Hello Scott!!!

I'm new to the site to but not to CH.  I'm sorry you are not getting any help from your neuro.  Keep at him.  Don't ever let any doctor tell you that they can't help you.  That's what they pay the big bucks for!!!  If your doc insists he can't help, find someone else or educate him yourself.  Bring in a headache diary and all the information you find on the internet. 

As for the Red Bull, I do find it knocks the shadows out and really helps with the O2.  On good days, I slam 1/2 a can before I start the O2 and within 5 minutes on O2, the CH is gone.  I then down the other 1/2 of the can.

I, too, get very hot at the start of a bad attack.  It feels like I am a turkey roasting in the oven.  Ice helps.  I also get a bad knot in my neck at the area where the neck and the head meet.  When my CH is subsiding, I get very cold, it can take me upto 20 minutes to warm up.

I hope you are doing better!!!

Laura

Scott,

As you have read by now your not alone even though it may feel like it YOU ARE NOT ALONE, everyone on here has been through or gone through similar incidents and at some point have all felt that way regarding CH and the way it inpacts on our lives, i know from my own experience nothing is ever as bad as the begining and finding the help, meds, support you need but once one comes into place everything soon follows some sooner than others.

Good Luck PFD to all and keep fighting!!!

SI

Scott no worries, but the offer will still stand should you ever need it!!

10 - 15 mins on the oxygen may not be long enough to keep your attacks from coming back!!

the usual advice is to stay on it full blast for 10 mins then reduce (if you want) and stay on a further 10 mins, then when the attack has gone, stay on another 10 mins, and hopefully you shouldn't get any rebound attacks!!!

what kind of mask are you using???  it should be a non rebreather!!!

good luck

Sandra xxx

you should aim to be on the O2 for about 25-30 mins!!

as i said, get on the O2 asap  after the attack starts, 10 mins will prob take away the severe pain, then another 10 for the attack to completely go, and once it's gone another 5 - 10 mins should kill it completely and stop any rebounds!!

but, Scott, after you have been using it a few times you should be able to work out what's the best way for you!!!

any more probs give me your no and i'll phone you and talk you through it!!!!

sandra xx

no probs Scott!!!

honestly I'm not a stalker!!! 

just want to make sure you are using the O2 the best way to help you mate!!!

good luck

Sandra xx

Scott Lawrence wrote on Dec 10^th, 2008 at 4:55pm:


You have no idea how it warms my heart to hear of success with O2.

My DH (Brewcrew) gets great relief from it and it's such an easy relatively side-effect-free way to abort these dastardly hits.

Glad to hear you're one of the lucky ones!!  

Hey Scott,

Glad to see the o2 is working for you. My mask was really flimsy too and I had to put tape over the holes on the sides, but if it works, it works right?

Keep smiling. This damn thing hasn't killed any of us yet and it's not going to either. We win by staying strong.

Em
x

Update...

O2 still kinda working, took 2 hits over the weekend it didn't touch and was forced to inject, finding it hard at night to get back to sleep after 20 mins with the mask on......any ideas?

Still not going out though, managing to go to work and back, only because I have tanks at both places, manage to go shops and stuff to get food early Sat before gets busy, find being around people stresses me out which in turn bring one on.....again any ideas??

Feel like I'm living just for the sake of living if you know what I mean, don't mean to bitch, but spend my time either at work or in my flat....not exactly a life....could it be that the paranoia of having an attack while out is bringing them on while out? If so, any ideas???

Thanks people.

New Head Required...  I'm Bluedog, got ch's for the first time within weeks of when you did...  i am praying that the last 3 days will continue with no ch's and that the shadow's i've gotten in the mornings will go away also.  Dude... over 1700 times there have been people at this site reading this thread and I have been following your story also.  I'm sorry you haven't gotten the relief you desire as of yet.  I have taken to solitude myself during the past couple of months, it DOES make you anxious to know you could be somewhere without your abortive or medications.  I just wanted to comment on your last post and remind you of the quote you have in your profile...

“Understanding is the first step to acceptance, and only with acceptance can there be recovery.” “I enjoy convalescence. It is the part that makes the illness worth while.”

Don't let the beast control your life...  I am trying not to either and it is one of the most difficult battles I have had to endure.  I actually quit my job during this battle and have to find a new one real soon because I'm completely broke now.  I am just hoping that you don't give up on this site because it really does help to sound off when you need to and to receive input from others who share the pain.  No harm in lurking and chiming in when you want to.... just know that everyone here including myself is wishing you the best and we hope that you hang out a long time...  there's a place for all of us here.

Best of Luck to you for PFDAN's.

Bluedog