Posted by Ken on June 29, 1998 at 19:01:30:
In Reply to: Possible media blitz? posted by DJ on June 29, 1998 at 04:37:20:
That’s a great idea. Unfortunately, since we are such a minority, the general population puts us in the same category as migraine and tension headache sufferers. Migraine stories have been done to death. I’m all for exposure but getting someone to listen might be difficult.
I can’t tell you how many times I have tried to explain my headaches to someone and have them come back with, " Oh yea, my headache was so bad last week I had to lay down." Well, I’m sure you’ve all been there, done that. It’s getting to the point where I don’t even try to describe the pain.