After 3 yrs, they're back

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Posted by Kim ( on January 21, 2002 at 10:02:11:

Sept 1999 was my last appointment with my Neurologist. Since then I've been almost CH free, but they are back and they are not going away. Maybe the mind plays tricks, but the pain is so much worse now, and now I'm waking with them. This didn't happen before. My Neurologist can take me in Feb 5...but not before. I'm being treated like a new patient because of the time in between visits. As if the pain isn't enough...I feel like I'm being punished because I've been healthy.
My general Dr will see me tomorrow...which is good and he does know about CH's but he sent me to the neurologist in the first place.
The worst thing about the CH being that they are back which means they will continue to come back my whole life. I'm 33 and I suffered for a full year of daily attacks before I finally found a Dr who could make them go away. Amerge 2 times daily for 2 weeks did it....if I could only get the meds.
I woke up Saturday morning at 4:00am with the worst pain in my head I'd ever felt. The pain was so bad, I couldn't move. I waited about 2 weeks before calling the Dr because I thought I could get rid of them on my own like I did before, but no luck yet. Am I going to have to go through all of the tests like before?
I know there are a lot of people who suffer with terminal illnesses, but damn, this time I feel so sorry for myself...and scared. I'm afraid, what if this isn't a CH...what if something is wrong inside my head? And what if they don't go away? My eye still tears and my nose stuffs up but they don't last 20 min like before. Now they go on for Hours.
Right now, I'm taking Furinol (?) because I still have some of those pills, but they used to work in 20 mins, now over an hour will go by and the pain is still there.
And I get confused ...does this happen to other people? When I'm in a cycle, my mind gets confused. I mix up numbers (Which is my job) and I can't say words, can't find the word I'm looking for. That is scary.

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