I hear what your saying, and I have printed it out to take with me today along with some stuff that Helen has advised on.

I must admit, I'm feeling kinda of uneasy going in there and just demanding these medications, I'm really unsure what the reaction of the gp will be.

What if they do say no? Then what do I do? Do I refuse to leave the surgery or something?
I can't get to see my Neuro until next Thursday and I need to get something sorted, another 2 bad ones last night and the Rizatriptan did nothing again....already done my days dose as well, so god knows what awaits me later....

Scott Lawrence wrote on Nov 4^th, 2008 at 7:20am:


Recently a friend, a migraine sufferer, loaned me essential oil for *aroma therapy*.  She said "doesn't cure but helps".  I said to myself, "yeah right....."  But it did help kinda sorta!  

It was "lavender and peppermint".  So it had a menthol-like soothing effect on the temple.  I use a Bengay type of a thing for muscle/joint aches, so I returned the essential oil because I got "something stronger".  If your sense of smell gets sensitive during the attack, those smelly things might make it worse though!

As far as Horner's syndrome.......  I don't think there's anything we can do to make it go away.  When it's real bad, I look at myself in the mirror, show it to my husband, to laugh at myself.......

Sorry you're having a rough time.  I've gone through episodes in college (no $$ for a doc or meds) with nothing but a handful of Tylenol and coffee, so I know what "perfect 10" feels like.  Hang in there.

I spoke to Scott earlier and he was very down. His GP is about as much use as a chocolate fireguard and I'm firing up broomstick one for a quick flight down to Mitcham if needs be.

Scott - I meant everything I said earlier on. PM me your address as we discussed, if I'm not about later it's because I've gone to fireworks with the kids but will be home after 9pm and that is fine to call if it's not too late for you. Anytime up to about 11pm ish is okay. Trust me, we WILL get this sorted okay? I don't make promises I won't keep and I need a nice GP hood ornament for my car LOL

Helen

I feel a spot of GP education coming on...

Scott, I've just pm'd you. I'm so mad I could spit. I WILL be coming down to see your doctor if you want me too.

Oh how I wish I had a ten second zapper right now...

I've read the tip, and to be honest, having never done anything like this before, I'm going to stick to doing it normally for now and see how I get on.

I'll let you know how I get on with it later....or maybe by some miracle I'll never have another hit and never have to use it.....there's wishful thinking...

Quote:



O.K. Now I am hopping mad.  Charities?   CHARITIES>?????????


Helen,  This poor bloke needs an advocate badly.  This Doctor needs a rectal exam with a broomstick.  OMG....this kind of stuff just makes me want to jump on a plane.

   I am glad to see the injections worked, they work for most of us most of the time.  As far as apporoaching the doc I dont have much advise accept dont take NO for an answer,  I always try to be nice at first and then see how them react.  Dont go in there saying these are suicide headaches they will try to lock you in a padded room,  but make sure they give you the help you need.  The o2 I would continue to try to get,  most docs are willing to listen when you say you need o2 but they dont know how to perscribe it for a clusterhead.   Hang in there man,  did you try the Red Bull?          Phil

Scott,

I had EXACTLY the same thing happen to me. I went to see my usual GP who had been very kind and good in getting to the bottom of what was going on, but he wasn't available. I had another GP lecture me about o2 and how NICE had just released some guidance on using o2 for short-term relief. He was so horrible, I just cried and cried.

I went back the next day to my nice GP and he did the work for me then and there.

Don't lose hope - is there more than one GP at our surgery? If so, see someone else. Alternatively, complain to the Practice Manager. Print off the info about o2 to the left and take it with you when you go. Don't be too afraid to stand up to them - not in a confrontational way, but in a positive way.

With Helen looking after you, you'll be all good. You're welcome to PM me if there's anything I can do.

Welcome to the fold.

Em
x

Back in from the GP....

Firstly, apparently, and I quote "O2 is only prescribed by a Neurologist, and even then only after you have had blood tests" This was told to me by another GP as the Witch had a day off.....lucky for her....wish I could..

I kinda gave up asking about the O2, I was going nowhere fast and no-one was prepared to help.

Then I said that I needed more Imigran, seeing as I had none left, the receptionist said I could fill in a form and collect the stuff on Wednesday....?!?!?!?.....Needless to say, I absolutely lost the plot (The other 15/20 people in the waiting room can vouch for this)

I may have said things I shouldn't have, and I know it doesn't help, but they really peed me off this morning...

So I ask to speak to the practise manager...who has no medical experience?!?!? She basically spits out the same stuff as the other GP, I tell her I need a prescription now, and I need enough to last until I see the Neuro, she goes away and brings back a Prescription for 2 doses......WTF?!?!

By this point suicide had completely left my mind, Murder was all that I could think of.....

Eventually after much crying and being told that I wasn't a doctor and had no right to question them, I got a prescription for 5 days, so they will last until Tuesday, but I'm going to have to go back....

On the way out, the Practise Manager kindly pointed out that there were other practises in the area, and it might be a good idea to register with one of them, I pointed out that all I want is the right meds, in the right quantities, I understand there is no cure, but I am entitled to a relatively pain free existance, which I would undoubtedly get if they would listen to me. Once again she pointed out that I had no medical experience and she was not there to argue with me....

Scott - I want to know who your local MP is and when his surgeries are. I also want to know the name and address of the GP practice and practice manager and your PCT.

I'm going to call later on to speak to you further but this farce is stopping.

Helen

Go kick some ass Helen.

Scott, i dont kow what to say other than if you need some Northern Monkeys to come down and knock those Southern Doctor fairies till they get some sense then just ask!!!! LOL

Go Helen help Scott as much as you can, i cant believe the way he is being treated!!!!

PFD TO ALL