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Reality Check Time!

I suggest that everyone take a step back, take a deep breath, RELAX, and try to think about what exactly it is we are trying to accomplish here!

My name is DJ.  I am the webmaster/creator of this place that alot of us call home. I put this site on the internet shortly after my last episodic cycle started April 1, 1998. Lucky for me, I've been cluster free since August 1998. However, I've "overseen" everything on this site from day one. Even though I haven't had a headache in 15 months, I still come here EVERY SINGLE DAY to read the messages and see what needs to be done.

In the last 20 months I've spent thousands of hours building pages, editing pages, trying to come up with new ideas, blah, blah, to try and help guide this site to be the premiere place in the world for cluster headache sufferers. A place to try and help others. A place to come for support. A place to come to learn more about cluster headaches. For a time, it was just that (a place to come for support). Recently, it's taken a huge turn for the worse. There has been ALOT more personal attacks, bitching, bickering, and whining than there has been support or information! That's not what this place is about (or at least what this place was intended to be about).

I've held off taking the board down for as long as I possibly could. I had hoped that, as adults, we could turn this message board back in the right direction. I've taken great pride in this NOT being MY website, but OUR website. I've taken great pride in the fact that I DO NOT edit or delete any of the posts on the site. I've taken great pride that I've never "taken sides". I've taken great pride in the free-flow of un-censured information.

I'm sorry, but some things just can't be overlooked.

I've found that I've had to edit or delete more and more posts recently because folks are using the board to make "personal attacks". Quite frankly, I'd rather leave the board down for good than to have to edit or delete the posts on this site. I'd HATE to loose this resource to help me through my cycle! Wouldn't you?

Believe me, I'm not saying every single post on this site has to be serious. I'm not saying every post on this site has to have 100% factual information. I'm not saying we can't post jokes and have fun (I love to laugh!). THAT is what clusterheadaches.com is all about! Post your story, post your beliefs, post your thoughts, post your jokes, post your feelings, post your "cures", but remember.... we are a group of sufferers that basically have no other place to go. We are approximately 1% of the world's population. Don't we suffer enough as it is?

I suggest everyone go to the archives page and read some of the posts from the summer of 1998. This board was AWESOME! THAT was my vision of what clusterheadaches.com should be.

If you are finding this site for the first time and this is your first visit to this page, please accept my sincere apology that the message board is not available to you at this moment. Please check back soon to see how awesome it can be to communicate with other sufferers from around the world. In the meantime, please explore all of the information on the site by following the links on the left hand side of the page.

If you've been here before, even if you're a "regular", please think about why this site is here before you hit the "submit" button. We do have a goal....

To help. To support. To inform. To help find a cure!

Once everyone has had a chance to cool off and re-group, I'll put the board back up.

Sincerely,
DJ Johnson

P.S. Please direct all mail on this subject to dj@clusterheadaches.com!

 

 

 

 

 

 

 

 

 

 


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