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Anti-Inflammatory Vitamin D3 Regimen and Survey (Read 243290 times)

slacker032 CH.com Old Timer Offline Posts: 325 Los Angeles, CA Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #550 - Aug 22^nd, 2016 at 4:59pm Great to hear!
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Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #551 - Aug 22^nd, 2016 at 5:21pm Great post....great news.
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thierry

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #552 - Aug 22^nd, 2016 at 7:37pm

Hey 976,

nothing makes me happier than to read posts like yours.
Sooo happy that you are pain free and even better still, without the intervention of big pharma.
Batch and his regimen have been live savers -literally- for lots of us.
Keep taking the regimen for life. It has a string of other benefits too -see link-
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Gaz Jones

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #553 - Aug 24^th, 2016 at 6:00am

Hi Everyone
After 2 year absence the beast returned a couple of weeks ago and started to give me pounding. I am getting 1 - 2 attacks during the day and 2 - 3 during the night. The night attacks were around the 7-8 scale.
I have had a cold and had taken antibiotics for a minor bacterial infection so I assumed this was why the beast had broken through my usual D3 regime
I immediately upped the dose of D3 and had a look at the latest information from Batch on the AI regime and noticed he had dropped the calcium and added K2 and Vit B complex to the mix. It took me a while to get these additions but in the meantime I was taking 50,000UI D3, Centrum Men Muti- Vits (can't get Kirkland here in Romania), Omega 3 and 500g of magnesium.
After about 5 days the beast seemed to be getting under control with shorter and less intense attacks but I was still getting hit and as I am a hayfever sufferer and live a rural area of Transylvania and after reading Batch's latest advice I also added a first generation anti-histamine to the mix just to be sure.
I also received the B complex and K2 and started taking them, since then I have seen an increase in pain and length of the hits over the last few days, this was a bit worrying because normally the D3 should be reducing / stopping my attacks by now.
Last night I had a really bad night without any sleep, one hit after another as soon as I closed my eyes.
Today I have had a good look at my regime over the last couple of weeks and tried to understand what is going wrong, the headaches have increased since I started taking the anti-histamines, B complex and the K2, so obviously I looked at these first and I think I may have found the problem.
The B Vit complex is made from Yeast and plant POLLEN!
Obviously I did not realize this, and I am convinced that I may have been putting a concentrated form of something I am allergic to into my body and although I have no outward symptoms of allergy it is increasing my histamine levels and sucking up the healing power of the D3
I am going to stop the Vit B complex until I get some that does not contain pollen (and yeast for that matter as I am not sure that is helping to much) and continue to load with D3 and take the anti-histamine to try and undo the damage that I think I may have caused
If anyone has any further advice it would be very much appreciated, if not I will let you know how I go after dropping the Vit B

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976_Clusters

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #554 - Aug 24^th, 2016 at 8:40am

Hey thiery,

Thanks a lot for the added info.

It feels so weird (in a good way) that I'm not getting ANY hits anymore.

My family is stunned. I used to act like there was a demon possessing me when I got a bad hit, which was multiple times a day.

And the thoughts racing through my head were not nice.

I would ask anyone new I met within a couple minutes if they could get any shrooms or even dope, I just pretty much gave up on suffering through the hell it brings.

I actually contemplated selling my small & large oxygen tanks & equipment.

I basically started an account here to thank everyone for their input in coming to this realization about the D3 regimen, especially Batch. What a headache Hero 10/10.

I never got a "seasonal" break like some cluster headachers get, mine were constant all year long, but I was wondering if maybe the fact that some people get seasonal breaks was because of maybe extra sun exposure which would give them more vitamin D which probably isn't enough D, but could it be the reason some people got seasonal relief? Just a theory.

Can someone point to the survey to take after my 30 day run? Sorry I can't seem to find it.

Thanks a million everyone.

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slacker032 CH.com Old Timer Offline Posts: 325 Los Angeles, CA Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #555 - Aug 24^th, 2016 at 10:28am Gaz Jones wrote on Aug 24^th, 2016 at 6:00am: The B Vit complex is made from Yeast and plant POLLEN! Which vitamin B-complex were you taking?
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Kutsuki

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #556 - Aug 24^th, 2016 at 4:03pm

Hello again, the beast is back. Since last time, I started the Vitamin D3 regimen and it's cofactors.

Before the attacks restarted, I did lower my Vitamin D intake to 5000IU on weekdays. On my last blood test was a month ago and I came in at 44.1ng/mL for vitamin D.

Since the attacks have restarted, I immediately bumped my Vitamin D intake to 20,000. I'm 3 days in with this and I'm suffering through an attack as I'm writing this Sad

Sad

My cluster headaches are episodic, it happens daily or once every other day then it goes away for a year or two if I'm lucky. My neurologist prescribed me 100mg Sumatripans and wants me to take them until my episode is over.

The only changes I have made recently was talk to an Allergist about my hay fever. I wanted to start taking the injections to become desensitized to pollen and other environmental effects. I also got new glasses.

Any thoughts or suggestions welcome! Thanks again and best of luck to everyone else suffering.

« Last Edit: Aug 24^th, 2016 at 4:07pm by Kutsuki »

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Batch

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #557 - Aug 24^th, 2016 at 4:37pm

Hey Kutsuki,

I would start a modified 2-week vitamin D3 loading schedule: 50,000 IU/day vitamin D3 for 7 days then drop back to a maintenance dose of 10,000 IU/day vitamin D3.

Your 5,000 IU/day weekday dose of vitamin D3 was clearly too low to provide a therapeutic response... The allergy made that response impossible.

Accordingly, in addition to the modified vitamin D3 loading schedule, I would start a week to 10 day course of Benadryl (Diphenhydramine HCL) asap to treat the allergic reaction.

Allergies create a flood of histamine. When histamine reaches the trigeminal ganglia it stimulates the release of calcitonin gene-related peptide (CGRP). Several studies have found CGRP serum concentrations elevated during the pain phase of migraine and cluster headache.

It gets even worse... CGRP in turn stimulates the production of more histamine. This results in a circular, self-perpetuating, perfect storm CH headache that will continue unabated until the reactants are consumed at which point the CH ends... for the moment.

As long as the allergy continues, the CHer will be refractory to nearly all forms of CH intervention...

Fortunately, there's a relatively simple solution. Benadryl (Diphenhydramine HCL.) This is a first generation antihistamine that passes through the blood brain barrier to block H1 histamine receptors throughout the brain and in particular, the trigeminal ganglia where CGRP is produced. Second- and third-genertation antihistamines cannot do this so will be less effective for CHers.

Blocking the H1 histamine receptor stops the circular, self-perpetuating perfect storm and allows the vitamin D3 in the anti-inflammatory regimen to do its thing to prevent CH through genetic expression.

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Kutsuki

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #558 - Aug 24^th, 2016 at 4:46pm

Batch wrote on Aug 24^th, 2016 at 4:37pm:

Hey Kutsuki,

I would start a modified 2-week vitamin D3 loading schedule: 50,000 IU/day vitamin D3 for 7 days then drop back to a maintenance dose of 10,000 IU/day vitamin D3.

Your 5,000 IU/day weekday dose of vitamin D3 was clearly too low to provide a therapeutic response... The allergy made that response impossible.

Accordingly, in addition to the modified vitamin D3 loading schedule, I would start a week to 10 day course of Benadryl (Diphenhydramine HCL) asap to treat the allergic reaction.

Allergies create a flood of histamine. When histamine reaches the trigeminal ganglia it stimulates the release of calcitonin gene-related peptide (CGRP). Several studies have found CGRP serum concentrations elevated during the pain phase of migraine and cluster headache.

It gets even worse... CGRP in turn stimulates the production of more histamine. This results in a circular, self-perpetuating, perfect storm CH headache that will continue unabated until the reactants are consumed at which point the CH ends... for the moment.

As long as the allergy continues, the CHer will be refractory to nearly all forms of CH intervention...

Fortunately, there's a relatively simple solution. Benadryl (Diphenhydramine HCL.) This is a first generation antihistamine that passes through the blood brain barrier to block H1 histamine receptors throughout the brain and in particular, the trigeminal ganglia where CGRP is produced. Second- and third-genertation antihistamines cannot do this so will be less effective for CHers.

Blocking the H1 histamine receptor stops the circular, self-perpetuating perfect storm and allows the vitamin D3 in the anti-inflammatory regimen to do its thing to prevent CH through genetic expression.

Take care,

V/R, Batch

Thank you very much for your fast response. I will give this a try. Do you recommend trying the allergy immunotherapy where you get shots of the things you're allergic to until you become allergy free? or to avoid this?

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Batch

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #559 - Aug 24^th, 2016 at 5:36pm

Kutsuki,

Depending on the type of allergy immunotherapy, you may be given a weak form of the allergen(s) to help desensitize your immune system to the particular allergen. This process will create an allergic reaction albeit hopefully mild... That said any immune response will trigger the release of histamine so it will likely affect the capacity of vitamin D3 to prevent your CH.

Accordingly, I suggest just the Benadryl (Diphenhydramine HCL) for now. Once you have your CH under control and have been pain free for at least a month, then go in for the allergy immunotherapy.

Hope this helps. Check your PM InBox for more information.

Take care and please keep us posted.

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Gaz Jones

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #560 - Aug 25^th, 2016 at 1:45am

slacker032 wrote on Aug 24^th, 2016 at 10:28am:

Gaz Jones wrote on Aug 24^th, 2016 at 6:00am:

The B Vit complex is made from Yeast and plant POLLEN!

Which vitamin B-complex were you taking?

Natural Vit B Complex from Dacia Plant.
My fault really, I went into a health food / herbalist shop here in Sibiu and asked them for Vit B complex and K2 vitamins. They didn't have any in stock so I asked them to order me some to pick up later, they did ask me which type of Vit B complex I wanted and I told them I wanted a good brand in the higher cost range so I didn't get rubbish. Based on the name of the product it is a Romanian brand, I am pretty sure the lady in the shop thought that this product was the best as it is all natural, it is made up from yeast and concentrated plant pollen. I have researched it a bit more and it is definitely not recommended for hayfever sufferers.
Anyway, since dropping the Vit B pills I have seen a significant improvement in the intensity and duration of my attacks already. Last night I had 3 attacks but all of them on the KIP 3-4 and none of them lasted longer than 15 minutes, I am going to continue on 50,000 UI of D3 per day + co-factors and antihistamine until the weekend and see if I can reduce the attacks further and then drop down to 20,000 UI.
I am in the US next week on a business trip so I will pick up the Vit B 50 that others here have recommended and start to take them.
I am very motivated to get PF by the weekend because I really don't want to do a transatlantic flight with the beast hanging over my head

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slacker032 CH.com Old Timer Offline Posts: 325 Los Angeles, CA Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #561 - Aug 25^th, 2016 at 1:52am Gaz - Yea, that natural vitamin B supplement sounds like bad news. The Nature's Plus B-50 should work out better for you.
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merle64

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #562 - Aug 25^th, 2016 at 11:17am

55 year old husband has suffered from CH since he was 30. Tried everything-- but has found complete relief from a low-histamine diet. Just found out our 32 year old son has been getting cluster headaches for the last two weeks, and as debilitating as these headaches can be, we want to help. In addition to the low-histamine diet, could you please share the vitamin regimen again? I've been searching through the posts, but haven't found the original recommendation? Thank you so very much!!

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Peter510

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #563 - Aug 25^th, 2016 at 12:11pm

Merle,

Welcome. We just love supporters here.

Has your son had a formal diagnosis from a Primary Headache Specialist? If not, he should get checked out as soon as he can.

Although his father suffered, he must eliminate all the other primary headache conditions that can mimic Cluster Headache. Only then can he feel confident about treatment.

In the meantime, here is the information on Batch's D3 regimen that you asked for.

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Section 2 is most relevant to you.

Keep us posted.

Peter.

« Last Edit: Aug 25^th, 2016 at 3:03pm by Peter510 »

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Gaz Jones

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #564 - Aug 26^th, 2016 at 4:38am

On day 6 of my D3 loading now with 50,000 UI of D3, multi vits, mag, K2 and 2 antihistamines per day
I got hit with 1 Kip 7/ 8 last night around 10pm that lasted for around 30 minutes which was pretty bad but got a reasonable nights sleep
I was woken twice with some twinges which I could not shake while lying down (1 at 12.15am and another at 5am) but as soon as I sat up and took a few deep breathes they disappeared. This is a new one on me, they felt like the beast was about to break free while I was lying down but as soon as I sat up and breathed deeply they disappeared and was able to go back to sleep straight away.
I am also getting consistent shadows during the day that don't go anywhere but I am not sure if these CH related or due to other factors, tiredness, computer use or even the anti-histamines I am taking.
I get the feeling I am on the cusp of the PF zone but just need something to push me over the line.

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pattik

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #565 - Aug 26^th, 2016 at 10:23am

Gaz,

Your description of your current CH behavior is pretty similar to what I experienced the first time I started the D3 regimen at the beginning of a CH episode. The episode wasn't knocked out completely, and I had low level all day pain. Sometimes it will even switch sides. All in all, fairly manageable. I stay on the regimen year round now. When an occasional attack manages to break through, it's mild enough that a low dose sumatriptan tablet will stop it in its tracks. If you're episodic, you may have to put up with the strange CH behavior for the duration, but it will likely be much less intense.

~Patti

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #566 - Aug 26^th, 2016 at 2:35pm

I tried adding Benadryl, so far I am 1 day PF. Hopefully this keeps up. I hope it was the allergies that are causing the beast to come back and I hope it was simply this easy fix.

Also, I have been using the D3 regimen for a while now. I have been having issues with constipation so to remedy that I added more Fiber to my diet. I don't have the constipation issue anymore but now I am having problems with diarrhea. I have tried changing my diet to all sorts of different food and I am still consistently getting diarrhea. Are there any cofactors I am not getting enough of? Any advice would be great, thank you very much.

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Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #567 - Aug 26^th, 2016 at 2:56pm Mutsuhito, What type of magnesium are you using and what dose? Peter.
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Kutsuki

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #568 - Aug 26^th, 2016 at 3:42pm

Peter510 wrote on Aug 26^th, 2016 at 2:56pm:

Mutsuhito,

What type of magnesium are you using and what dose?

Peter.

If you were referring to me, it's magnesium glycinate at 400mg. I've tried magnesium citrate to see if that would help with my problem but it doesn't.

I think it might be related to the brand of Vitamin D3 I might be taking. I was using my generic brand from my local wegmans super market. Any Vitamin D3 brands you recommend?

« Last Edit: Aug 26^th, 2016 at 3:45pm by Kutsuki »

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Peter510

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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #569 - Aug 26^th, 2016 at 4:04pm

Kutsuki,

My apologies about the error in your name, it was due to predictive text and I overlooked checking before I posted.

I was going to suggest Citrate if you had been using Magnesium Oxide. You could also try Magnesium Malate.

The D3 brand I use is "Healthy Options", which you can get on EBay.

Best regards,

Peter.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #570 - Aug 26^th, 2016 at 10:54pm Great that it is working for you and so quickly too. Long may it continue.
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adamv CH.com Newbie Offline I Love CH.com! Posts: 12 USA Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #571 - Aug 27^th, 2016 at 5:49pm Launching day 1 today of the regimen...fingers crossed for tolerance and results!
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Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #572 - Aug 27^th, 2016 at 6:01pm Best of luck. Keep us posted. Peter.
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slacker032 CH.com Old Timer Offline Posts: 325 Los Angeles, CA Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #573 - Aug 28^th, 2016 at 1:31pm Do most of you guys take extra Zinc, Boron, Vitamin A and Calcium supplements or does the Kirkland Mature Multi suffice?
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Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: Anti-Inflammatory Vitamin D3 Regimen and Survey Reply #574 - Aug 28^th, 2016 at 2:28pm Hey Slacker, I just use the Kirkland as recommended by Batch. I do take extra Vit C, but that's a habit left over from my smoking days. If you're a smoker you don't absorb Vit C very efficiently. Best, Peter.
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