mBragg
CH.com Newbie
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Posts: 4
Florida
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Hey Mc and all,
Welcome to the cluster club, brother.
Long time since I’ve been on this site (15+ years?). Back around 9/11? Wow. Lots of water has passed under the bridge and these boots have covered many a mile. HOOAGH...
if new DX it is probably to soon to tell if it’s chronic.
I remember I started episodic when I was 18 I think. And it would go away, sometimes for years. Been chronic for well over a decade? Now 49? Can’t remember, seems like i went chronic in OIF, or was it OEF, playing in the sandbox. OIF, yeah.
Anyway, the shadows. I’ve never been able to predict a cycle. Soon, You could go off cycle for years and just forget about it till next time. Chances are very good for that. Heck yeah.
Over the years, I’ve tried all sorts of meds. Pain meds, while they might help some of your other pains, do not seem to help CHs at all. I recommend don’t even try that route. Sometimes I would have pretty good results at first with prescribed CH med then... it’s like the CHs FIND a way around the preventative type stuff. It’s like you just can’t kill it. Its like that sucker finds a new way and when it gets through, well, it’s just extremely pissed.
My latest is to take about 4 1 mg Cyproheptadine (children’s antihistamine - neuro prescribed 1aday for CH. BTW, my wife was also prescribed this for her migraines. Same neuro.) two or three times a day if I remember. Also immatrex injections and tabs.
Immatrex injection is gold. Save them for when you must be in public or driving or something.
CH is described as intense pain lasting seconds. Is this true for others? Without an abortive, mine can last for as little as 30 minutes to many hours. The intensity of the pain fluctuates over seconds in waves if you will that last for many hours, ramping up and down. Usually four or five bad ones for hours in a daily cycle. Need sleep. But... if I go to sleep. It’ll wake me up.
Trying to abort these days by chewing up half or one immatrex 100 mg tab. Of course, not really working. Only abortive that’s really worked for me is the immatrex injectors though they feel a bit traumatic and others kind of freak out when you suddenly pull out the ol hypo and pop yourself in the thigh and go to turning pale and red and sweating or whatever. Course they’d freak out more if they could witness a CH in fine form. Imagine if they could just feel it for a single moment...
BTW, finding out there were other people out there suffering similarly and who actually UNDERSTOOD my nightmare was a mixed blessing. On the one hand, THANK GOD, it’s not just me! THEY ACTUALLY UNDERSTAND!! Pivotal stuff. On the other hand, OMG, no one should ever have to suffer this.
Supposed to have O2, would like to try it, but I can’t ever seem to actually GET a doggone tank and the right mask, even with the pescription in my hand. Try 02. Heard good things about it.
Anyway, can’t remember (TBI). sorry. Mmmm. Ah yes, well what I take is not really working for me. Been going richter lately. I am in the shadows most all the time. Horners, head kneck and face pain, but like at maybe 50 to 80% not as bad as the full tilt boogie. So, it’s like cycling to some degree all the time with frequent bouts of super cycles mixed in for extra credit and fun.
I sometimes take BC powders as they can be somewhat helpful (probably the caffeine). I don’t recommend taking a lot of ANY kind of over the counter pain meds at once or even spread out over time, not good for you at all.
A human being can Take an amazing amount of punishment. You can get through it. I can get through it. We all can get through it. Each time. Will you be the same afterwards? Probably not. It’s life altering.
It ain’t gonna be easy But, someday, you’ll be smiling again! Just got to get there from here is all
Sorry I don’t have better advice. I just go in the bathroom to get away from everyone and sit there and rock it out best I can. Just got out of there after about 3 hours. Been getting hit really really bad hard lately. Very little sleep.
Wracked. Drained. Beat up and very very Tired. But, hey, I’m still here. So I won this one. I can probably win the next one. I don’t like to quit. Don’t quit.
Nerve Stimulator? D3? Got to research again.
Talk to others (CHers) to help you understand. Even in the middle of the night. That’ll help more than you will know.
Maybe they won’t be as long winded. LOL
Hang in there, brother.
Arrr! Oh no. Gotta go. The doggone bell just rang for me. Rematch. Sigh...
God bless all and to all a good night!
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