We are muddling through and thank you very much for your sincere concern.  I know you guys are here and I have leaned on you all a few times (ok that's may be putting it a bit mildly  )

Ty (my son) and I have talked a lot about CH and he has lived with me for all the years that I've had it so he knows the score.  I have shared what knowledge I have and have pointed him and his girlfriend here if they feel they need it. 

He just got ins. through his work (new job) so when my appointment with Dr. Rozen finally comes around (still on waiting list) I am going to take Ty with me and try to set up his appointment then, we want to get a foot in the door and face to face with Doc and both of us first.  In the mean time Ty is episodic with long PF in between hits so far and heeding his mom's advice about triggers.  My Dad even piped up with a few  which he doesn't do often, Dad's more the strong silent type 

There is a lot more going on as well but I won't get into all that now suffice it to say my sons g/f's parents are $*&^!*(% NUTS!  Here's a quote from my FB page as to that Quote:
...

As you may have seen in my other posts I have been sick for 3 weeks now, with what started out as a nasty cold.  It went rogue on me and turned into the mother of all sinus infections and I finally got meds for it today.  Die sinusitis die !

Anywhoooo I think I've rambled enough for now 

Thank you all so much for your thoughts and prayers, they are very much appreciated!