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Topic: What I'm trying now (Read 16275 times) |
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Chillrmn1
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Re: What I'm trying now
« Reply #150 on: Sep 14th, 2005, 5:24am » |
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Time for a report Nani, how are you doing? We're all sitting on pins and needles and hoping to here continued success from you.
Please let us know.
Hugs,
Bob
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nani
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Re: What I'm trying now
« Reply #151 on: Sep 14th, 2005, 7:19am » |
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25 days.  I'm looking forward to Monday. Then I won't be chronic anymore. 
I'm still getting an occasional nose "stab"...but I'm sure it's related to sinus congestion now.
Thanks all.
hugs, nani
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Chillrmn1
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Re: What I'm trying now
« Reply #152 on: Sep 14th, 2005, 8:51am » |
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GREAT report Nani!!!! Thanks for letting us know  .
3 more days and you got 4 weeks, YAY! Do you remember how to spell Episodic  ?
Bob
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godsjoy777
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Re: What I'm trying now
« Reply #153 on: Sep 14th, 2005, 10:38pm » |
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Yippeeee Nani.....Yes I am still watching tho I'm not talking much here....I still have some of those seeds in my safekeeping if the need ever arises.....
You are still doseing with the seeds....right?
Love and blessings,
Karen
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nani
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Re: What I'm trying now
« Reply #154 on: Sep 14th, 2005, 11:46pm » |
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on Sep 14th, 2005, 10:38pm, godsjoy777 wrote:
You are still doseing with the seeds....right?
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I haven't dosed with anything since August 20th, Karen.
Since the inception of this route, I've used the following:
1 gm mushroom (tea) 7/20
1.5 gm mushroom (tea) 7/26
3 HBWR seeds 8/03
3 HBWR seeds 8/14
6 HBWR seeds 8/20
I've just completed day 26.
I've also just sent my HA diary to Dr Sewell at Harvard. It was nice to just ditto ( " ) the PF days.
An interesting aside: I've done some reading about using psilocybin and kudzu to treat alcoholism and drug addiction. I can now say with certainty, that neither one does squat for chocolate addiction. 
But...who cares? I'm PF!!!!
hugs, nani
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| « Last Edit: Sep 14th, 2005, 11:47pm by nani » |
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Chillrmn1
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Re: What I'm trying now
« Reply #155 on: Sep 15th, 2005, 5:23am » |
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Hello Nani,
I certainly hope you don't mind what I'm about to say, for I would never try to start a flame war on your miraculous thread and out of my high respect for you, but feel I must say this for the good of the people. I know the subject of using the alternate treatment for CH therapy is very controversial for some. I'm so happy and glad for all you sufferers that can find relief and satisfactory response with the use of FDA approved traditional/conventional meds for your CH condition. But some of us don't get those kind of results, myself included, and based on Nani's history neither can she, at least continuously and on going where they remain effective. I had become very desperate myself due to non-efficacy of conventional meds. I had to make the choice to try the alternative treament for I had started to question myself and my wife on how I could continue living this life in such misery and pain because of my CH. The alternative treatment (ClusterBuster) method gave me my life back and now I can sincerely say I'm living a quality life.
For all those that have followed Nani's history and uses of various treatments, you know she's damn near tried them all, if not all. She made the decision to try this treatment and you can all see the positive results she's receiving.
I write this because I know the misery and pain this disease can cause and depresses me to see others having to suffer, possibly needlessly, or at least can be given an option to decrease the severity of this disease.
I understand the moral, ethical, and legal issues some of you may have with this therapy. But if you're not responding satisfactorily with conventional meds, this is a valid option of treatment. This treatment is for real and works for most, if not all, when following the recommendations as listed on Clusterbusters.com. Again, I'm only writing this because I know how it helped with my CH and is quite obvious how it's helping Nani.
And Nani, I certainly hope you don't mind me writing this on your thread, I'm only trying to help others and am so happy for your results. I'm certainly not trying to hijack your thread.
AND PLEASE, IF ANY OF YOU FEEL THE NEED TO ARGUE MY POST, DON'T DO IT ON NANI'S THREAD, START A NEW THREAD OR PM ME DIRECTLY, I'LL RESPOND. I FEEL VERY STRONGLY AND SUPPORTIVE OF THIS TREATMENT OPTION. IT GAVE ME MY LIFE BACK.
And with that all my fellow CH sufferers, I'll close with one of my favorite Forest Gump's quotes "And that's all I have to say about that."
Namaste!
Bob
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nani
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Re: What I'm trying now
« Reply #156 on: Sep 15th, 2005, 7:33am » |
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I don't mind Bob. But I am firm in my commitment to keeping this thread all about the info, and not about the argument.
Bob is right folks, it's a tough choice to make for some (myself included) but the results often speak for themselves. It doesn't work for everybody, but when it does work...it really works well. It took me 18 months to try it, and I did so only after everything else failed, but I'm happy as heck that I did!
hugs, nani
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Jeepgun
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Re: What I'm trying now
« Reply #157 on: Sep 15th, 2005, 8:02am » |
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I don't care what form the relief takes, Nani. I'm just glad you are pain-free, at long last!
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JDH
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Re: What I'm trying now
« Reply #158 on: Sep 15th, 2005, 8:55am » |
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I love happy endings.
WTG Nani! 
Jim
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SteCo
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Re: What I'm trying now
« Reply #159 on: Sep 15th, 2005, 9:43am » |
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Quote:| I'm looking forward to Monday. Then I won't be chronic anymore. |
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Well being one that has never looked forward to Mondays.....I will look forward to this one and your official announcement. About the chocolate thing...dont fight it just enjoy it...I do!!! Personal preference..milk chocolate....mmm...mmmmm.....good!
Chillrmn1 (Bob) Namaste my friend and great post!!!
Just past my 4th yr with the alt. therapy treatments and I have never looked back for anything else..Placed the trex in the drawer and there is stays..just use O2 for a backup.
May it long continue Nani!!!!
SteCo
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ArCane
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Re: What I'm trying now
« Reply #160 on: Sep 15th, 2005, 1:10pm » |
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WTG nani!!! You deserve all the PF time you get . Im truely happy for you. 
Allen
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rextangle
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Re: What I'm trying now
« Reply #161 on: Sep 15th, 2005, 2:30pm » |
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SUPERMEGA-BUMP!!!!
This is so cool Nani! I'm so happy for you....
STAY PF FOR LIFE!!!!
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nani
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Re: What I'm trying now
« Reply #162 on: Sep 19th, 2005, 6:39am » |
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It's official! After 5 years of being chronic, I'm now an episodic.
The best part, for me, is that it's a med free remission.
I'm planning on a maintenance dose in another 30 days, unless I start getting signs that I need to dose again. This treatment has been a Godsend for me. I haven't felt this good in a very long time. 
Thank you all for your encouragement and support. Thank you BobW and the clusterbusters for all the advice as well. Thank you DJ for giving us this wonderful place to share our successes so that others can learn from them. (I feel like I won an Emmy, LOL)
hugs and love,
nani, the Episodic
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E-Double
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Re: What I'm trying now
« Reply #163 on: Sep 19th, 2005, 7:18am » |
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And the award goes to...........
Awesome to hear this Nani!!!
Bob, great post. Felt like it was written to my wife.
Best to all and continued success.
Eric
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LeLimey
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Re: What I'm trying now
« Reply #164 on: Sep 19th, 2005, 7:26am » |
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HURRAY!!!!
Oh Nani I couldn't be happier for you!
I'm going to celebrate here for you... with you in spirit hon!
lots of love
Helen XXXXX
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sandie99
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Re: What I'm trying now
« Reply #165 on: Sep 19th, 2005, 7:37am » |
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Nani,
That's absolutely brilliant!!!!
Congratulations! You've deserved to be PF!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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sandie99
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Re: What I'm trying now
« Reply #166 on: Sep 19th, 2005, 7:40am » |
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on Sep 15th, 2005, 8:02am, Frank_W wrote:| I don't care what form the relief takes, Nani. I'm just glad you are pain-free, at long last! |
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I agree. Being PF is what matters and not the method how it was achieved.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Sandy_C
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Re: What I'm trying now
« Reply #167 on: Sep 19th, 2005, 7:46am » |
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CELEBRATION TIME!!!!!
Sandy
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LeeS
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Re: What I'm trying now
« Reply #168 on: Sep 19th, 2005, 8:33am » |
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Absolutely superb Nani! 
Long may it continue.
-Lee
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pattik
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Re: What I'm trying now
« Reply #169 on: Sep 19th, 2005, 8:39am » |
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Awesome! Congratulations, Nani. You're persistance has paid off, and you have helped all of us who have been watching your progress.
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| « Last Edit: Sep 19th, 2005, 8:57am by pattik » |
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rextangle
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Re: What I'm trying now
« Reply #170 on: Sep 19th, 2005, 10:09am » |
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Nani, can't wait to see you to celebrate your PF life!
Rex
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Flounder
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Re: What I'm trying now
« Reply #171 on: Sep 19th, 2005, 12:08pm » |
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Congrats Nani!!!!!!!!!!!!!!!!!!!!!!!!!!
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ArCane
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Re: What I'm trying now
« Reply #172 on: Sep 19th, 2005, 12:28pm » |
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GOOOOOOOOOOOOOOOOOOO NANI!!!!!!!!!!!!!!!!!!!!!
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SteCo
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Re: What I'm trying now
« Reply #173 on: Sep 19th, 2005, 12:31pm » |
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So a great Monday after all!!! Congrats Nani!
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maffumatt
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Re: What I'm trying now
« Reply #174 on: Sep 19th, 2005, 5:35pm » |
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Good Job Nani, keep it up...........
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