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Anti-Inflammatory Vitamin D3 Regimen and Survey (Read 195973 times)
DebDraws
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #900 - May 3rd, 2022 at 10:37am
 
In my latest bout that started about 2 weeks ago, I started following the updated D3 regimen last week.  It definitely was reducing my nighttime headaches from 4-5 per night to 2 mild ones.  My doctor then did start me on a prednisone taper soon after and that fully knocked them out. Iím about halfway through the prednisone treatment and still taking the D3 regimen but have tapered D3 back down to maintenance dose.  Iím curious what will happen when the prednisone taper is finished. I understand that some people get a rebound cycle.

I also wanted to report that the GammaCore worked pretty well to abort nighttime headaches in a couple of minutes. However, I did not see that it was a good preventative.

Just sharing my experience in case it might help somebody else.

The most frustrating thing is the long waiting list to see neurologists in our area, especially those with headache expertise.  Angry Angry
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Batch
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #901 - May 3rd, 2022 at 3:01pm
 
Hey DebDraws,

Thank you for the update on your experience with the anti-inflammatory regimen CH and MH preventative treatment protocol.

From your description of the decrease in frequency and intensity of your CH after starting vitamin D3 and cofactors, it appears to be working as expected.† †The complete cessation of your CH following a start of prednisone taper is also very interesting and to be expected.

Both vitamin D3 and prednisone are anti-inflammatory mediators.† Of the two, prednisone is the more potent anti-inflammatory mediator, but it is also a double edged sword.† On one hand prednisone "works" to decrease inflammation, but on the other hand, it is only a temporary "fix" as it carries problems with continued/long term use, which is why it's prescribed in a short-term tapering dose.

That the prednisone taper stopped your CH is a clear indication your CH are associated with inflammation from one or more sources.† What will happen when the pred taper is complete will depend on your 25(OH)D3 serum concentration and its capacity to control inflammation.† †

Vitamin D3 and the cofactors have the capacity to reduce the expression of Calcitonin Gene-Related Peptide (CGRP), other neuropeptides like Substance P (SP), Vasoactive Intestinal Peptide (VIP) and Pituitary Adenylate Cyclase-Activating Peptide (PACAP).† Vitamin D3 also down-regulates a cocktail of immune system inflammatory mediators that include histamine, cytokines, chemokines and growth factors released by the immune system's Mast Cells as illustrated in the following graphic.

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After more than 11 years starting thousands of CHers on this treatment protocol, I'm of the opinion that as long as you continue following it with a vitamin D3 maintenance dose of at least 10,000 IU/day plus the cofactors, the odds are very high you will have your CH under control and experience CH pain free bliss.

Take care and please keep us posted.

V/R, Batch
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« Last Edit: May 3rd, 2022 at 3:05pm by Batch »  

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DebDraws
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #902 - May 3rd, 2022 at 3:31pm
 
Batch, I really appreciate your response and it somewhat confirms what I suspected myself. This part especially got my attention:

That the prednisone taper stopped your CH is a clear indication your CH are associated with inflammation from one or more sources.  What will happen when the pred taper is complete will depend on your 25(OH)D3 serum concentration and its capacity to control inflammation.   

It was just a coincidence that I had my D3 levels tested late last week as part of annual thyroid checkup. Iím still in what you would consider the moderate range. So Iím not entirely sure Iím gonna back it all the way down to maintenance just yet. Maybe somewhere between the 50 and 10 levels. Do you have any thoughts on that ?

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Peter510
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #903 - May 3rd, 2022 at 3:44pm
 
DebDraws,

Thanks for giving your feedback on the gammaCore. Youíre absolutely right, itís not much of a preventative, but it works very well, for me, as an abortive.

It also has the advantage of being very portable and discreet, and opens up your options regarding a social life.

Some sufferers often reduce or stop their socializing because they donít want people to see them during an attack. GammaCore is a good option in social settings, and indeed, in work settings too.

Stick with the D3 Regimen, and, like me, your gammaCore device should become your back-up abortive option.

Peter.

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DebDraws
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #904 - May 3rd, 2022 at 4:37pm
 
Thank you Peter.† I agree 100% with your thoughts on the GammaCore.† Itís great that itís very portable and I would likely not need it that often. But when you do need it, itíll be great to have it right there to grab and use.† Itís amazing the new bag of tricks that evolve over time as we learn more about cluster headaches.

This is always been such a wonderful community to provide help whenever folks find themselves seized by the beast.  To me, the D3 regime is a real game changer for many.
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« Last Edit: May 3rd, 2022 at 4:38pm by DebDraws »  
 
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The Thinker
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey
Reply #905 - May 25th, 2022 at 10:56pm
 
Hello all.

If you've followed the Vitamin D Anti Inflammatory Regimen you may find the most recent Podcast with Pete Bactcheller at the link below.

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In this Podcast we discuss Vitamin D therapy as well as mAbs, monoclonal antibody therapies such as Emgality.

We discuss what mAbs are and what synergies they have with the Vitamin D Anti Inflammatory Regimen in respect of CGRP, calcitonin gene related peptide.

I take the opportunity to ask Pete lots of other questions in regards these therapies and hope the information is of value to you.
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Radar63
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Re: Anti-Inflammatory Vitamin D3 Regimen and Survey -
Reply #906 - Jun 24th, 2022 at 7:09am
 
Hi all,
I live in the UK and had some issues obtaining the soluble 50000iu capsules.† I have now found a more reliable source which is GreenVits.eu .† I am not an employee or affliated with this company but they are now my source of the Bio Innovations 50000 iu soluble capsules.
Kind regards
Ian
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« Last Edit: Jun 24th, 2022 at 7:10am by Radar63 »  
 
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