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   Author  Topic: What I'm trying now  (Read 13175 times)
godsjoy777
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Re: What I'm trying now
« Reply #125 on: Aug 31st, 2005, 9:07pm »
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Yippeeeee Nani.....So glad to hear of your progress....keep us posted....All this documentation does me good....
 
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Karen
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Re: What I'm trying now
« Reply #126 on: Sep 1st, 2005, 8:36am »
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Today is 12 days since my last dose. It's a new record.  Cheesy  
 
I'm still about 98% PF and don't feel a need to consider dosing again soon at this point. The last 2 days have been interesting, though. I've had pain and/or pressure in the trigger point way up in my nose at times. My allergies are bothering me, too. It seems that when I take a claritin for my allergies, the pain/pressure in my nose stops. I'm still not sure if I'm having actual CH activity or the sinus pressure is just irritating a spot where the pain receptors haven't shut down yet.  
 
Either way, I'm still feeling pretty damned good.  Cheesy
 
hugs, nani
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Re: What I'm trying now
« Reply #127 on: Sep 1st, 2005, 8:47am »
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Great news, Nani.  I'm always aware of that "trigger point" even when I'm out of cycle.  I have mild to moderate allergy issues on and off year round, and the slightest stuffiness or irritation to that spot is really noticable, and gets me wondering about the beast.  Maybe those nerve endings are now and forever more sensitive Huh.  Hope this stretch of PF time goes on and on. hug
Pat
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nani
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Re: What I'm trying now
« Reply #128 on: Sep 1st, 2005, 11:38am »
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on Sep 1st, 2005, 8:47am, pattik wrote:
 Maybe those nerve endings are now and forever more sensitive Huh.  

 
Goodness, I hope not. It's one of my more panic inducing spots. Burning and stabbing there often precedes a "big" hit for me. The first time it happened the other day, I got pretty scared and did a SPUT right away. The pain in my nose never stopped, but the CH never happened. When I felt it yesterday, I didn't SPUT, just to see what might happen. Again, no CH.  
Since Claritin eased the pressure and pain both times, I'm still inclined to think the allergy symptoms irritated it. I may have to wait a while to see if a maintenance dose kills it off.  Smiley
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Re: What I'm trying now
« Reply #129 on: Sep 3rd, 2005, 7:06am »
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on Sep 1st, 2005, 8:36am, nani wrote:
Either way, I'm still feeling pretty damned good.  Cheesy

 
 
Smiley
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Re: What I'm trying now
« Reply #130 on: Sep 4th, 2005, 10:51am »
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14 days  Smiley
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Re: What I'm trying now
« Reply #131 on: Sep 4th, 2005, 11:34am »
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sayyes
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Re: What I'm trying now
« Reply #132 on: Sep 4th, 2005, 2:48pm »
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14 DAYS Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Wink!
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Re: What I'm trying now
« Reply #133 on: Sep 5th, 2005, 12:35am »
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Great news, Nani.   Grin
 
Congrats!!!
 
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Re: What I'm trying now
« Reply #134 on: Sep 6th, 2005, 4:31pm »
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What's the score today Nani???? Still counting I hope!!! sayyes
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Re: What I'm trying now
« Reply #135 on: Sep 6th, 2005, 11:45pm »
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on Sep 6th, 2005, 4:31pm, rextangle wrote:
What's the score today Nani????

 
17 days  Smiley
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Re: What I'm trying now
« Reply #136 on: Sep 7th, 2005, 3:37am »
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Well here ya go: 17 Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley Smiley wonderful smiling days!  
 
Keep it going Nani, we're all pulling for ya!
 
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Re: What I'm trying now
« Reply #137 on: Sep 7th, 2005, 7:17am »
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Go Nani! Smiley Smiley Smiley
 
Let us know how it's going! sayyes
 
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Re: What I'm trying now
« Reply #138 on: Sep 7th, 2005, 7:25am »
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Damn, Nani!  That's great.  You go girl!
 
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Re: What I'm trying now
« Reply #139 on: Sep 7th, 2005, 10:52am »
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Wonderful news Nani  Cheesy
 
PFDAN Forever
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Re: What I'm trying now
« Reply #140 on: Sep 7th, 2005, 1:27pm »
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FUCKINEH!!!!
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Re: What I'm trying now
« Reply #141 on: Sep 7th, 2005, 3:26pm »
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Hey, that's Awesome Nani!!!!!!!!!!!!!!!!!!!!!!!
 
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Re: What I'm trying now
« Reply #142 on: Sep 10th, 2005, 9:11am »
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Today is my 21st day.  Grin  
I know it's early, and the day isn't over. I know that I'll be spending 3 hours on a hot and sunny soccer field, and I'm not worried. I have no reason to believe that I'll get hit today (or even shadow). I'm even beginning to think I can't jinx myself by proclaiming my PF-ness.
21 days!!!!  Three weeks!!! I haven't had this much PF time since 1999.  
Thank you Clusterbusters for sharing your stories and helping me through this treatment with your advice. Thank you everyone for encouraging and supporting me through this.
 
I love you guys!! I'm lovin' life again, too!!!
 
hugs, nani
« Last Edit: Sep 10th, 2005, 9:22am by nani » IP Logged

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Re: What I'm trying now
« Reply #143 on: Sep 10th, 2005, 9:19am »
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Kiss Grin
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Re: What I'm trying now
« Reply #144 on: Sep 10th, 2005, 9:49am »
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So happy for you Nani and so inspiring for all!  Looks like you're up to 21 Smiley smiling wonderful days now.............keep it going, keep it going!
 
Enjoy a great and wonderful pain free day today!!
 
Hugs,
Bob
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Re: What I'm trying now
« Reply #145 on: Sep 10th, 2005, 9:58am »
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Grin
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Re: What I'm trying now
« Reply #146 on: Sep 10th, 2005, 10:06am »
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Grin21 days...woo hoo!!!!! sayyes
hugs,  Pat
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Re: What I'm trying now
« Reply #147 on: Sep 10th, 2005, 1:06pm »
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Congratulations, Nani sayyes  
 
21 days PF from the Clusterbuster's treatment after 5 years chronic is truly inspiring.
 
Best wishes for continued PF success  hug
 
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Re: What I'm trying now
« Reply #148 on: Sep 10th, 2005, 1:51pm »
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Happy 21st Nani!! Does that mean you can drink now without getting hit??? Grin
 
I'm so glad this is working for you!!!
 
I raise my Red Bull to you!
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Re: What I'm trying now
« Reply #149 on: Sep 10th, 2005, 8:40pm »
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YAY, NANI !!!  Cheesy
 
tons of  hug's
 
-Rori
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