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Thought provoking (Read 547 times)
Peter510
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Wexford. Ireland
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Thought provoking
Jan 12th, 2019 at 11:14am
 
Hello all,

A friend in the European CH group I am involved with sent the following message.

I think this is a subject that we should not shy away from, difficult as it is to deal with.

“Best friends,

First of all, my very best wishes for the new year.

I also want to report that a CH companion that I personally know has chosen to stop his suffering in a controlled manner yesterday. 20 years of CH without hope of further treatment made him make that decision. We can only wish this man the eternal best wishes.......

......To my knowledge this is the first CH patient in Belgium where euthanasia is permitted. This man also got neurostimulator but in vain.

For privacy reasons I do not publish his name

Let us hope that this should not happen to anyone”.

Peter.
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You don't stop laughing because you grow old....You grow old because you stop laughing.
 
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AussieBrian
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Cairns, Qld, Australia
Gender: male
Re: Thought provoking
Reply #1 - Jan 12th, 2019 at 6:08pm
 
That's very sensitively handled, Peter. 

Well done.

Brian.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Mike NZ
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Auckland, New Zealand
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Re: Thought provoking
Reply #2 - Jan 12th, 2019 at 8:02pm
 
Total agreement with what Brian said.

Only those who know CH first hand can understand the impact of CH, especially uncontrolled CH.
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John2
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Re: Thought provoking
Reply #3 - Jan 12th, 2019 at 9:46pm
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register  Cry



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Mike NZ
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Oxygen rocks! D3 too!


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Auckland, New Zealand
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Re: Thought provoking
Reply #4 - Jan 13th, 2019 at 12:06am
 
John2 wrote on Jan 12th, 2019 at 9:46pm:
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register  Cry

The above URL didn't work for me - try this one:
  • Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register


Very hard to watch, morally complex and there are no simple answers around this subject.

I couldn't watch it all.
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Peter510
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Don't give out... But
don't give in.


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Wexford. Ireland
Gender: male
Re: Thought provoking
Reply #5 - Jan 13th, 2019 at 7:43am
 
It saddens me deeply.

It is proof, if proof were needed, that the value of peer support from places like Clusterheadaches.com and others, should not be underestimated.

Also, it emphasizes the need for much more research to be done into the condition, both cause and effect.

I have said it time and time again, to anyone who will listen in my little corner of the world, that the psychological impact of CH is seriously neglected.

Peter.
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You don't stop laughing because you grow old....You grow old because you stop laughing.
 
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maz
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Re: Thought provoking
Reply #6 - Jan 13th, 2019 at 9:03am
 
So tragic - that poor young man.  I don't know what to say.
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Skyhawk5
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Ypsilanti, Mi. USA
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Re: Thought provoking
Reply #7 - Jan 18th, 2019 at 11:33pm
 
I came to tears when reading this. It is not about suicide, it's about ending this pain forever. I've been there. 30 years and it is still unacceptable. Finding ways to keep going is our most important action.
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ErnestBol
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Re: Thought provoking
Reply #8 - Jan 26th, 2019 at 7:04am
 
I've got shivers all over my body after reading that. God bless his soul. I agree, an open discussion is necessary about this on a global society level imo.
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AussieBrian
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Cairns, Qld, Australia
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Re: Thought provoking
Reply #9 - Jan 26th, 2019 at 7:23am
 
G'day Ernest,  welcome,  and I agree with you completely.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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