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Topic: Who is who here to the newcommers (Read 24381 times) |
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Linda_Howell
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Hearing is one thing. Listening is another.
  
 
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Re: Who is who here to the newcommers
« Reply #75 on: Nov 17th, 2005, 6:12pm » |
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Jonny, that would be awesome for you to do that for Cathy. WHAT A GREAT IDEA!!!!!!!!!!!!!!!!
You wouldn't have to be as bald as Jimi Hendrix.
You've got enough for a wig AND and nice haircut. 
And yes, Margi is correct.....lots of women would die to have your hair.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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jangus
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From under the Redwood Canopy
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/S
« Reply #76 on: Nov 17th, 2005, 6:57pm » |
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Hi all... I'm Johnny A from the Humboldt Hills of Northern California. I'm 49 years old and have been a victim of CH since I was 23 (26 years). I've tried many, many methods including Homeopothy, Quantum Energetics, Cranial Sacrum therapy, Chiropractics, Accupuncture, Reike, Shiatsu, various folk remedies and even flew to see a witch doktor living in a cave on Parangtritis Beach on Java, Indonesia. I started my current cycle on November 6, 2005 and I've since had 3 sessions of Quantum Energetics and 1 session of Accupuncture/Shiatsu with Chief Surgeon, Dr. William Zhao in Eureka, CA.
I also have been using 10 litres per minute of 100% Oxygen for 15-20 minutes at the onset and drinking at least 200 ounces of water per day. Last night was the first in this cycle that I did not have a CH. Yeah!
Tomorrow, I will receive another session of Quantum Energetics by someone that has been practicing for 15 years. She knows her stuff! This form of therapy has helped me acheive my longest interval between cycles... 3 years and 1 month!
When none of the above works, I use the very expensive Maxalt which seems to abort the CH about 85% of the time. But at $50 per headache, I try not to eat them all up in one week. Cafergot works as an alternative, but not nearly as effective...maybe 45% of the time... I don't know... especially as I get deeper into the cycle. If Cafergot doesn't work, then I move to Dilaudid which enhances the "dizziness" and "nausea" to horrible levels. Hangover to boot! Later on in the cycle... when I'm up to about 16-20mg of Dilaudid, and still not getting results... I'm off to the emergency room for muscle shot of Demerol... now we're talkin' hangover! Blahhh!
Give me LSD or give me Psilosybin or give me death!
Much sincere sympathy to you all. I too am extremely grateful for this site and all of your warm, wonderful, supportive commentary.
Peace be with you.
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gonna get up in the morning
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Jonny
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Re: Who is who here to the newcommers
« Reply #77 on: Nov 17th, 2005, 7:01pm » |
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on Nov 17th, 2005, 6:12pm, Linda_Howell wrote:
Jonny, that would be awesome for you to do that for Cathy. WHAT A GREAT IDEA!!!!!!!!!!!!!!!!
You wouldn't have to be as bald as Jimi Hendrix.
You've got enough for a wig AND and nice haircut.
And yes, Margi is correct.....lots of women would die to have your hair.
Linda |
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Have you seen her?....She has three times my hair in curls and its bearly past her shoulders......LOL
If I do it im going all the way, Im hair for sufferers and supporters equally 
Oh God!!....LOL
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Re: Who is who here to the newcommers
« Reply #78 on: Nov 17th, 2005, 7:34pm » |
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Welcome Jangus.
There is a lot of info and help here. Also go to:
Quote:| http://www.calouch.org/cgi-bin/yabb/YaBB.cgi |
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We are a chapter of OUCH and maybe you might feel more comfortable talking to us over there as we can possibly help you with problems known only to GOD and Californians. lol Just kidding.
Linda
p.s. Quote:| Im hair for sufferers and supporters equally |
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I do not believe you said this Jonny. lmao!
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: /S
« Reply #79 on: Nov 17th, 2005, 7:57pm » |
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on Nov 17th, 2005, 6:57pm, jangus wrote:| Hi all... I'm Johnny A from the Humboldt Hills of Northern California. I'm 49 years old and have been a victim of CH since I was 23 (26 years). I've tried many, many methods including Homeopothy, Quantum Energetics, Cranial Sacrum therapy, Chiropractics, Accupuncture, Reike, Shiatsu, various folk remedies and even flew to see a witch doktor living in a cave on Parangtritis Beach on Java, Indonesia. |
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Well, at least you ruled out all the bull- shit
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BobG
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Re: /S
« Reply #80 on: Nov 17th, 2005, 8:13pm » |
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on Nov 17th, 2005, 7:57pm, Jonny wrote:
Well, at least you ruled out all the bull- shit
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LMAO!
Quantum Energetics? Isn’t that the Canadian Company that sells hand grenades?
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Stay stressed. Never relax. Never sleep. Ever.
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jangus
New Board Newbie
From under the Redwood Canopy
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Re: Who is who here to the newcommers
« Reply #81 on: Nov 17th, 2005, 9:16pm » |
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Like I said folks... Quantum Energetics has honestly been the only real "cure" I've found in 26 years. You can joke about it, but if relief is what you're looking for... I strongly suggest finding a knowledgeable practitioner and having a few sessions. It just might be what you're head is asking for.
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"Don't 'cha touch hard liquor,
just a cup of cold coffee...
gonna get up in the morning
and go."
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E-Double
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Are we ourselves?
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Re: Who is who here to the newcommers
« Reply #82 on: Nov 17th, 2005, 9:23pm » |
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Welcome JohhnyA.
Whatever works for ya.
Sounds like quackery to me, however, yrs. before traditional meds there were things used to treat everything right???
Oh yeah..here is what's supposed to be in the little red box:
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Dan_The_Man_Howell
New Board Newbie
Im you're huckle berry!
Posts: 12
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Re: Who is who here to the newcommers
« Reply #84 on: Nov 18th, 2005, 12:01am » |
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Thanks Margi! I cant try the pic thing just yet, I got viruses AND spywares in my comp. allready! Im afraid to do any thing. I barely got on the net . I have to sign out and turn off my comp. for now untill i can have some one fix it so Ill be on the net mon. and wed. from school. Tlk to you then . dan
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Dan_The_Man_Howell
New Board Newbie
Im you're huckle berry!
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Re: Who is who here to the newcommers
« Reply #85 on: Nov 19th, 2005, 11:57pm » |
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[img][/img]http://pic18.picturetrail.com/VOL883/4174566/8727703/119321084.jpg
I hope this works! dan
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Dan_The_Man_Howell
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Re: Who is who here to the newcommers
« Reply #86 on: Nov 19th, 2005, 11:59pm » |
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maybe this time !
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thebbz
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Ow,Ow,Ow
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Re: Who is who here to the newcommers
« Reply #87 on: Nov 21st, 2005, 9:37pm » |
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testing 1,2,
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It wasn't me I didn't do it
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Dan_The_Man_Howell
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Re: Who is who here to the newcommers
« Reply #88 on: Nov 24th, 2005, 4:27pm » |
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LeLimey
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OUCH-US - Less "ME" and more "WE"
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Re: Who is who here to the newcommers
« Reply #89 on: Nov 24th, 2005, 4:31pm » |
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Hi Dan!
Good to see you looking so much better than in the pics your mum showed me in Dallas. I don't ever want to see you looking like that again y'hear?!
Nice to have you here
love
Helen X
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Re: Who is who here to the newcommers
« Reply #90 on: Nov 24th, 2005, 4:33pm » |
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THAT'S MY BOY!!!!!!!!!
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Dan_The_Man_Howell
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Im you're huckle berry!
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Re: Who is who here to the newcommers
« Reply #91 on: Nov 24th, 2005, 4:40pm » |
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 [ IMG]http://i27.photobucket.com/albums/c164/mydboy00/aprilandme064.jpg[/IMG] so here they are! finally ! Enjoy
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Margi
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Re: Who is who here to the newcommers
« Reply #92 on: Nov 24th, 2005, 4:45pm » |
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here's your 2nd pic, Dan...
there was an extra space in there...
you've sure got your mom's eyes.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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E-Double
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Re: Who is who here to the newcommers
« Reply #93 on: Nov 24th, 2005, 8:48pm » |
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on Nov 24th, 2005, 4:45pm, Margi wrote:
you've sure got your mom's eyes. |
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He sure does!
Nice to "meet" ya.
You have a hell of a groovy mommy
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Dan_The_Man_Howell
New Board Newbie
Im you're huckle berry!
Posts: 12
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Re: Who is who here to the newcommers
« Reply #94 on: Nov 26th, 2005, 2:31pm » |
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Thanks for putting that pic up margi
And YES, I do have gorgeous eyes dont I? 
should I just call you E e double? Nice to meet you too. were do you all live?
Mom, do you have yahoo IM? thats the mess. I use. I still cant seem to find a chat room or I M place
heres a pic of me and my neice kristen. shes got the best eyes......
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BarbaraD
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Hugs to ya
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Re: Who is who here to the newcommers
« Reply #95 on: Nov 30th, 2005, 11:27am » |
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Hi,
I'm Barb D and I've been here since 98 (ok I'm an OLDIE). I'm electronically challenged so can't post a picture so you'll just have to believe I'm 29, 5'2, and a beautiful blonde (yeah right and I've got a bridge in Brooklyn that's for sale too).
I'm a chronic clusterhead, a recent widow with a four year old grandson (if you have about four days I'll tell you about him!). I'm a semi-retired accountant who's looking forward to moving to the country and watching my grandson grow and keeping up with the gossip (not much else to do in the country).
For all of you who've found this site - welcome to Clusterville. It's the best place to come for support and understanding. It's a place where you'll find someone who "understands" what you're going thru, someone who can make you laugh when you're hurting and want to give up and someone who "really" cares.
Hugs to you all,
BD
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What don't kill ya, Makes ya stonger!
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rubberplant
New Board Junior
"Why me, why me, why me!?!?"
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Re: Who is who here to the newcommers
« Reply #96 on: Dec 19th, 2005, 7:20am » |
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Hi all,
It's good to read about everyone again! It's good to know you're all still here!
I haven't been around for a while as I have been PF since 4 or 5 weeks after my son was born. About 16 months ago. Just been put on Citalopram for a bout of depression. (Will start a new post on that rather than jump this thread) Looks like I might have just started a cycle in the last two days. 
Best Wishes to all
Strange how you can miss people you've never met
James
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Ree
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Re: Who is who here to the newcommers
« Reply #97 on: Jan 15th, 2006, 3:03pm » |
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Linda H... your son is adorable.....jussssss like you and your little grand daughter is sooooo sweet... nice family love ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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gtjim
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Re: Who is who here to the newcommers
« Reply #98 on: Jan 16th, 2006, 8:22am » |
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hi, my name is jim and im just getting over a ch kip 7. i live in australia and was diagnosed with this last week. this site rocks! if i didnt stumble onto this site i wouldnt have known about the icepack trick or the coffee trick. THANKYOU.these two things have helped me immensley, plus im on verapamil(not sure if it is really helping though).
ch SUCKS BIG TIME
are there any bad short or long term side effects of using verapamil?
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upnover
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Re: Who is who here to the newcommers
« Reply #99 on: Jan 19th, 2006, 11:28am » |
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Hi
I'm new here but have been a ch for about 14yrs..
35yrs old married with two great girls 18mths and 7yrs old.
I wish I had found this site a long time ago but better late than never.
[img][/img]http://community.webshots.com/photo/320021053/1320027437068252862hmMeej#
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| « Last Edit: Jan 20th, 2006, 5:37pm by upnover » |
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Tom
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