for work at 7am i have try taking the melatonin to help me sleep but i just cant switch off anyone else experianced this and any advice would be greatfully recieved thanks Brian
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midwestbeth

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Re: cant sleep ??
Reply #1 - Sep 15^th, 2008 at 3:15pm

Hi Brian,

Sorry to hear you are having a hard time sleeping. I go through periods of insomnia and I can relate. Unfortunatly, I don't have any advice other than the common sense things like avoiding caffeine and waking at the same time every morning. If it becomes a problem that does not go away, you may want to give your Dr. a call.

Beth

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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: cant sleep ?? Reply #2 - Sep 15^th, 2008 at 4:54pm thanks beth i think thats what ima have to do its effecting work they reluctantly accept my cycles but not sure if they will accept this it would not be that much of a problem but i have to drive for a living thanks for your support beth PF wishes to you Brian
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tuck

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Damn this cross is heavy
!

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Gillespie , Illinois
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Re: cant sleep ??
Reply #3 - Sep 15^th, 2008 at 5:15pm

brian, sorry to hear you are having troubles. I have worked shift work my entire life,(well, since 1984 anyway), talk about crazy sleep paterns!!! there is NO way I could EVER regulate my paterns, which everyone says is a key factor in controling your CH. I have found in the past during shift changes that the only way to "bust" a goofy patern, such as insomnia, is to just bite the bullet and DONT sleep. For example, pick say, a thursday, assuming you work friday and are off sat. Thursday night dont even TRY to sleep. Rent yourself a handful of movies, buy a bunch of munchies and simply commit yourself to staying up all night! Yes,, Friday you will be in shitty shape, but,,, Friday night you should sleep like a log. DONT over sleep saturday! get up at a decent time, and maybe that will "bust" your insomnia. This remedy has worked for me. Well,,, just a suggestion. Good luck,,,Tuck

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cancer shmancer,, i get cluster headaches!

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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: cant sleep ?? Reply #4 - Sep 15^th, 2008 at 5:38pm How long before you go to bed, do you take the melatonin? Sometimes you have to take it 1.5 - 2 hours before you go to bed.
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BrianJ

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Take It Easy

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|Liverpool|England|
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Re: cant sleep ??
Reply #5 - Sep 16^th, 2008 at 2:45am

thanks tuck i will try that if nothing else works its a little hard with me having to drive for work to stay awake for 24 hours but i will try

Agostino Leyre i tke it about 1.5 befor bed it makes me sleepy just does not make me sleep i just cant switch off for some reason gonna go the doctors today see what he says

thanks guys
Brian

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PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!.

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George

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Black-Billed Magpie

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Boise, Idaho USA
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Re: cant sleep ??
Reply #6 - Sep 16^th, 2008 at 3:27am

Sounds like you have a bit of what happens to me going on, Brian. A cycle really disrupts my sleep cycle, and it always takes a few months after the thing has ended to re-enter a "normal" pattern. For me. Which doesn't involve a lot of sleep, true... Roll Eyes

It's not so much that I'm insomniac. It's more like I'm gunshy about sleeping for a while after I go out of cycle.

Best,

George

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"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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darknight

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Ever danced with the devil
by the pale moonlight?

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Re: cant sleep ??
Reply #7 - Sep 16^th, 2008 at 8:49am

Hi Brian,

Sorry to hear that ur not sleeping well.
One of my favourite past times is sleeping but since being diagnosed i find it hard to sleep.
My only help has been via my doctor who gave me some sleeping tablets that i use sparringly to catch up or just to knock me out after an attack, please be aware i am given 1 months perscription that i use over a period of 5-6 months.

May help but sorry to hear!!!

PFD TO ALL

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This is My Gift My Curse!!

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BrianJ

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Take It Easy

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|Liverpool|England|
Gender: male

Re: cant sleep ??
Reply #8 - Sep 16^th, 2008 at 11:46am

Hi guys mabey that is it George i dont know i just cant switch off i hope it dont take a few months to get backto normal 2 cycles a year lasting 6 weeks each dont leave me that many months between cycles

fingers crossed for 10 year remission but wont hold my breath Sad

the doc said he can and would give me some heavy sleeping pills but i cant take em, drive all week and on 24 hour call the week end

i think i will try upping my melatonin dose tonight from 6mg to 12mg see if that knocks me out lol

thanks for the support guys just knowing you guys are here helps me relax

PF wishes to all
Brian

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PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!.

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darknight CH.com Veteran Offline Ever danced with the devil by the pale moonlight? Posts: 188 x0\|Manchester\|Great_Britain\|\|0\|0\| Gender:	Re: cant sleep ?? Reply #9 - Sep 16^th, 2008 at 12:42pm Why dont you ask the doctor for a mild sleeping tablet (effects last up to 4hrs). They are used as a sleeping aid to stop your mind from racing and relax you into a natural sleep!! It should not effect your driving provided you take them at a reasonable hour!! Good luck SI
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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: cant sleep ?? Reply #10 - Sep 16^th, 2008 at 2:35pm thanks darknight if the melatonin at a higher dose dont work i will speak to the doctor again my doctor is the type that gives you anything you ask for but will not suggest anything its like he does not listen he just says yes he is good in that i dont have to argue but he really cant be arsed otherwise Brian
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AlienSpaceGuy CH.com Old Timer Offline Greetings from outer space Posts: 254 Northpole Gender:	Re: cant sleep ?? Reply #11 - Sep 16^th, 2008 at 5:22pm Try this: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: cant sleep ?? Reply #12 - Sep 16^th, 2008 at 5:26pm Hot, kinky, adventurous, and energetic sex, before going to sleep used to work ... (If I am remembering correctly, all those years ago) Chuck P.S. Try using both hands at once, and see if that helps.
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darknight

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Ever danced with the devil
by the pale moonlight?

Posts: 188
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Re: cant sleep ??
Reply #13 - Sep 18^th, 2008 at 4:44am

I do think Alien spaceguy is onto summit lol!!!

My Doc is quite similar if i ask for something i will useually get it. knowing more about the condition than them he is probably more willing just to accept what you say, maybe thats a good thing and you may not be understanding his actions!!

CLuster chuck you got the wrong site u want clustersexheads.com!! lol

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This is My Gift My Curse!!

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Karl Ex Member	Re: cant sleep ?? Reply #14 - Sep 18^th, 2008 at 9:51am i am thinking of you buddy, please be careful driving if sleep deprived i wouldnt want anything bad to happen.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: cant sleep ?? Reply #15 - Sep 18^th, 2008 at 11:31pm I guess I'm lucky, the cafergot will keep me awake a day or two but once the cycle ends I'm good. Probably time to see the doc and see if he can do something to reset the old clock. Good luck, sleep deprivation sucks! Guiseppi
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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: cant sleep ?? Reply #16 - Sep 21^st, 2008 at 3:27pm Thanks Guys You are all wonderful i think im finally cracking it 9mg of melatonin and cut out the cafine and im geting 5 hours or so, i can defo live with 5 hours a night. A special thanks to chuck i can always cound on your for the best advice lol PF wishes to all Brian
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Kilowatt3

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1952 Jag

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Lake Charles, Louisiana - USA
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Re: cant sleep ??
Reply #17 - Sep 22^nd, 2008 at 12:16pm

BrianJ wrote on Sep 16^th, 2008 at 11:46am:

i think i will try upping my melatonin dose tonight from 6mg to 12mg see if that knocks me out lol
thanks for the support guys just knowing you guys are here helps me relax

Brian,

Instead of increasing your melatonin dose, try REDUCING it! Believe it or not, with melatonin a smaller dose is usually more effective at helping you sleep than a larger dose. One study showed the optimum to be about 300 mcg (that's 0.3 mg), and a side effect of too much melatonin is insomnia! Go figure!

Hope this helps,
Jim

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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?

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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: cant sleep ?? Reply #18 - Sep 22^nd, 2008 at 5:00pm Thanks kilowatt3 i will try that Brian
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CH-HELL

Ex Member

Re: cant sleep ??
Reply #19 - Sep 22^nd, 2008 at 6:59pm

Hi everyone has given great advise I think most of use with ch have had this happen before, broken biological clocks. I know I cant get to sleep 90% of the time and it gets frustraighting I dont know if Im scared to go to sleep or what but even if I only slept two hours the night before I still seem to have a hard time getting to sleep. I dont know if any one had recommended benidryl (Diphenhydramine hydrochloride) not sure if thats spelled right. Its an otc antihistamine. Im sure others here are more educated than I am on this med but it doesn't seem to interact with my other meds and it helps me get to sleep, I dont recommend talking it daily but once in awhile just to get caught up on your sleep. Good luck Phil

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