Hi Andy,
             im having the same issues !!!
I'm swapped to the one you mentioned the triple one, but unfortunately made no difference !
ive dropped down to a 225mg mag citrate and for the last few days, well, so far so good   lol
It seems when ever I try to take 400mg of what ever brand,  I get a reaction !
there's 50 mg in the multi we take, plus the 225 citrate I take, so that's 275 total mg's.  As I mentioned in a previous post, im going to try and do the rest in diet, It was interesting to find out, that for every 100 gramms of banana, there's 29 odd mg's of magnesium content ! So because im a two a day banana guy ! plus there's other foods which have good magnesium content, Im going to stick with the multi and the 220 mg tablet and get the rest from diet. other foods are brown rice, advocado, dark chocklate, beans and lentils,   with diet, it doesn't seem to effect me as such !
   Hope that batch agree's with my theory ??????

colin

Funny how you describe the "psychological" factor of keeping a couple of oxygen tanks Michael. I'm 4 years pain free and still can't stand the thought of parting with my E tanks I keep stored in the garage! Great to hear you've tamed the beast.

Joe

Batch & Colin,
Thanks so much for the feedback. Very helpful in determining which Mag to get. Also good to read these recent success stories. PF days to all!!

-Andy

wildhaus wrote on Aug 13^th, 2014 at 8:02am:


Michael, you have summed up how I feel. 26 months and counting since I have used my O2 (THANK YOU BATCH). I may never be ready to return my two M-60 tanks....well, maybe one of them which is half-full.  31 years of CH without a preventative med I can tolerate has made me very jaded. But this anti-inflammatory regimen is slowly changing my attitude, which is good, since in most other aspects, I'm an optimist.

Being methodical and disciplined regarding CH is so ingrained for me now, I can't even imagine not being that way.  Funny how CH pain teaches through negative reinforcement.

Hi batch,  my supplement source of vit A is currently from the Kirkland mature multi, the same as you take,  are you suggesting to maybe add to that, is that sufficient !
Im going to get tested next week, so it will be interesting.
but I am going to concentrate on the supplements, by as mentioned the splitting of the magnesium tablest ( so far so good ) plus I am going to re start taking calcium, as I was getting 220 mg in the kirland muti and thought I had a high general calcium intake. I did read that if you are taking higher doses od vit d that your calcium intake should be up around 1000-1200 mg daily ?
Feisty, as batch has recently posted, that some of us need to get our levels up to 250 nmol ( 100ng) to achieve a pain free status. some here that have gone pain free do so easily, but some of us have to go that high. Its trial and error, otherwise everyone, not just the 60 % of those on the regime would go pain free. It is well short of intoxication levels, and at 80ng ( 200 nmol ) I was not pain free, but titrating up from that level earlier this year in January, killed the shadows off.  The big problem feisty is that what we are doing, there are not only any studies to say vit d levels above 100 ng ( 250 nmol ) have any benefits as you say, but there are also no studies to say that keeping the levels at 80 ng ( 200 nmol ) do any good either, there are no official papers or studies to confirm any thing that we are doing. Dr Gominak's lectures were great and I watched them with interest, but I must point out, that at no point did she mention cluster headaches ! her main reference was sleep, now I believe that their is a link, but while my D levels were at her recommended level of 80 ng ( 200 nmol ) and I had completed a course of the recommended B plus its called down under, I still got hits.
It seems I fall into the bracket that the regime dramatically reduces its intensity, and maybe regularity, But its extremely hard as an episodic to know exactly when im supposed to get cycles. Last year, every 3 months I felt symptoms of a cycle, but they didn't really break through, in other words, light shadows, with sinus type sensations with heat flushing, But it seemed that the D3 regime was keeping it at bay, the January episode was different, much heavier shadows, but titrating up totally killed it off. last month, heavy shadows returned for a whole month and titrating up for 2 weeks didn't kill it off, then 28th of july I went into full blown cycle, but the intensity was much much less than my last full on cycle, January 2013. I would rate it at about 50 % better ( average kip 5 ).
Some where amongst all this, there is an answer ! im positive of that, whether it be the actual vit d levels or its supplements, I don't know,  but I do know one thing, and that is that everyone reacts differently, otherwise everyone would be pain free ! so its just a case of tweeking everything to find that balance to get you pain free.
similarly, I don't believe that everyone will go pain free at 80 ng ( 200 nmol ) as dr Gominak states,  or by being at or over 100 ng ( 250 nmol )  its just not that simple.....
The only difference for me has been I went off verapamil 3 months ago, to be stand alone on the regime, maybe I need to be on both to achieve a pain free state, who knows, but I'm certainly tweeking things around to try and get to that point !  I sure do envy the "60" percenters  on the regime that go pain free, its sounds like a good club to be in      and one I intend on joining very soon   
regards
colin

Well, here's an update of my dh's results so far. His cycle started June 24, approx 8 weeks ago. He's never had a cycle in the summer (usually October), that has lasted this long (usually 3-4 weeks), or been this bad (2-3 attacks per night much of the cycle, some very long attacks).

Dh started Batch's Anti-Inflammatory Regimen 28 days ago (except it has been lacking boron, which was not available locally or included in the multi I purchased. dh was taking honey as a source of boron but he will start a boron supplement as soon at it arrives). Based on Batch's advice, dh did an accelerated loading schedule in the first two weeks. He has taken a total of 580,000 IU of D3 within the 28 days.

When he started the Regimen, dh was getting 2-3 attacks per night and they were pretty brutal. After 14 days of the Regimen, dh's attacks dropped down to one per night. On day 21, he had a single pain-free night. Then within the last week, the attacks have been one per night, and milder, with pain-free nights on days 26 & 27 (last two nights ). At this point, it's possible that dh's cycle is ending naturally, but the pattern of CH intensity seems to correspond with the pattern of D3 loading.

It's day 28 so dh did the 25(OH)D blood test that we will mail into GrassrootsHealth. When we receive the results we will fill in Batch's survey.

I am really hoping that it's the Regimen that is contributing to the pain reduction so that we have a long-term prevention solution. Thank you Batch for the work that you have done on this.

There are so many reasons to take the Anti-Inflammatory Regimen other than CH, so I and my children (modified) are taking it as well.

Very useful information Batch - thank you. You're confirming other things that I've read about optimum serum concentration of 25(OH)D - that higher levels may be needed for therapeutic benefit than for general health.

I hope that the medical community embraces the Regimen as a treatment for CH so that medical testing and supervision becomes widely available when higher levels of supplementation are needed. It's so strange to me that dh was prescribed dangerous narcotic pain medications for CH when he was living in the US (that didn't even work), but not offered oxygen or supplements. I'm glad to read that some CH sufferers are getting medical supervision for higher dosing levels, but I'm not optimistic that our "minimalist" health care system here in Canada would provide that  . The policy in this province is to NOT pay for 25(OH)D testing even if a doctor orders the test - many Canadian sufferers would have to pay approx. $240/yr to have testing every 3 months just to monitor their 25(OH)D levels.

Well worth it if the Regimen proves to be effective, of course. And much cheaper than oxygen which we don't have coverage for from private insurance or government funded health care.

Not Batch but...

Quote:

Kirkland Mature Multi has:
Vitamin A 2,500 I.U. as Beta Carotene
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Quote:
There is no agreement on this from my reading. But here's a summary of one line of thinking:

Quote:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Batch wrote on Aug 18^th, 2014 at 3:06pm:
I think the listing on that site is confusing - I believe the 50% for Vitamin A refers to the "% daily value", not the % "as carotene". I'm assuming it's 100% "as carotene".