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Dale's Black Eye Palsy, a Cause of Cluster Headach (Read 18670 times)

dauber Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #25 - Jan 9^th, 2017 at 10:57am Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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lifer CH.com Newbie Offline I Love CH.com! We make it great! Posts: 22	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #26 - Jan 9^th, 2017 at 12:46pm . This is Page 2. Go back one page. .
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Potter

Ex Member

Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #27 - Jan 9^th, 2017 at 1:15pm

lifer wrote on Jan 9^th, 2017 at 12:46pm:

Thanks for everyone’s interest in this idea.
I’m sorry if I have made any of you uncomfortable. If my idea is too far out there for you, I understand.
What I would like is a discussion regarding the merits and shortcomings of my postulate. Could this be possible? Does anyone else find it fits their symptoms? My made up title is just a way to identify this particular idea, which fits my symptoms.
Whether my idea pans out or not, we will still be haunted. We will still have cluster headaches, whether it’s primary or secondary.
Even if what I claim is found true, no one will help. There is no approved surgery for my suspected cause. No one is trained to perform it. You’re likely to be made worse in an attempt to fix it. I find no comfort in that. It’s just our situation.
I have found ways to comfort my nerves, reduce my pain, reduce my dysfunction, and reduce my attacks. This may not be your thing. That’s okay. I’m totally convinced it’s mine.
I moved forward when I stopped focusing on the pain, and started paying attention to my dysfunction. The pain is unreliable. It can be too much and overwhelm you, or go numb and trick you. The dysfunction is a lot easier to discern and provides a reliable indication of nerve distress.
I consider nasal stuffiness to occur between open and plugged.
To clear up any confusion, I suggest that you stay away from a chiropractor for this condition. However, I have noticed we tend to hold our heads. Head holding is good, especially in the right spots.
I would hold my head for hours. Now, I can use gravity to hold it instead.
I realize I use lots of medical terms about our medical condition. It’s just how I think about it. If my words are giving any of you trouble, please have me try explaining myself a different way. I am trying my best to clearly express this idea.

This thread was started to discuss a particular possible cause, Dale’s Black Eye palsy. If you’re still interested in exploring this, thank you.

You use gravity to hold your head says it all.

Potter

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Scorpion CH.com Junior Offline lemons to lemonade Posts: 57 KCMO Gender:	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #28 - Jan 9^th, 2017 at 3:14pm OP didn't deserve that much bashing.
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Potter Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #29 - Jan 9^th, 2017 at 4:10pm Scorpion wrote on Jan 9^th, 2017 at 3:14pm: OP didn't deserve that much bashing. Nor do we need his adamant bullshit. Potter
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #30 - Jan 9^th, 2017 at 5:31pm Quote: Scorpion wrote on Jan 9^th, 2017 at 3:14pm: OP didn't deserve that much bashing. Nor do we need his adamant bullshit. Potter Speak for yourself, Potter, but don't speak for me. I'll read whatever I please.
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Potter

Ex Member

Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #31 - Jan 9^th, 2017 at 6:24pm

AussieBrian wrote on Jan 9^th, 2017 at 5:31pm:

Quote:

Scorpion wrote on Jan 9^th, 2017 at 3:14pm:

OP didn't deserve that much bashing.

Nor do we need his adamant bullshit.

Potter

Speak for yourself, Potter, but don't speak for me. I'll read whatever I please.

Knock yourself out. Ten minutes of your life you'll never get back.

Potter

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jon019

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #32 - Jan 9^th, 2017 at 6:31pm

Scorpion wrote on Jan 9^th, 2017 at 3:14pm:

OP didn't deserve that much bashing.

I thought I was beyond flabbergasted.....and had only guessed this.....

"My made up title is just a way to identify this particular idea, which fits my symptoms."

Holy shit....READ THAT! Do you want to base ANY of your actions re CH on a thought process
like that!? I stand by my so-called "bashing".................

« Last Edit: Jan 9^th, 2017 at 6:35pm by jon019 »

The LARGE print giveth....and the small print taketh away. Tom Waits

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lifer CH.com Newbie Offline I Love CH.com! We make it great! Posts: 22	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #33 - Jan 9^th, 2017 at 9:04pm . Thanks everyone for all your interest.
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Hoppy

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LAUGHTER IS THE BEST MEDICINE

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #34 - Jan 10^th, 2017 at 12:43am

Lifer wrote, Head Holding
We’ve all done it at times. How many times have you heard, “Are you okay?”? I had a hard time understanding this compulsion of mine.
Only now, armed with this new knowledge, I want to open my bad orbit.
Most of us press the temple. Pressing the temple acts to open the orbit. We have figured out how to help ourselves.
Head holding helps to reduce one of the four orbit floor stressors. The load of the forehead compresses the bone, and with it the nerves. I feel we hold our heads to help support this load and maintain an ‘open’ orbit.
A problem I have is being able to hold my head manually with a constant force. Sometimes I push too hard, other times, not enough. I have found the steady constant force of gravity to be much more soothing.
Moving the head’s center of gravity will change the skull’s stress distribution. Two beneficial movements for me are: lift the nose slightly, until the head is just past balanced on the neck, and second, tilt the head slightly to the good side. If it’s bad, I do both. This is letting gravity do the work for me; gravity is ‘holding’ my head. My earlier 'pillow talk' is also gravity helping/holding.
I am still searching for a comfortable way to look directly down at the ground. This posture adds the weight of the rearhead to the weight of the forehead, and cantilevers it out over the orbit. I manually hold my head to look directly down.
Dynamic loading is the worst for me. That is, when my head moves around. The moving load produces sudden spikes of force. These load spikes cause me the greatest nerve distress, and thus build up distress the fastest. I am very careful how I hold my head while I’m moving.
Why do you think we hold our heads? Sure, because of the pain, but I think there’s more to it than that. I feel compelled to hold my head even before the pain begins and after it is gone. This need to support the forehead explains to me why I am so compelled to hold my head.

I've never read so much bullshit in all my days as a clusterhead! If I had as many $$$$$$$$$$$$$ as I've spent holding my head, pushing and shoving my temple, groaning in agony, whilst trying to abort the beast, I would be a rich man now.

Anyways, time for me to go and wrap myself head to toe in bubble wrap to stop those nerves moving about and keep the beast at bay.

Hoppy

« Last Edit: Jan 11^th, 2017 at 7:22am by Hoppy »

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Scorpion

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lemons to lemonade

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #35 - Jan 10^th, 2017 at 1:05am

Every now and then I look to see if there are any new advances for cluster headache treatments.

I have offered my treatment of ketogenics, intermittent fasting, exercise and some meditation. I had a setback from a red meat allergy due to a tick bite, so I had to relearn my diet and I am less ketogenic now. Minus the fact that I get serotonin storms and shadows during a cycle, it has been 100% effective for me. I feel like a million bucks using my treatment. It has worked for me for years. Get's bashed every time I bring it up.

I believe that if we read with the understanding that sometimes CHers haven't slept a night for weeks or even months. They can develop chemical imbalances that come and go. They are human, and may be having a bad day. There are a lot of things that effect us. Then maybe a little kindness is due to your brother or sister. No bigger waste of time and life than spending it angry and hurting others. I would use that energy to spend time with your friends and enjoy life a little.

Life's a garden, dig it.

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jon019

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #36 - Jan 10^th, 2017 at 1:30am

Every now and then I look to see if there are any new advances for cluster headache treatments.

Me too...

I have offered my treatment of ketogenics, intermittent fasting, exercise and some meditation. I had a setback from a red meat allergy due to a tick bite, so I had to relearn my diet and I am less ketogenic now. Minus the fact that I get serotonin storms and shadows during a cycle, it has been 100% effective for me. I feel like a million bucks using my treatment. It has worked for me for years. Get's bashed every time I bring it up.

Good for you...red meat allergy...et al...some of us been there....re ch....??????

I believe that if we read with the understanding that sometimes CHers haven't slept a night for weeks or even months. They can develop chemical imbalances that come and go. They are human, and may be having a bad day. There are a lot of things that effect us. Then maybe a little kindness is due to your brother or sister. No bigger waste of time and life than spending it angry and hurting others. I would use that energy to spend time with your friends and enjoy life a little.

Now THAT is a cogent, concise and reasoned argument....placed in the WRONG place. The whole damn purpose of this site is to help fellow bros and sis fight this demon...nobody else understands.
BUT...it means that we must be diligent in our considerations.... and CAUTIOUS re some of the otherworldly opinions expressed on what seems like a constant basis. Me?...well...after 30+ yrs I can smell bullshit without a second thought......like THIS thread. Some new folks may NOT...I worry about them...How about YOU!?

« Last Edit: Jan 10^th, 2017 at 1:31am by jon019 »

The LARGE print giveth....and the small print taketh away. Tom Waits

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lifer CH.com Newbie Offline I Love CH.com! We make it great! Posts: 22	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #37 - Jan 11^th, 2017 at 1:57pm . Thank you for hanging in there through all of this. You’re already a champion and survivor. We’ll make it.
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Potter Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #38 - Jan 11^th, 2017 at 2:49pm To paraphrase the OP. Some folks are triggered by heat and others by cold. Some abort with cold and others with heat. Potter
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lifer

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #39 - Jan 11^th, 2017 at 3:06pm

Quote:

To paraphrase the OP. Some folks are triggered by heat and others by cold.

Some abort with cold and others with heat.

Potter

No, not at all. I'm expressing how my dysfunction affects me, in regard to temperature.
Triggers are a separate issue. Although, triggers are affected by temperature.
Heat and cold are NOT busters. They help us maintain appropriate temperature.

Please feel free to express your own ideas.

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Potter Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #40 - Jan 11^th, 2017 at 3:15pm You need to learn the lingo grasshopper. Abort and bust are not the same. Potter
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lifer CH.com Newbie Offline I Love CH.com! We make it great! Posts: 22	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #41 - Jan 12^th, 2017 at 1:42pm . Let me know if you want more.
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #42 - Jan 13^th, 2017 at 6:29am Quote: You need to learn the lingo grasshopper. Abort and bust are not the same. Potter What's the difference?
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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #43 - Jan 13^th, 2017 at 8:16am You abort an individual attack and you bust a CH series of attacks. Kinda like abortives and preventatives.
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Potter Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #44 - Jan 13^th, 2017 at 12:35pm lifer wrote on Jan 12^th, 2017 at 1:42pm: Let me know if you want more. Nope. Potter
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Scorpion

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lemons to lemonade

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Re: Dale's Black Eye Palsy, a Cause of Cluster Headach
Reply #45 - Jan 13^th, 2017 at 12:56pm

Quote:

Good for you...red meat allergy...et al...some of us been there....re ch....??????

The ketogenic diet is my preventive.
The fasting is to bust a cycle. (cycles are shadows and serotonin only since keto)
The exercise (cardio) is to abort an attack. (haven't needed this since keto)
The meditation is for all three and me.

Because red meat is a big part of a standard keto diet, I must stay true to what I say.
So I offer the fact that red meat is not included.

Life's a garden, dig it.

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CDog CH.com Veteran Offline Posts: 163 Rockies Gender:	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #46 - Jan 13^th, 2017 at 1:09pm I'll keep reading...
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lifer CH.com Newbie Offline I Love CH.com! We make it great! Posts: 22	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #47 - Jan 14^th, 2017 at 6:09pm . Take it easy on that noggin. .
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dauber Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #48 - Jan 17^th, 2017 at 12:04am TIL OP is scorpion is troll
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dauber Ex Member	Re: Dale's Black Eye Palsy, a Cause of Cluster Headach Reply #49 - Jan 17^th, 2017 at 12:20am Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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