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Do people outgrow their cluster (Read 846 times)
wsnurse
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Do people outgrow their cluster
Oct 16th, 2019 at 4:13pm
 
My Dad had them for 10 years and they just stopped.
I have had them since 2010.

What is the oldest member with cluster headaches?

Any chance mine with stop?
Kim
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Batch
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Bremerton, WA
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Re: Do people outgrow their cluster
Reply #1 - Oct 17th, 2019 at 10:24am
 
I'm 75 and the CH beast is still there... waiting for me to stop taking vitamin D3.

Take care,

V/R, Batch
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MDR
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Re: Do people outgrow their cluster
Reply #2 - Oct 17th, 2019 at 5:35pm
 
I've had these since I was 17 AND I'm 54 If  I don't take vitamin D they return.

Thanks Mark.
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AussieBrian
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Re: Do people outgrow their cluster
Reply #3 - Oct 18th, 2019 at 2:59am
 
I've always believed we all grow out of it.

It's the one single hope that's kept me going all these years.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me†anytime at briandinkum@yahoo.com
 
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BobG
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St. George, UT
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Re: Do people outgrow their cluster
Reply #4 - Oct 18th, 2019 at 9:40am
 
Mine started when I was 27. Iím 72 now. The CHís stopped 6 years ago.
So, yes, you might outgrow them.
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Bob P
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Re: Do people outgrow their cluster
Reply #5 - Oct 20th, 2019 at 8:09am
 
Mine started in my early 20's and quit in my mid 50's, about 13 years ago.  I wish everyone the same result.
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brain_cramps_2
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Re: Do people outgrow their cluster
Reply #6 - Nov 23rd, 2019 at 6:51pm
 
I haven't been here for years but over the last week they have returned.† I hope that others can have the 15 yrs of PF time I had.

Started: 21
Ended: 43
Now: 58

Here we go again.† Wish me luck.
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« Last Edit: Nov 24th, 2019 at 7:40pm by brain_cramps_2 »  
 
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AussieBrian
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Cairns, Qld, Australia
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Re: Do people outgrow their cluster
Reply #7 - Nov 23rd, 2019 at 7:54pm
 
Rotten news that your 15 years is over,† mate,† but on the brighter side there's been some great leaps forward in that time on how to manage these monsters.

The† Oxygen Info† button on the left of your screen will show loverly new tank set-ups running at 15-25lpm with a purpose-built mask available here to give terrific results as an abortive.

There's also lots on the diet front† (of all places)† and huge work has been done perfecting a Vitamin D regimen which is showing astonishment improvements for so many ClusterHeads.

It's lousy luck you've had to come looking but at least we've good news to offer you.

Good luck,† and let us know how you're getting on because we care,

Brian down under.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me†anytime at briandinkum@yahoo.com
 
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Balanchine
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Re: Do people outgrow their cluster
Reply #8 - Dec 3rd, 2019 at 3:36pm
 
Another years-ago member piping up here. I had my last cycle maybe 5-6 years ago around age 60, and pretty much nothing since. Although in the last week or so I've had some scares... but I think they were simply that.

For me I believe the trick was getting rid of what must have been my major trigger: alcohol. After my head and neck cancer treatment in 2009 I was advised never to drink again and I gave it up completely.

Of course I did have that one cycle a coupla years later, but attribute it entirely to some nitro cream I was prescribed to take care of something called Raynaud's disease, which is a circulatory problem.

So on balance I would have to say, with fingers and toes crossed, that I have outgrown the CHs that have been plaguing me since my 30s.

My advice to you would be to see if you can identify your triggers and then do your damndest to eliminate or at least reduce them. This might require some trial and error.

Oh and PS, apologies to the group for my absence. It's one cancer after another around here....
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Dennis
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Re: Do people outgrow their cluster
Reply #9 - Apr 26th, 2020 at 10:08pm
 
Joined this site in 1998, at age 38.† Check back in every so often to see if I can help anyone.† This post caught my eye.

Mine started in high school, at about 16.† Didn't know if I would live through it during my 30s and 40s.† Last attack was in 2009, at age 49.† I'll be 60 next week, and I have actually traveled out of state without any Imitrex injections!

My theory is my blood vessels have stiffened some with age, and so they don't dilate like they used to.† Don't know, really.† Just grateful, and I wanted to share that there is hope.

Pain free days to all...

Dennis

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