Thanks batch, Mike. I have read about the D3 regimen before,  but I had (so far) been extremely lucky. My cycles were 2 months tops, 1 hit a day max, and 240mg verapamil worked great except for the occasional sumavel aborted breakthrough hit.

One cycle ago I had to up it to 360mg verapamil, otherwise same.

Fast forward to now, I moved to Seattle and dropped the ball with finding a neurologist, since I had a stash of meds anyway. Now I have a January appointment, but meds are NOT working, even at 480mg.

The hit I got last night was the third that day, so I didn't dare use more imitrex. I figure I have been using it too much so I'm probably getting rebounds.

O2 is being delivered Monday, can't wait. I already own a 25 lpm regulator.

Thanks for listening, it helps a lot.

owk wrote on Dec 10^th, 2016 at 5:49pm:


I feel the same "depressing and embarrassing". When the pain is 9 or 10, I scream and scream, and then during the day, I look completely normal and my family thinks I cried wolf. The psychological pain does build out over days and weeks. I don't wake anyone up at 3am and I suffer alone for their sake, but because I suffer alone, they don't understand why I can't just take Advil. I am not sure if anyone here has the same issue.

The fastest way for me to explain it is that I have the same pain as pregnancy contractions. You can't take Opiates, and the doctor sometimes prescribes steroids or magnesium. But when the contractions only come at night, and every night.

I have sent them youtube videos to explain, but it largely goes unopened. But I did them same thing when someone I knew had cancer -- now it is just pay back for me. In Asian culture, we just don't talk about pain, and if it mental conditions, it is all the more taboo because no one is allowed to be mentally insane. I am so grateful to have found this forum to keep me company. It really touches my heart.