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Karl Ex Member	desparate times mean desparate measures Sep 16^th, 2008 at 9:00am geting hit 4-6 times a day and having seemingly constant shadows has now lead me to try an occiptal nerve block. i am having it done this morning and if anyone is interested i will share my results.
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kevmd CH.com Hall of Famer Offline Who needs a hypothalamus anyway? Posts: 524 x0\|philadelphia\|USA\|\|0\|0\|PA,Pennsylvania Gender:	Re: desparate times mean desparate measures Reply #1 - Sep 16^th, 2008 at 9:08am good luck Karl!!!!!!. Keep us posted and I hope you get some pain free time from this. let us know the details as it is something I will consider doing if I need it down the road
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: desparate times mean desparate measures Reply #2 - Sep 16^th, 2008 at 9:24am We're always interested Karl. I hope it buys you a break... -Dennis-
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Brew Ex Member	Re: desparate times mean desparate measures Reply #3 - Sep 16^th, 2008 at 9:51am You should always assume we're interested. The way to know we're not is when nobody responds to your post. Good luck, Karl.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: desparate times mean desparate measures Reply #4 - Sep 16^th, 2008 at 10:29am Keeping you in my families thoughts and prayers Karl, sounds like you could use a break. Please let us know how it goes, praying for the best. Guiseppi
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Ernie Moss aka Wishbone CH.com Junior Offline Posts: 93 Birmingham, AL Gender:	Re: desparate times mean desparate measures Reply #5 - Sep 16^th, 2008 at 11:13am My Prayers are with you Karl. Maybe this will work. Please let us know. Ernie
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Ungweliante CH.com Veteran Offline Happiness comes from personal choice \o/ Posts: 169 Helsinki, Finland Gender:	Re: desparate times mean desparate measures Reply #6 - Sep 16^th, 2008 at 11:46am Best of luck to you! I can totally understand why you're trying that. - Rosa
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teajay CH.com Junior Offline I DON'T get Migraines! Posts: 43 PA Gender:	Re: desparate times mean desparate measures Reply #7 - Sep 16^th, 2008 at 12:59pm I've done this, needles in the back of the head, makes your head and neck numb for a couple hours and then when a CH strikes your head kinda goes numb. It didn't break my cycle, it did damping the pain a bit, pins and needles was a bit strange during the hit though. Good Luck, I hope you make progress. T
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thebbz Ex Member	Re: desparate times mean desparate measures Reply #8 - Sep 16^th, 2008 at 7:05pm Karl, you better let us know how it turns out. We may think you dont care what we think, I think. Kick some demon butt. all the best thebb
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Karl

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Re: desparate times mean desparate measures
Reply #9 - Sep 17^th, 2008 at 9:24pm

well everyone i found a doctor that told me that my ch was caused by my posture and that with the excercises and the nerve blocks i would be cured!!!!!!! Smiley

thats right all you clusterheads sit up straight and you will be cured.
anyway i am done with my sarcasm now but it is true he did say that.
and after the onb he gave some excercises that read for migraines on top. (one of two pet peeves i have) I don't have frickin migraines you quack is what i was thinking.
after that the beast came back two hours later at the appointed time and still visits today only i think with a vengence. So i am thinking the onb was a waste of time and money again. Undecided

i am so tired and i am getting my ass kicked here guy's and i am starting to run low on fight in me.

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George

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Re: desparate times mean desparate measures
Reply #10 - Sep 18^th, 2008 at 12:44am

Sorry to hear that the ONB hasn't produced the desired results, Karl. And...posture? Hadn't heard that one before. Angry

Keep in touch, Karl, and if you need to vent--vent.

Anybody who's had an ONB have any insight into whether it works right away (when it works), or whether it takes a bit to kick in?

Best wishes,

George

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"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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DennisM1045

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Re: desparate times mean desparate measures
Reply #11 - Sep 18^th, 2008 at 12:39pm

Damn Karl

I had hopes for that procedure.

As you know all too well it can take a lot of trial and error to find the solution that is right for you. Don't loose patients. You have to be stubborn and relentless in your search.

It sounds like your Dr isn't treating you for CH. Is it time for a change? I think in your heart you know. Follow your heart Karl...

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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thebbz Ex Member	Re: desparate times mean desparate measures Reply #12 - Sep 18^th, 2008 at 1:25pm Chin up Karl, your not the first one that has failed on. It's tough being tough with the beast but you can do it. Stay on the fight,,,,we have fishin to do. all the best thebb
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Karl

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Re: desparate times mean desparate measures
Reply #13 - Sep 18^th, 2008 at 4:35pm

that so called dr wasn't my regular two doc's. I have a neuro with headache specialty and a very understanding and competent gp.
i guess i also have a VA doc but he just does what the specialest tells him to do. so i am cool with that.
the quacker i saw was an anesthesiologist that runs the pain clinic. no i am not going there again.
John i am still with you cause we definatly have some fishing to do with George, remember its a go for next sgring or so.
thanks for reminding me because it sounds like more fun than i have had in years and right now i need something to look foward too.

i am concerned about BrianJ in the uk sounds like he is having a hard time and i am also concerned about another person that was having a tough time but sorry my mind isn't functioning at full capacity and i have forgot his name.(oh i found it it was a mr floor)
anyway you all are my hero's cause you help me fight the good fight so i guess i will arm up for the 3oclock which is right around the corner Cry

again thank you for posting on this thread it gives me something to look foward too a couple times a day instead of the crap i am dealing with.
again you all rock!!!! Cool

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« Last Edit: Sep 18^th, 2008 at 4:38pm by N/A »

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CH-HELL

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Re: desparate times mean desparate measures
Reply #14 - Sep 18^th, 2008 at 9:53pm

Hi Karl, Sounds like we have the same doctor. I went to the pain clinic today and they did nothing a three hour drive and they want too treat the slipped disc in my neck, it only bothers me about one week a year and they want to treat that, what the f.
Enough of that I want to go fishing too PLEEEAASSEEE!
Take care, Phil

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cash5542 CH.com Hall of Famer Offline I love YaBB 1G - SP1! Posts: 1243 x1\|Ocean Pines\|USA\|usa\|498\|141\|MD,Maryland Gender:	Re: desparate times mean desparate measures Reply #15 - Sep 18^th, 2008 at 10:58pm Lisa had 2 and it worked but for a very short time, less than 48 hrs. but that was a nice break for her only to return to a full heavy cycle. Dhe infusion, inpatient, seemed to break it better. Charlotte
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George

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Re: desparate times mean desparate measures
Reply #16 - Sep 19^th, 2008 at 12:51am

Quote:

John i am still with you cause we definatly have some fishing to do with George, remember its a go for next sgring or so.
thanks for reminding me because it sounds like more fun than i have had in years and right now i need something to look foward too.

Absolutely right. That's one fishing trip I'm not going to miss. Looks like we oughta plan on Phil, too...

All the best,

George

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"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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wildhaus

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Re: desparate times mean desparate measures
Reply #17 - Sep 19^th, 2008 at 2:42pm

I am very sorry Karl that the GON didn’t give you some PF time,
I have (as you know) used the GON, and did get some substantial
PF time.
I wonder what did the Anaesthesiologist give you, did he use “just”
Lido, or did he use Betametason?
Now to the other statement the “Anaesthesiologist” made, which made me wonder,
is ch s caused by posture? I will have to ask the Anaesthesiologist at the pain Klink
what dose he thinks about this……. and wonder how will the neurologist look at me
when I tell her about this new discovery……. she is a neurologist / psychiatrist, and I bet
she will tell me to start and think about getting my head “fixed”
and give me that sorry look…… the one I get, when I come with a stupidity,
I have figured it all out, I have the long desired cure.

Michael

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on my knees

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Re: desparate times mean desparate measures
Reply #18 - Sep 19^th, 2008 at 4:53pm

hi wildhaus;
yes he used lido and betamethasone. i really wanted to laugh when that bonehead anesthesiologist was trying to show me how to do the excercise's there in the treatment room.
oh well i will continue on i guess, i pretty sure my neuro will have a laugh to. after all was said and done i was told that the bill would run around 2000.00 US dollars.
all that for two injections and some pictures of my bad posture Grin

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CH-HELL Ex Member	Re: desparate times mean desparate measures Reply #19 - Sep 19^th, 2008 at 9:58pm wow $2000 did they aleast kiss you first. Sorry Karl thats all you need just a little more stress, I wish I could give you the money. Don't get stressed its not worth it. I'm right there with you. Take care, Phil
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