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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Powerless to help.. Reply #75 - Oct 7^th, 2008 at 5:34pm Kristen... What meds. is he on.....if you've posted this before, forgive me for asking again. Some meds. can cause other problems....sometimes emotional ones and some depression. Hang in there, Sweetie....it does get better. Love & Big Hugs, Jackie
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Kristen C. CH.com Newbie Offline Posts: 19 Michigan Gender:	Re: Powerless to help.. Reply #76 - Oct 7^th, 2008 at 6:26pm Hi Jackie, He is on Lyrica and Prednisone...uugghhh...Not good. How are you doing? Talk soon! Kristen
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Powerless to help.. Reply #77 - Oct 7^th, 2008 at 6:43pm Kristen... Oh yes, now I remember. Those can cause some depression, feelings of ill will, etc. You'll be seeing Dr. Rozen soon right? Jackie
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Kristen C. CH.com Newbie Offline Posts: 19 Michigan Gender:	Re: Powerless to help.. Reply #78 - Oct 7^th, 2008 at 6:47pm Yes on Monday. Seeing another neuro tomorrow. Keep your fingers crossed!
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Powerless to help.. Reply #79 - Oct 7^th, 2008 at 8:17pm Kristen C. wrote on Oct 7^th, 2008 at 6:47pm: Keep your fingers crossed! Oh, I have been, Sweetie......good luck!! Much Love, Jackie
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thebbz Ex Member	Re: Powerless to help.. Reply #80 - Oct 7^th, 2008 at 9:15pm Quote: You'll be seeing Dr. Rozen soon right? Killer, I'm jealous. I think that would be my wish choice for neuro's, right after Goadsby. all the best thebb
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CH-HELL

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Re: Powerless to help..
Reply #81 - Oct 7^th, 2008 at 9:52pm

PF, but it has pretty much overtaken him. I am trying to get into his spirit and remind him of life and how great things used to be.

He only posted to appease me (I think). I have tried to print out and read him your postings, but he is pretty much unreachable. Please know that I appreciate all of them and hopefully Jeff will too very soon.

I keep telling him it is only debilitating if you let it be.

The side effects of the medication are a little more than he can handle. They are so ravaging on the mind and body that he doesn't feel like himself and is usually "looped" out.

Kristen dont take this the wrong way but as a supporter you need to support him, dont pressure him to do things. CH is debilitating and the point he is at right now he needs your support just be there for him, you dont have to tell him things like "its only debilitating if you let it be" this will probaly just upset him. When he gets the proper meds witch he soon will when he sees Dr. Rozen, but it takes time and different tries on other meds. When he finds the right meds and hes pf then he will be able to hear you but until then its best just to be there for him and not pressure him. Depression is a bitch and it is understandable in his case it will take some time to deal with this but it will pass.
I truely wish you both the best hang in there it does get better. If Jeff doesn't want to post but would like to talk to someone pm me and I'll give him a call. Phil

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Kristen C. CH.com Newbie Offline Posts: 19 Michigan Gender:	Re: Powerless to help.. Reply #82 - Oct 7^th, 2008 at 9:55pm We are hoping that they will listen and be more knowledgeable about CH. No one seems to really understand. Thanks again everyone! Big hugs and kisses Kristen
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Kristen C.

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Re: Powerless to help..
Reply #83 - Oct 7^th, 2008 at 10:01pm

Phil,

I understand what you're saying about not pushing him and I don't think I have.

Jeff is my life and I would not do anything to push him into a place where it upsets him. I don't say anything to him out of anger. That isn't something I said and walked out of the room. It was part of a whole conversation about our life, future and his emotional well being.

Thanks for the post.

Kristen

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It's never too late to have a happy childhood..

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thebbz Ex Member	Re: Powerless to help.. Reply #84 - Oct 7^th, 2008 at 10:01pm Dr. Rozen will understand. Dont worry. We all know what you guys are going through. You can do it. I said. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or all the best thebb
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Powerless to help.. Reply #85 - Oct 8^th, 2008 at 12:00am Remember, you have my phone numbers. Don't be afraid to call me, either one of you. Sometimes it helps to talk, one on one, to someone who truely understands where you are at. Besides, I have been told I have a good shoulder to cry on. Chuck
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Cathi_Pierce

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Re: Powerless to help..
Reply #86 - Oct 8^th, 2008 at 12:06pm

Kristen, I know you're going to do this, but just in case, please discuss Jeff's immersion in CH, and how he pretty much fears leaving home.
Right now, the beast is running his life. In time, Jeff will take BACK his life, and CH will be powerless and unable to consume him as it does right now.
SOOO glad you're meeting with Dr Rozen today. Please let us know how it goes!
Cathi Kiss

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Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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