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To the newbies (Read 77677 times)
Weum
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Re: To the newbies
Reply #200 - Jun 29th, 2014 at 8:05am
 
I agree that I don't think I am taking the right medication. I live in Richmond Virginia and have no idea how to find a doctor who both knows cluster headaches and also will be responsive. Or should I find a General practitioner who is sympathetic and will simply write scripts for the techniques if find on this site. One who will allow me to cycle through all possible solutions until I find the combination that works for me.
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Mike NZ
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Re: To the newbies
Reply #201 - Jun 30th, 2014 at 5:20am
 
I can't help you with finding one (I live in New Zealand) but you really need to find a headache specialist to get a confirmed diagnosis. Once that is done and you've been set up with the right medication for you then you may be able to work with a GP.
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TeeJ2379
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Re: To the newbies
Reply #202 - Jun 30th, 2014 at 1:33pm
 
There are links on this site to help find a doctor in your area.  You should also call the local medical center or hospital and ask for their headache specialist.  Get an appointment right away, and call for cancellations every day if the appointment is months away.  I had to do this and it paid off big time.  Saved myself months of suffering.
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Pain is a wonderful teacher and motivator...
 
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Re: To the newbies
Reply #203 - Jul 1st, 2014 at 1:55pm
 
Weum! Sorry you are suffering!

There used to be a list on O.U.C.H (a UK cluster site) but I don't see it anymore. What I did here in NC was email everyone near my area that's listed on the "Where we live" link to the left. I introduced myself and asked who they used and what their experience was with that Dr. I did get a couple of responses that led me to my neurologist in Winston-Salem. He leaves appts open each week for those that are in cycle and is very open to anything that works. Give that a try!

Best of luck!
Judy

Good Luck
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Bear R.-
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Re: To the newbies
Reply #204 - Aug 27th, 2014 at 8:17am
 
Hi Barry here..i posted somewhere else but why not say hey here too..it does say home away from home..and im telling ya,i thought I was alone in this world.i had no idea there were so many Cluster sufferers..it's amazing...
anyways,i been a Chronic Sufferer since 88 and I cant believe I survived it all this time..all glory to The Man up stairs..well take care God Bless everyone..Bear R.-
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« Last Edit: Sep 2nd, 2014 at 9:15am by Bear R.- »  

Chronic..!!.
 
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NSHensley
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Re: To the newbies
Reply #205 - Aug 27th, 2016 at 6:31am
 
I am here, as well.  I suffered with the beast for 25 years...but am here to tell you that it can 'go away' for whatever reason.  I will tell you what worked for me when I had to deal with it and what my research told me. I hope I can help someone dealing with this horrific problem!
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