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Topic: 5-HT activity in Kudzu (Read 32681 times) |
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #525 on: Apr 5th, 2005, 8:13am » |
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Update: I've been OFF of the kudzu for five days now, and I'm still pain-free. In the eight years that I've had CH, this has been the mildest, shortest, most pain-free, and tolerable cycle, EVER. I'm tentatively hopeful that I am out of cycle, now. I want to thank Floridian and Nani once again. From the bottom of my heart, thank you. Thank you. Thank you!
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nani
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Re: 5-HT activity in Kudzu
« Reply #526 on: Apr 5th, 2005, 8:34am » |
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That's great news, Frank!! I'm so happy for you. 
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Re: 5-HT activity in Kudzu
« Reply #527 on: Apr 5th, 2005, 11:01am » |
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Hey Jeepster....
Glad you're doing good, sweetie
j
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #528 on: Apr 5th, 2005, 11:25am » |
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Thank you, Jean!!  You too!!
Thanks, Nani.
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KMT
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Re: 5-HT activity in Kudzu
« Reply #529 on: Apr 6th, 2005, 1:57pm » |
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Well last night was awful not really sure what my next step would be. This was about the usual a kip 8-10 anywhere from 4 days to one week. Last night was a Kip 6-7. The rest during the time prior to were 4-5 shadows a day with a range of Kip 2-4.
Been on Kudzu a week. Plantary formula 750 mg tab two, three times a day. What is the next step? I don't know where to go from here. Any advise sure could use it.
Thanks, Kim PF wishes to all others
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nani
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Re: 5-HT activity in Kudzu
« Reply #530 on: Apr 6th, 2005, 2:00pm » |
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 Sorry, Kim. It has taken some people longer than others to get relief. Did you get your oxygen issues dealt with? I really don't know what to say. You could choose to stop now, or try a while longer. I'm keeping my fingers crossed for you. PF wishes, nani
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KMT
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Re: 5-HT activity in Kudzu
« Reply #531 on: Apr 6th, 2005, 2:07pm » |
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I am hopeless...
I will cont. to try for a little longer it can't hurt.
The O2 issue well got a place that will supply everything but now my insurance wants a good reason given for me to have the O2. So my Dr. is helping fight this issue and I am just waiting.
I still appreciate all you have done Nani and Floridian. At least a majority continue to get relief and thats all that counts.
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nani
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Re: 5-HT activity in Kudzu
« Reply #532 on: Apr 6th, 2005, 2:11pm » |
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NEVER, ever be hopeless, sweetie. There's always hope.
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KMT
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Re: 5-HT activity in Kudzu
« Reply #533 on: Apr 6th, 2005, 2:16pm » |
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I am trying to stay positive just a minor set back that is all.
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clarence
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Re: 5-HT activity in Kudzu
« Reply #534 on: Apr 6th, 2005, 11:15pm » |
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Prayers for you Kim.
And way to go Frank. I am really happy for you.
Nothing new to report here really. Kudzu still working as a good prevent, though my breakthrough hits have increased a little in frequency, but a lot in intensity. Maybe I will up my dose.
Casey
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LeLimey
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Re: 5-HT activity in Kudzu
« Reply #535 on: Apr 7th, 2005, 3:56am » |
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As an update from me, I am stil getting hit but not nearly as often or as hard. I am really pleased with its efficacy for me.. whilst I haven't had the out and out success some people have had reducing the hits and the severity of them has a HUGE impact on my morale and its finally given me some hope again that I can beat this thing... it was wearing VERY thin (now in week 30 of my cycle) Thank you again Flo and Nani... I don't think I'll ever get tired of saying that! You really have put a smile back on my face.. see?! 
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sundancer
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Re: 5-HT activity in Kudzu
« Reply #536 on: Apr 7th, 2005, 4:00pm » |
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Taking kudzu and neurontin, been PF for 20 days. It was after 9 days on neurontin and 5 on kudzu the the HA stopped.
Has anyone tapered off of kudzu before they think their cycle might be over?
I am usually hit for 8 weeks and didn't know whether I needed to continue thru the expected length of the cycle or not.
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #537 on: Apr 7th, 2005, 4:28pm » |
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Howdy, Sundancer. I went off the kudzu a couple of times, just to ascertain where I was in the cycle. I did it after being on the kudzu for about two weeks, to see if it acted similar to prednisone. Um... That was a mistake. LOL
I missed a dose on a couple of occasions, and paid for it with a cluster headache. Mild, but they were still hits.
After being 100% pain-free for two weeks, with no "twinges," or near-hits, I abruptly quit taking the kudzu and had no adverse reaction at all.
Good luck and PFDAN's.
-Frank
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seasonalboomer
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Re: 5-HT activity in Kudzu
« Reply #538 on: Apr 7th, 2005, 4:28pm » |
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I came off it abruptly and was successful. My cycle should have lasted longer but it was shortened by the kudzu. I then decided to come off kudzu after I was painfree for a few days with no shadows lingering. If you still feel like the beast is sleeping lightly you may want to take your time. I think Frank can speak to his experience as well -- he's posted his process on this thrad further back.
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nani
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Re: 5-HT activity in Kudzu
« Reply #539 on: Apr 8th, 2005, 12:33pm » |
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Week 9:
I am happy to report that I have had 2, yes 2, completely PF days. No "phantom" hits or shadows either. 
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #540 on: Apr 8th, 2005, 1:21pm » |
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Wonderful, Nani!! May it continue indefinitely!!
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KMT
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Re: 5-HT activity in Kudzu
« Reply #541 on: Apr 8th, 2005, 3:41pm » |
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Congratulations Nani that is wonderful news. I will keep my fingers crossed for you.
Congrats for you as well Frank.
I am so glad that you both have had such great success. You really do deserve it.
Kim
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #542 on: Apr 8th, 2005, 4:04pm » |
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Thank you, Kim. Coming out of cycle makes me feel like Lazarus, or something... I hope you gain some relief soon, as well. Hang in there!
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nani
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Re: 5-HT activity in Kudzu
« Reply #543 on: Apr 8th, 2005, 6:20pm » |
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Thanks Frank and Kim. I know what you mean about feeling like Lazarus, Frank....it's been a looong time for me.
Kim...I'm still keeping everything crossed that it works as well for you! hugs, nani
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KMT
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Re: 5-HT activity in Kudzu
« Reply #544 on: Apr 8th, 2005, 6:51pm » |
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Thanks Nani and Frank
I'll keep plugging away as I always do. 
Kim
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toolong
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Re: 5-HT activity in Kudzu
« Reply #545 on: Apr 9th, 2005, 8:20am » |
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Been doing the zu now for 3 days short of a month.Hits are down 80% with a few shadows hanging around late in the day.02 usage is down also.I was taking 02 every night,now only 2-3 times a week.I am the worlds #1 skeptic and never thought that the Kudzu would really work,but it seems to be for me.Haven't tried withdrawing from the other preventives Dr. has prescribed,but that will be next.Thanks you CH.com and all those who contributed.PF days and nights to all. David
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KMT
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Re: 5-HT activity in Kudzu
« Reply #546 on: Apr 9th, 2005, 9:49am » |
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David This is wonderful news I will keep my fingers crossed that you will be 100% PF very soon.
Kim
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aka...................................................... KimY
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Jeepgun
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Re: 5-HT activity in Kudzu
« Reply #547 on: Apr 9th, 2005, 10:57am » |
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Outstanding, David!! I hope that 80% goes to 100% very soon. Keep us posted on your progress, as you come off of the prescription medications, if that's what you choose to do. Very best wishes and PFDAN's,
-Frank
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godsjoy777
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Re: 5-HT activity in Kudzu
« Reply #548 on: Apr 9th, 2005, 2:05pm » |
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Well......my report is a mixed bag.......Been on the Zu now about 2 months I guess......I take it 3 X per day....sometimes I miss the noon dose but usually get it down later in the day when I remember like about 4 to 6PM....then right before bedtime.....I also take magnesium and some melatonin......This is one week shy of 7 months long for me......BUT.....The hits have seemed to drop off.....some....I get 3 or 4 pain free nights and days....YIPPEE!!!!!! but then WHAP!!!!!!!! Like last night I got awakened 4 times to pretty hard hits....THABK GOD....again and again for the O2....My husband had to go get the new tank out of the car in the middle of the night.....He is sooooooo great.....It just doesn't seem to have any rhyme or reason.....again....Oh well....I am happy for the nights I get to sleep....
Love y'all,
Karen
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KMT
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Re: 5-HT activity in Kudzu
« Reply #549 on: Apr 10th, 2005, 1:19am » |
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 I am trying.............  Oh forget it just feeling sorry for myself tonight.. Don't even now what I am doing right now. Keeping the mind busy I guess just had to take an Imitrex an now feel all doppy. Ok now I am rambling sorry.
Bye
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aka...................................................... KimY
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