I am 39 and was diagnosed with CH about 9 years ago. I got them in the spring time each year for the first few years. I was prescribed the various common medications used to try and slow the beast down, along with several different pill forms of triptans. The first few years I only got about 2-3 headaches a week.....never more than one a day and NEVER in the middle of the night while I was sleeping.

About 3-4 years after I was diagnosed I read about mushrooms/psilocybin having tremendous results busting the headache cycles and sending sufferers into extended periods of remission. I decided to give it a shot and microdosed a couple mushroom caps each night before bed. Immediately the cycle was busted and the headaches were stopped in their tracks. I still got shadows for the remainder of the cycle but never more than that. After the first use my remission period was extended to 18 months. I did it again the next cycle. Same result. Next cycle same result. I was still seeing my neurologist and getting triptans prescribed but I rarely if ever used them. I kept them lying around the house or in my vehicles for when a cycle started unexpectedly and I didn't have any access to mushrooms......which actually happened during my last cycle in Summer of 2014.

That summer was hot and I could not find any mushrooms so my PCP prescribed me Verapamil. I'd tried a dozen various prescriptions over the past 8 years so I wasn't real optimistic. Surprisingly, after about a week the headaches stopped! Same pattern as the mushrooms.....still got shadows but the beast never matured and went full blown. Nothing ever higher than a 3-4 on a 1-10 pain scale....and I can live/function with a 3/4. I rode the cycle out that summer and come Fall 2014 the cycle ended.

Fast forward to Spring of 2016. I felt some shadows around March or April and I knew that it was probably time for my next bout with the beast since it had been almost two years. I happen to run across someone who had LSD (hadn't even seen that stuff since high school) and I'd actually read that LSD had higher/better results than mushrooms. So I got some and took half one night. Headaches never went full blown.......until about 3 weeks ago. Thinking maybe the LSD just didn't work for me I quickly found some mushrooms and started my microdosing protocol that had worked to perfection for me 3-4 times over the past 6+ years. Except this time.....it has not worked. I've eaten a whole quarter ounce of mushrooms in the past month.....didn't phase the beast one bit. I called my PCP 4 weeks ago and got her to refill my Verapamil. I've been on it for 22 days.....it has not worked.

I have gotten two headaches over the past couple weeks that have awaken me in the middle of the night. That has only happened once in the past 9 years.....it's now happened twice in the past 2 weeks. I got two CH in one day last week.....that had NEVER happened to me before.

Last week I started Batch's D3 regimen and although I'm only on Day 8 I can not tell any difference in my CH frequency or intensity. I also started taking 10mg of Melatonin at night. My neurologist put me on Neurotin last Thursday.......I can not tell any difference from ANYTHING! I woke up at 8am today with a CH and I took a Treximet pill.....it DID NOT work! Well....the pill worked because I felt that fuzzy tired, lethargic feeling those triptans give you when they kick in, but the CH did not cease. That has NEVER happened to me before. I try not to take triptans because I know they can do more harm than good but I had stuff I needed to do today so I took one....and it didn't work. Nothing has seemed to work this time and to make matters worse the CH seem to have become more erratic and aggressive. Is this normal? Does this thing adapt to prior treatments? Have you guys had something work one cycle but not the next? I'm kind of at the end of my rope here and I do know what else to do. NOTHING has worked this time.......not even the triptans.

Sec,

Sorry to hear you're in trouble.

Stick with the D3 and follow the loading doses to the letter. It might take a bit more than 11 days but it will be worth it.

Did you have your blood 25(OH) D level checked before you started?

Peter.

JC11 wrote on Jul 19^th, 2016 at 3:22pm:


I had never used LSD until this spring. Always used mushrooms the past 5-6 years and they worked like a champ. Every. Single. Time. Until now...

Guys-

I think I stumbled on to something I wanted to run by everyone. Now, this may have been post somewhere else before, but as I stated earlier I'm a 9 year sufferer and if you're like me I've read about every single page on the internet about this disease trying to find something, anything I could do to treat this beast. That's how I came across the mushroom treatment years back. I have never seen this post or suggested anywhere in 9 years on any site I've been to. Anyway here is the skinny:

Started the bout with the beast about 3 plus weeks ago and as I stated in my earlier posts mushrooms did not work...small microdose of LSD did not work. Verapamil has not worked nothing. I hate taking the triptans, but I hate trying to white knuckle thru a headache as well. The past couple of weeks I've been mixing a sumitriptan shot with Treximet pills. I'm self employed and most of the headaches have came in the middle of the day when I've been really busy and can not afford to take a day or rest of the day off. I do feel like since I have taken a combined total of 4-5 triptan doses the past couple weeks the frequency of the headaches have increased.

Anyway, my girlfriend and I bought a new house on July 1 and I have not cut the grass since we moved in. I live just outside of Birmingham, AL so it's hot as Hades down here. I was cutting the grass yesterday around 2pm and just as I got about 90% finished I felt the beast coming on. Angry that the beast was going to interrupt the yardwork my new house desperately needed, I quickly finished just cutting the grass for about 10 minutes as the beast grew stronger, I finished up then ran inside, popped a Treximet and got into the shower to clean up before I had to lay into my bed and ride this out before the Treximet kicked in....usually about 30 minutes for me.

Since I was so hot I got into a cold shower....not a cool shower but COLD....washed up, got out and crawled into my bed. Less than 5 minutes after I got out of the shower the beast went away.....it went away within 12-15 of taking the Treximet which is way too quick for the pill to have kicked in and started working. I can always tell when the triptans hit because it gives me the light headed lethargic feeling which also makes me worthless the rest of the day.

My GF came in to check on me and I told her that the headache went away before Treximet kicked in. She's a registered nurse at UAB Hospital in the bone marrow ward. She said that the ice cold shower probably caused vasoconstriction in my body which is similar to what the triptans do. Anyway beast was completely gone and about 15 minutes after that I felt the triptan kick in.

This morning, I was awaken by the beast (3rd time this cycle the beast has awaken me in the morning) so I quickly got up and jumped into a cold shower. Being that I was not hot and sweaty this morning, that shower was not very pleasant....it was so cold I was in there squealing like a little girl. I toughed it out for as long as I could while the beast inside was growing. I got out, dried off and crawled back into the bed. Low and behold within 3-5 minutes the beast was GONE!

Maybe there is something to the vasoconstriction of a cold shower. I've never seen or read about this anywhere before in 9 years. Maybe it's old news. Has anyone ever heard of this? Tried this? Or had any success with this? I really hope this works with some consistency. I do not like taking those triptans and would love to find something that works, especially something natural.

Hi SEC,
Yeah! When it comes to having a shower to get some relief from the  , some folk like it hot, and some folk like it cold.

Hoppy

Hi Slacker,

the fish oil below is the one Batch recommends and takes, it is 1200mg/softgel, so total daily dose is 2400mg.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

I see no harm in taking the one you bought until you finish the bottle. Omega 3 helps regulate cholesterol levels.
You'll still be consuming less than 2 grams of omega 3, which is the max recommended daily dose.

I'm no expert so hopefully someone else will give their opinion.
I would take it if i was given a bottle of it though.

All the best

Hey Slacker,

I take 3,000 mg daily.  No problems.

Peter.

Thanks Peter and thierry.

Coreyn,

Not a cure , but thanks to Batch's generous work, a very healthy and, in the main, effective preventative.

It's great that you are already getting the benefits. Two things you need to do now:

Firstly, get your blood 25OH (D) level checked with your Doctor. Your target for a pain free state is 80 ng or 200 nmol, depending on the scale used in your country.  Let us know how you get on.

Secondly, don't ever stop taking the D3 Regimen, at the maintenance dose, even when you're not in cycle. It has loads of other health benefits (see the Vitamin D Council website).

Best,

Peter.

adamv wrote on Aug 9^th, 2016 at 4:57pm:


A lot of us use this:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

One per day until the bottle runs out.

Thank you both for your helpful answers!  Should get this going in the next week, fingers crossed, will share my findings and do the survey thereafter.