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Devastating Blow (Read 8093 times)

JustNotRight

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Devastating Blow
Sep 3^rd, 2010 at 5:39pm

Many of you know me from this board and that I suffer from CH.

My son who is almost 22 knew what he might be in for when he got a bit older and the possibility of CH hitting him as well. He's suffered from migraines since 2 years of age. We were both being optimistic about CH and it hopefully not hitting him at all or at least until he is older.

He has had a few hits in recent years and is now convinced that some of the "migraines" he suffered as a child were CH.

Now for the Devastating Blow...My Son Failed the Beer Test.

He went to the colleges Senior night last night and had 2 beers, and he got hit with a killer CH. He worked up to telling me because as a sufferer and his mother he knew I would not take the news well. We both cried for a while and talked a lot. I told him to come here if he needs added support and will recommend his girlfriend come here too, he will need her as well.

Blessings to you all and if he does join up here I know you will all be of much help and support to him.

Mom could use a hug right now....

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Devastating Blow Reply #1 - Sep 3^rd, 2010 at 5:53pm Damnit. As a parent to two daughters.....a constant worry to me. On the other hand....what a gift.....you get diagnosed with CH, find out mommy knows the ropes...saves you a lot of wandering around blind. Love and hugs to ya mommy. Joe
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+Danny Boy+

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Re: Devastating Blow
Reply #2 - Sep 3^rd, 2010 at 6:03pm

Thats too bad. It is interesting to me though. Two beers would always set one off for me too. One beer i was ok but two would trigger a ch everytime. During a cycle that is. Really sorry about it though. Grit your teeth man and hold onto something its gonna be a wild ride. The only consolation you can give him is that this is gonna make him one tuff son of a gun. Let me know if I can do anything.

Sincerely, (your brother in pain) Angry

Dan

The great thing about cluster headaches is..... uh....uhh...

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Devastating Blow Reply #3 - Sep 3^rd, 2010 at 6:34pm As we all know the pain from CHs, it's not something you'd ever wish on anyone, never mind your own son. But he does have a mum who can give him a huge amount of help and support in how to minimise the impact of CHs. Sending a virtual hug...
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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Devastating Blow Reply #4 - Sep 3^rd, 2010 at 7:01pm I'm with Guiseppi and Mike on this one, at least he'll have a one up on most people. Otherwise, I'm sorry to hear this. I do understand what it's like to watch your kid go through hell and back. Trust me, been there, got the t-shirt. Carolyn
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Devastating Blow Reply #5 - Sep 3^rd, 2010 at 7:22pm Thank You All!!! I'd say more, but don't want to wind up in tears again. Thank you all again.
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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Devastating Blow Reply #6 - Sep 3^rd, 2010 at 8:27pm Has been our biggest fear. Everytime our youngest complains about a headache we grill her for details. So far we've been lucky. Hugs...
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Devastating Blow Reply #7 - Sep 4^th, 2010 at 8:13am Christy I pray you stay lucky with your children!! Thanks much for the virtual hugs, much needed right now. My son has been an awesome supporter and now for him to be hit with definite CH is just heartbreaking.
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Devastating Blow Reply #8 - Sep 4^th, 2010 at 9:25am QnHeartMM wrote on Sep 3^rd, 2010 at 8:27pm: Has been our biggest fear. Everytime our youngest complains about a headache we grill her for details. So far we've been lucky. Hugs... Change her wording to my only child, and there's my life, too. So sorry Ginger.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Devastating Blow Reply #9 - Sep 4^th, 2010 at 11:55am ((((Hugs))))
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Devastating Blow Reply #10 - Sep 4^th, 2010 at 3:34pm Let me add that I do hope he's going to be formally diagnosed - with all the rule out tests necessary to . . .well rule out more sinister stuff. Just cuz it walks and talks like CH may not be enough for it to actually be CH. Better safe than sorry.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Devastating Blow Reply #11 - Sep 4^th, 2010 at 3:37pm The Wench makes a great point. Lord knows you know the symptoms as well as any doctor.....but always best to get the basic tests just to for sure rule out the nasty stuff. Joe
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Devastating Blow Reply #12 - Sep 4^th, 2010 at 4:56pm Oh yes he will be properly diagnosed, I'll make damn sure of that! Thanks again to you ALL, I don't know where I'd be without you!!
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deltadarlin

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Re: Devastating Blow
Reply #13 - Sep 4^th, 2010 at 7:07pm

Ginger,
I'll say this and hope like hell it doesn't turn out to be true, even after diagnosis, *mama* might still have hell with the doctors. Even after Sarah was diagnosed with endometriosis, we played hell with the doctors wanting to try this and that and finding out that each new treatment failed miserably.

There are times that I still get pissed off at her past doctors.

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JustNotRight

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Re: Devastating Blow
Reply #14 - Sep 5^th, 2010 at 9:24am

Ah I know the Doctor battle well, have had to fight it for myself and my kids on many occasions. At least I don't have to deal with the Doc we dubbed "Dr. I Don't Know" any more. I swear every time we went to this moron for a problem all he'd say is "I don't know" and leave it at that. Just before I fired his ass, I told him it was his job to know or find out if he didn't know, not just to leave his patients hanging like that.

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DennisM1045

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Re: Devastating Blow
Reply #15 - Sep 5^th, 2010 at 8:43pm

I'm so sorry Ginger. My Dad had CH. With 10 kids I'm dreading, but prepared, for one of mine to get them too.

My 28 y/o had a couple of hits this past year but they thankfully went away after just that. I just know I'll be ready when he is. But that doesn't make you feel any better about seeing that fear and pain in your own childs eyes.

Show him the ropes you've learned to swing from so well. Show him that CH doesn't define who he is and that a full life awaits him.

((((HUGS))))

-Dennis-

Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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shellcory

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Re: Devastating Blow
Reply #16 - Sep 6^th, 2010 at 11:48pm

Hi Ginger,
You are a very strong lady Smiley

who has offered support to so many including myself, your son is lucky to have such an educated, compassionate and caring mum to help him through this! Smiley

I'm sending cyber hugs Smiley

your way, I understand your heart breaking, for the beast to find your baby after the battles that you've already had with him is devastating! Smiley

Sending my prayer's to you and your son and wishing you both pain free times!

Regards Shell Embarrassed

« Last Edit: Sep 6^th, 2010 at 11:57pm by shellcory »

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shellcory CH.com Junior Offline I Love CH.com! Posts: 71 Victoria, Australia Gender:	Re: Devastating Blow Reply #17 - Sep 6^th, 2010 at 11:54pm DennisM1045 wrote on Sep 5^th, 2010 at 8:43pm: I'm so sorry Ginger. My Dad had CH. With 10 kids I'm dreading, but prepared, for one of mine to get them too. Dennis, you have been a very busy man! I take my hat off to you, to be dad to so many and still have fight for the beast is an amazing achievement! Regards Shell
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JustNotRight

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Re: Devastating Blow
Reply #18 - Sep 9^th, 2010 at 8:10pm

shellcory wrote on Sep 6^th, 2010 at 11:48pm:

Hi Ginger,
You are a very strong lady Smiley

who has offered support to so many including myself, your son is lucky to have such an educated, compassionate and caring mum to help him through this! Smiley

I'm sending cyber hugs Smiley

your way, I understand your heart breaking, for the beast to find your baby after the battles that you've already had with him is devastating! Smiley

Sending my prayer's to you and your son and wishing you both pain free times!

Regards Shell Embarrassed

Thanks Heaps Shell ! Smiley

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An eye for eye only ends up making the whole world blind.
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his wife CH.com Old Timer Offline The sweetest sound is my children's laughter Posts: 271	Re: Devastating Blow Reply #19 - Sep 9^th, 2010 at 10:42pm You and your son are in my thoughts...
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Devastating Blow Reply #20 - Sep 10^th, 2010 at 4:55pm Thank You His Wife much appreciated!
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wimsey1

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Re: Devastating Blow
Reply #21 - Sep 15^th, 2010 at 8:40am

Ginger, I know (as do so many here including yourself) the pain that comes when a child of ours (or any child) is suffering. I have 7 children, one with a rare genetic disorder. We suffer for and with each and every child every day. One of my 7 shows some signs of clusters (a female at that, and we all know women don't get CHs) and it's awful for her. Like you, I will use my collected wisdom and experience to help her much quicker than I received. Good luck, and God bless! lance

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his wife CH.com Old Timer Offline The sweetest sound is my children's laughter Posts: 271	Re: Devastating Blow Reply #22 - Sep 15^th, 2010 at 8:32pm Hey Ginger, How you holding up? It's been almost two weeks, how's your son doing?
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JustNotRight

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Re: Devastating Blow
Reply #23 - Sep 16^th, 2010 at 6:16am

Lance: Thank you, your supportive words are a blessing.

his wife: We are doing ok, but have a lot going on right now. I am sick as a dog and have to work through it due to call offs from CH, I have one hell of a cold that I think has turned into a sinus infection. Oh JOY! Angry

My son is fine keeping busy with college and work and avoiding all triggers.

Thanks for asking! Wink

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An eye for eye only ends up making the whole world blind.
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If you are going through hell...Just keep going

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his wife

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The sweetest sound is
my children's laughter

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Re: Devastating Blow
Reply #24 - Sep 17^th, 2010 at 10:08am

JustNotRight wrote on Sep 16^th, 2010 at 6:16am:

his wife: We are doing ok, but have a lot going on right now. I am sick as a dog and have to work through it due to call offs from CH, I have one hell of a cold that I think has turned into a sinus infection. Oh JOY! Angry

Like you don't have enough to deal with! Here's a cyber hug Smiley

and hope that you're well soon! Take care.

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