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k.pascoe CH.com Newbie Offline I Love CH.com! Posts: 3	Re: Anti-Inflammatory Regimen and Survey Reply #175 - Dec 7^th, 2013 at 12:38pm Gonna give this a try. I've been taking GNC's Mega Men Performance & Vitality vitapak for almost a year now, it does have most of what's needed here, just not enough of it. Off to Target!!!
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #176 - Jan 27^th, 2014 at 6:58pm bump
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #177 - Mar 27^th, 2014 at 10:14am Bump
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #178 - Apr 1^st, 2014 at 1:41am G'day Batch, I'm just wondering. Does calcium citrate cause constipation .
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #179 - Apr 1^st, 2014 at 11:41am Hoppy, I guess it's possible... but I've never had that problem... Eating plenty of roughage, pushing fluids, and 400 mg/day magnesium along with the rest of this regimen usually keeps the GI tract moving nicely. Take care and please keep me posted. V/R, Batch
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #180 - Apr 9^th, 2014 at 7:00am G'day Batch, I think I've found the culprit. Being a chocoholic and eliminating it things seem to be getting back to normal. I wonder, do you think i'm on the money? Best Hoppy.
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #181 - Apr 9^th, 2014 at 3:24pm Hoppy, It's possible chocolate is the culprit... That said, pushing fluids and eating enough roughage and fruit should keep things moving nicely... If that doesn't work there's always the dam buster... prune juice... Take care, V/R, Batch
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Hoppy

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Re: Anti-Inflammatory Regimen and Survey
Reply #182 - Apr 9^th, 2014 at 5:40pm

G'day Batch,
Fluids and me seem to have a love hate relationship.
I never drink water by itself, my wife constantly moans
to me about it, but I just don't like it, but I drink pure
orange juice daily, have a banana and sultana bran for
breakfast with a cup of tea. My wife blames it on not
drinking water during the day and says i'm dehydrated
because I have a beer and a wee dram at lunchtime.
But, not drinking water has never bother me in the past.
Do you think it could be all in the water?

Best Hoppy

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #183 - Apr 9^th, 2014 at 8:06pm Possibly it could be related, especially with living in Perth where it can be hot and dry most of the year. Experiment with water, maybe try sparkling or filtered. Once you get used to it it seems perfectly normal.
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #184 - Apr 9^th, 2014 at 11:14pm G'day Mike, I'm thinking of giving it a go with a squeeze of lemon juice. And, see how I go. Cheers, Hoppy.
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tpos

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Re: Anti-Inflammatory Regimen and Survey
Reply #185 - Apr 10^th, 2014 at 11:35am

hello all, I'm brand new here, I was diagnosed with cluster headaches about 6 years ago, had them for 3 years in a row then they disappeared for two years. well as of a week ago they are back. I've switched doctors since being diagnosed and without my records he says he can't just take my word for it so he put me on nasonex and ibuprofen for a week saying it might be temporal arteritis and to see what happens. there was no arguing so I just took it and started doing my own research. 6 years ago there wasn't as much info on CH as there is now, and I found this regimen and am on day 3. with that being said about my doctor I think he's just going to look at me like I'm crazy if I ask for a d3 test, plus I'm on Medicaid (or Medicare? I'm only 24, I get the two confused) so I'm thinking about ordering my own blood test from the link posted earlier in this thread. I really hope this D3 regimen works, I get 2 at night and usually 2 during the day and I just can't take it anymore. so it's been 3 days, and I'm already a daily vitamin taker, so there's no adverse reactions so far, do you think I should be starting the weekly loading dose? or should I wait it out? I'm really just eager for something to work. I have a doctors appointment Sunday so he'll probably send me to get an MRI during the week then who knows what that will lead to. I'm not a big fan of prescriptions, I'd much rather go the natural route.

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Batch

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Re: Anti-Inflammatory Regimen and Survey
Reply #186 - Apr 10^th, 2014 at 1:13pm

Hey Tpos,

Welcome to the anti-inflammatory regimen... Given you've been taking vitamin D3 for a few days with no problems noted in your post... I'd start the vitamin D3 loading schedule. Make sure you continue to take the Omega-3 fish oil and all the cofactors...

I would also order the $65 ZRT home blood spot test kit for 25(OH)D through the Vitamin D Council and save it until you're done with the 4 week vitamin D3 loading schedule.

Nasonex and ibuprofen won't do diddly for CH so I see no real need to be taking them other than to satisfy your doctor's guessing game... That way when you tell him they didn't do anything to stop the headaches, you can ask for home oxygen therapy at a flow rate of 15 liters/minute with a non-rebreathing oxygen mask.

You'll find oxygen therapy at the top of the list as the first abortive of choice in the standards of care recommended treatments for CH... See the following link: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Scroll down to "Major Recommendations"

Take care and please keep us posted.

V/R, Batch

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tpos

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Re: Anti-Inflammatory Regimen and Survey
Reply #187 - Apr 20^th, 2014 at 2:00pm

ok so it's been 9 days since I started the loading dose schedule, my headaches have been really weird for lack of a better word, some days I get very light pain for extended periods, other days excruciating for 1-2 hours, even a day or two with close to nothing. I've been trying to notice things I eat different and seeing if that has an effect, I think sugar one day makes headaches the next day worse, but I'm not positive there's still other things that could be doing it. I've noticed if I exercise in the morning I can push a headache back further but it almost always comes no matter what. also my doctor prescribed me immitrex to try and see if it helps, he said if I need more than 2-3 a week he wants to try something else, so far I've needed one every day. anyway, just to make sure, my second loading 50,000 IU dose was Friday, so that means no 50,000 loading dose this Friday correct and go down to 15,000 IU on Saturday which would be the start of the third week?

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Batch

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Re: Anti-Inflammatory Regimen and Survey
Reply #188 - Apr 20^th, 2014 at 2:49pm

Hey Tpos,

The change in your CH patterns is an indication you're building 25(OH)D... Avoiding sugar is a good idea... Max out on fish, chicken with lots of greens, beans and fresh berries... I keep a jar of mixed nuts next to my laptop...

The important thing to remember is the loading schedule is just a guide. The 600,000 IU of vitamin D3 over four weeks should result in an average 25(OH)D response of 60 ng/mL on top of the starting value...

Some of us are clearly not average so that makes the actual 25(OH)D serum concentration the important measure... That said, a lasting cessation of CH for more than a week is the best indication you've got your 25(OH)D up in a therapeutic range...

What you might want to try is taking the vitamin D3 a little differently. Pop your daily dose of the liquid soft gel capsules between your back teeth and hold the contents between your cheek and gums for 20 minutes without swallowing or drinking any fluids. The vitamin D3 tastes a little sweet and the gel coats gradually dissolve after turning into a gummy bear texture.

Taking the vitamin D3 this way should increase absorption as it bypasses the lower GI tract as it passes directly into the bloodstream. Continue to take the Omega-3 fish oil and all the cofactors... Magnesium, zinc and vitamin A (retinol) are the big three at this point.

Take care and please keep us posted.

V/R, Batch

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #189 - May 29^th, 2014 at 12:14pm bump
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Anti-Inflammatory Regimen and Survey Reply #190 - Jun 3^rd, 2014 at 8:05pm Got through another Autumn and no CHs Hoppy.
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Kel77

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #191 - Jun 17^th, 2014 at 2:08pm

Hello
I'm new here. I don't have cluster headache (sorry if I'm gatecrashing!), but I've had an extreme constant head, neck, face, teeth pain and tinnitus since hitting the back of my head on a wall last July. No drug numbs the pain, Topiramate (evil drug), Gabapentin, Indomethacin, Tapentadol, Oxycodone etc.
Only one thing helped for a short while, 50mg of Prednisolone, but I can't be on that forever.
I can't work, and it's unbearable.
My third neurologist thinks it could be some kind of inflammation, so I found this thread, and just wanted to let you know I've ordered all the stuff and gonna give it a go.
My friend does suffer with clusters, so I'm passing the info on to him too.
It's amazing it's helped so many people. Thank you Batch

.

Kelly

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Batch

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #192 - Jun 20^th, 2014 at 12:37pm

Hey Kelly,

Thanks for the post... and gatecrashers like you are always welcome... Good move on both counts.

There's every reason to expect a reduction in your chronic headache pain symptoms after starting the anti-inflammatory regimen. The odds are good your friend with CH will also experience a reduction in the frequency, severity and duration of his CH when he starts it.

I've updated this post (first few pages), with the latest version of the anti-inflammatory regimen. It now contains a 3-month course of vitamin B 50. This came as a suggestion from Dr. Stasha Gominak, MD. See her videos on this topic at the following link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Dr Gominak is a neurologist in Tyler, TX and she's been treating patients with sleep, chronic pain and headache disorders for over 6 years with a vitamin D3 regimen very similar to the anti-inflammatory regimen. The only real difference is she adds the 3-month course of vitamin B 50.

Take care and please keep us posted

V/R, Batch

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« Last Edit: Jun 20^th, 2014 at 12:40pm by Batch »

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Putter

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Ontario Canada
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Re: Anti-Inflammatory Regimen Update and Survey
Reply #193 - Jul 14^th, 2014 at 1:09pm

Hi, I am a long time CH sufferer and used this site last in 2007. My last bout was in 2010 and I was so hopeful I might never get them again. Alas, they started on July 1st. I got into my Headache Doc quickly to start the verapamil, prednisone (10 pills for 10 days, then taper one down per day for 10 days). I am taking 8 tomorrow, 7 on Wed....
Then I read all about the Vit. D Treatment and other vitamins. Even on the prednisone, I have had a couple of hits, but in my vitamin cabinet, I happened to have Vit D and Fish Oil capsules. Started two days ago and no CH. I am pleasantly surprised! I am going to reread the entire recommendation that Batch posted (wow, thanks!) .
I wonder how things will look in the next 8 days as I taper off prednisone. I feel like I have a lot going on with Prednisone, Verapamil, Imitrex on standby and the o2 was delivered today. Now with the Vitamins... I am going to need to buy one of those pill holders to remember everthing! I will also look into the Vit. D test mention with my Doctor. Amazing that you (Batch) stumbled on this and have helped so many. So grateful I read this, Thanks, Leanne (Putter)

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thierry

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #194 - Jul 15^th, 2014 at 3:34pm

Hi Putter, The Batch Vit D3 regimen is the way to go. I am pain free for 16 months now (apaprt from the occasional shadow) thanks to the regimen. The last few pages (if you don't want to read all the pages) of the "123 days pain free" thread are most informative and i would recommend to anyone on the site to read it.
I would also recommend that you start the regimen A.S.A.P with loading doses of D3 as well as all the other ingredients of the regimen.
All the best, I hope that you stay pain free.

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Batch

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #195 - Jul 16^th, 2014 at 12:18pm

Hey Putter,

Thanks for the feedback. Taking all the nutrients listed in the anti-inflammatory regimen at the suggested doses is important. Taking enough vitamin D3 (the loading schedule) at the start of this regimen is also important. This will help prevent a relapse after an initial favorable response.

When CH'ers who are clearly deficient in vitamin D3 start taking this regimen at 10,000 IU/day roughly 10% experience an initial favorable response followed by some onerous CH hits.

What appears to be happening is the initial doses of vitamin D3 start working to prevent CH within 24 to 48 hours as soon as it's metabolized in the liver to 25(OH)D, but the immune system's regulatory T-cells also start gobbling up the 25(OH)D as well.

The first few days of vitamin D3 results in a bloom in the number of regulatory T-cells so they may be consuming even more of the 25(OH)D along with the enzymes needed to metabolize it to 1,25(OH)2D3... This may leave too little 25(OH)D along with dips in the availability of the essential enzymes needed to prevent CH.

The simple fix for this problem is to start the vitamin D3 loading schedule. This will ensure there are sufficient quantities of vitamin D3 and the other essential supplements to handle both the prevention of CH and activation of the immune systems regulatory T-cells.

Hope this helps.

Take care and please keep us posted.

V/R, Batch

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« Last Edit: Jul 21^st, 2014 at 1:44pm by Batch »

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Putter

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #196 - Jul 16^th, 2014 at 10:03pm

Hi Batch,
Thanks very much for the added input. I have been reading a lot of your advice to others which has been equally interesting and insightful.
I am still tapering off prednisone, only 6 tomorrow. I had a CH this morning, after 5 pain free days. Not bad.
This afternoon my family and I arrived in New York State (vacationing) so I bought Vit. D3 5000iu and promptly took 20,000iu. We shall see what transpires, plus I will add the other supplements that I need.
I am really looking forward to having a chat with my Doctor and getting the lab test done.
Again thanks for the support.
Wishing those who read this PF days and nights.

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shooky

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #197 - Jul 17^th, 2014 at 7:20pm

I found the D3 and Omega 3 to be the most important ingredients of the regimen. But almost every other ingredient has really good reasons to be helpful as well - magnesium being a calcium-channel blocker much like Verapamil; Vitamin A which is needed in order to absorb the D3; Vitamin K with its crucial effect on blood vessels self correction processes (it also inhibits an enzyme that releases testosterone in the urine, which some of us lack); and so on.

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feisty

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #198 - Jul 21^st, 2014 at 3:10pm

I studied Vitamin D a lot when my daughter developed a bad case of early childhood caries. I stumbled on information about traditional diets and how they were high in vitamins and minerals that we don't get enough of in modern diets. I believe that taking high vitamin D cod liver oil and butter high in vitamin K were part of what worked to arrest her caries! I never expected all my research to be recycled to help my husband with CH!

This article may be useful to understand how important the cofactors are:

Is Vitamin D Safe? Still Depends on Vitamins A and K! Testimonials and a Human Study
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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I have found the above site to have a lot of useful information about Vit D, A, K.

From my research, the best source of Vitamin K is butter - when it comes from cows eating rapidly growing grass in the spring and fall seasons. It's good to stock up on butter at the right time of year, freeze a year's worth, and use it in cooking and baking. (more info: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

)

Please note I have no financial stake in any health-related products, information, or services. I am simply an obsessive researcher!

Thanks very much for your work on this Batch. My husband recently started a cobbled-together supplement regimen and I'm going to buy more supplements today.

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« Last Edit: Jul 21^st, 2014 at 3:31pm by feisty »

wife of 48 year old husband who suffers from episodic CH ~ Batch's Anti-Inflammatory Regimen works!

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Batch

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Re: Anti-Inflammatory Regimen Update and Survey
Reply #199 - Jul 21^st, 2014 at 4:43pm

Hey Feisty,

Where in BC? I live 20 miles West of Seattle...

2000 to 3000 mg/day Vitamin C is great for teeth as well. It helps eliminate tarter buildup and kills most of the bacteria and virus associated with dental problems.

Get you husband tested for 25(OH)D. Be sure to ask for the actual serum concentration and not the doctor's interpretation of "adequate" or "normal."

While you're at it... you should get your 25(OH)D tested too. My wife has been on the complete anti-inflammatory regimen taking 15,000 IU/day vitamin D3 for over three years and loves it. She's not a CH'er but she was a chronic migraineur for over 20 years... She hasn't had a single migraine since starting this regimen.

80 ng/mL, (200 nmol/L) is a good 25(OH)D serum concentration to shoot for in order to prevent CH... That usually requires a maintenance dose of at least 10,000 IU/day vitamin D3 plus the Omega-3 fatty acids and all the vitamin D3 cofactors...

Take care and please keep us posted.

V/R, Batch

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